Bowel or fecal incontinence and how to manage it

Posted by Sarah @emyliander, Jun 11, 2019

I am 73 yr old femal with diagnosed Celiac, Microscopic Colitis and IBS. i don’t have diarrhea, BM’s are either soft formed or constipated small hard stool, but either way I can be incontenant of small amount of stool. I wear a pad in close knit underwear with legs, so nothing can escape. Any advice from people with same problem would be comforting and useful. I would like to know how you handled it on social occasions.
Thank you, Emyliander

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Profile picture for Sarah @emyliander

Well today I had my last PFPT and it has gone well. In the past 4 weeks I have had 2 very small bowel incidents, rather than daily. I am so pleased I can hardly believe it. There is so much information included with the therapy, I would recommend it for anyone with bowel incontinence. I’m going to make sure my doctors know about it so they will suggest it to other patients. Thank you for the help you give us. Emy.

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This was for JK also. Thanks.

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Profile picture for Sarah @emyliander

Well today I had my last PFPT and it has gone well. In the past 4 weeks I have had 2 very small bowel incidents, rather than daily. I am so pleased I can hardly believe it. There is so much information included with the therapy, I would recommend it for anyone with bowel incontinence. I’m going to make sure my doctors know about it so they will suggest it to other patients. Thank you for the help you give us. Emy.

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@emyliander My PFPT told me to not skip more than two days or it will really set you back. I have to admit I have skipped much more than that because for some of the exercises I have to be on my side and after fracturing my femur I couldn't lie on my side. I do see that I have had a setback but it's not total. I have been resuming the exercises now.
I know, I could have done some of the exercises but I was in so much overall discomfort that I did not.
JK

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Profile picture for JK @contentandwell

@emyliander My PFPT told me to not skip more than two days or it will really set you back. I have to admit I have skipped much more than that because for some of the exercises I have to be on my side and after fracturing my femur I couldn't lie on my side. I do see that I have had a setback but it's not total. I have been resuming the exercises now.
I know, I could have done some of the exercises but I was in so much overall discomfort that I did not.
JK

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Sorry to hear about your fracture, I can see that would set you back. One of the exercises was for relaxation, as she said being tense could make things worse. I had long suspected that. Also having a lot of fiber in your food is recommended, it seemed to help me to switch from cold cereal to gluten free oatmeal, with fruit and nuts in it. I’m sure I will continue to learn about other foods that will benefit me. It is important to keep up the exercises, and also easy to let it slide for various reasons, I do it myself.
Thanks for writing. Emy.

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Profile picture for Sarah @emyliander

Sorry to hear about your fracture, I can see that would set you back. One of the exercises was for relaxation, as she said being tense could make things worse. I had long suspected that. Also having a lot of fiber in your food is recommended, it seemed to help me to switch from cold cereal to gluten free oatmeal, with fruit and nuts in it. I’m sure I will continue to learn about other foods that will benefit me. It is important to keep up the exercises, and also easy to let it slide for various reasons, I do it myself.
Thanks for writing. Emy.

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Reply was for JK.

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Profile picture for Sarah @emyliander

Sorry to hear about your fracture, I can see that would set you back. One of the exercises was for relaxation, as she said being tense could make things worse. I had long suspected that. Also having a lot of fiber in your food is recommended, it seemed to help me to switch from cold cereal to gluten free oatmeal, with fruit and nuts in it. I’m sure I will continue to learn about other foods that will benefit me. It is important to keep up the exercises, and also easy to let it slide for various reasons, I do it myself.
Thanks for writing. Emy.

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@emyliander I generally have oatmeal about three or four times a week, with some nuts and some berries, generally blueberries.
Relaxing is definitely helpful too. Soft bowel movements do make it worse but occasionally even when not soft a very small “marble” will leak out.
JK

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Yes I loose some marbles occasionally also. ( 😳 ) frustrating.

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Profile picture for Sarah @emyliander

Hi Jackie, this is @emyliander, I have been referred finally by my GP for Pelvic PT, that was a week ago and I haven’t heard from them so on Monday I will call my GP and get their # . In the meantime I get emails from Harvard Health Medical and I just received an invitation to purchase an e-book on urinary and fecal incontinence, with up to date info on treatments and meds to help this problem. The cost is $18.00. I’m wondering if anyone else has purchased this and if you think it’s a reputable deal. Thanks for any info you can give me. Emy.

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I got so sick of Harvard Newsletter pretending to educate and help people with dis-ease and then after a few sentences asking you for 💲💲💲💲. And the "pitch" is formulaic and treats you like an idiot who will fall for their products. I don't open these emails anymore.

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I have an embarrassing problem that has developed over the years due to chronic constipation. My anal sphincter has lost muscle tone. I have been trying to find a balance between constipation and loose stools. I was put on Linzess, which is VERY expensive and gave me diarrhea even on the lowest dose. I was unable to control my bowels and had to wear pads....very messy! I got off the Linzess and began using one capful of Miralax in water at bedtime in addition to Metamucil after lunch. My stools were very soft and I could not tell if I was passing gas or leaking stool. Right now my biggest concern is the loose anal sphincter. I used to be able to prevent myself from passing gas in social situations and now I can't do that plus I leak stool. If I don't take anything for the constipation I go for days without a BM and my stool becomes like rabbit pellets and I have to strain to have a BM. I have IBS and a redundant bowel. Years ago my gastroenterologist had me see his nurse practitioner who gave me exercises, similar to Kegel exercises, but I was hit and miss doing those. Does anyone else have a situation like mine? I am only 69 years old and we love to travel. I can't foresee traveling or going swimming, etc. if I have this problem.

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Profile picture for jeanne51 @jeanne51

I have an embarrassing problem that has developed over the years due to chronic constipation. My anal sphincter has lost muscle tone. I have been trying to find a balance between constipation and loose stools. I was put on Linzess, which is VERY expensive and gave me diarrhea even on the lowest dose. I was unable to control my bowels and had to wear pads....very messy! I got off the Linzess and began using one capful of Miralax in water at bedtime in addition to Metamucil after lunch. My stools were very soft and I could not tell if I was passing gas or leaking stool. Right now my biggest concern is the loose anal sphincter. I used to be able to prevent myself from passing gas in social situations and now I can't do that plus I leak stool. If I don't take anything for the constipation I go for days without a BM and my stool becomes like rabbit pellets and I have to strain to have a BM. I have IBS and a redundant bowel. Years ago my gastroenterologist had me see his nurse practitioner who gave me exercises, similar to Kegel exercises, but I was hit and miss doing those. Does anyone else have a situation like mine? I am only 69 years old and we love to travel. I can't foresee traveling or going swimming, etc. if I have this problem.

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Hi @jeanne51 and welcome back to Connect, though I am sorry it is under these circumstances. I would like to connect you with people who have had similar issues with bowel incontinence so I moved your inquiry to a conversation on that topic.

Have you consulted with a physician regarding your problem?

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Profile picture for Amanda Burnett @amandaa

Hi @jeanne51 and welcome back to Connect, though I am sorry it is under these circumstances. I would like to connect you with people who have had similar issues with bowel incontinence so I moved your inquiry to a conversation on that topic.

Have you consulted with a physician regarding your problem?

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Hi Amanda, I have consulted my gastro in the past but not since this issue exacerbated. I thought it would be beneficial to get reader's in put before I move forward with my doctor. Basically I have been dealing with SEVERE constipation for two years, but since I was a child. I just recently discovered the issue of bowel incontinence with the Linzess.

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