Bowel incontinence

Posted by emyliander @emyliander, Jun 11, 2019

I am 73 yr old femal with diagnosed Celiac, Microscopic Colitis and IBS. i don’t have diarrhea, BM’s are either soft formed or constipated small hard stool, but either way I can be incontenant of small amount of stool. I wear a pad in close knit underwear with legs, so nothing can escape. Any advice from people with same problem would be comforting and useful. I would like to know how you handled it on social occasions.
Thank you, Emyliander

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@hopeful33250

Hello @tjitske, I admire how proactive you have been. You said, " I had to do my own research and come up with the diagnosis." For many of us, this has been the way we have learned about a difficult and/or hard to diagnose problem. In addition, you have worked to find out what foods and products will set off the loose stools. Undoubtedly, being a retired nurse has given you some insight and investigative skills.

You mentioned that you had your gallbladder out 40 years ago. Did this problem start at that time?

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No it started 10 years ago. But got worse. It was awefull. Now with the RX I can manage it. And yes I feel disappointed that no one caught it sooner. I had lots of tests and all were negative. So I had seen this forum and from there ichecked, googled read about others, then a aquantance told me about her issues and what her doc told her and bingo. My gastro gave me the RX and with the first dose I had relief. Imagine that

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@contentandwell

@emyliander I understand completely about not talking to your friends about these problems, they can be embarrassing. I don't talk to many people about it either, and even my son and daughter do not know I have fecal incontinence, they do know about my urinary incontinence. They had to so they would understand when we are out why I have to stop so frequently.
Ahhh, so you are basically right next door, in Maine! We have a small, rustic lakeside cabin on Lake Thompson. We used to be there every summer weekend and for vacation but it's getting to be a lot to do for my husband and myself so we are trying to disposition it to our kids right now but that's not an easy thing to do. Lots of complications.
JK

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Hi Jackie, this is @emyliander, I have been referred finally by my GP for Pelvic PT, that was a week ago and I haven’t heard from them so on Monday I will call my GP and get their # . In the meantime I get emails from Harvard Health Medical and I just received an invitation to purchase an e-book on urinary and fecal incontinence, with up to date info on treatments and meds to help this problem. The cost is $18.00. I’m wondering if anyone else has purchased this and if you think it’s a reputable deal. Thanks for any info you can give me. Emy.

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@emyliander

Hi Jackie, this is @emyliander, I have been referred finally by my GP for Pelvic PT, that was a week ago and I haven’t heard from them so on Monday I will call my GP and get their # . In the meantime I get emails from Harvard Health Medical and I just received an invitation to purchase an e-book on urinary and fecal incontinence, with up to date info on treatments and meds to help this problem. The cost is $18.00. I’m wondering if anyone else has purchased this and if you think it’s a reputable deal. Thanks for any info you can give me. Emy.

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Emy, have you had a specific diagnosis of what is causing this problem? I ask because in my case, a GI told me I was incontinent (because of ongoing diarrhea) and sent me for Pelvic Floor therapy. A colorectal surgeon said therapy could help me control the urges somewhat problem but weak Pelvic Floor muscles were not causing the diarrhea. Turns out I have IBS.
I think if were you I would wait to order the book until after starting the therapy and finding out more about what is causing your problem. Good luck!

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@jackiem95

Emy, have you had a specific diagnosis of what is causing this problem? I ask because in my case, a GI told me I was incontinent (because of ongoing diarrhea) and sent me for Pelvic Floor therapy. A colorectal surgeon said therapy could help me control the urges somewhat problem but weak Pelvic Floor muscles were not causing the diarrhea. Turns out I have IBS.
I think if were you I would wait to order the book until after starting the therapy and finding out more about what is causing your problem. Good luck!

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In reply to jackiem95. I have been diagnosed with Celiac, IBS, and Microscopic Colitis, in that order, with a few yrs in between. I’ve had the diagnosis for many yrs, but the incontinence only for a couple of yrs. so I know why the diarrhea and constipation happpen, and I’ve been told that my rectal muscles are weak. But no one ever suggested anything I could do about it until I joined the digestive discussion. I’ve noticed that those who have had the PFPT say it has helped “somewhat “ so what are the odds of having it take care of the problem entirely. Would that be expecting too much, especially at me age ? My blood work shows that the Celiac is well under control, I’m strict with my diet. As for the other two diagnoses there’s not a simple answer.
Thank you for replying, I know everyone is different, so there’s no guarantee.
Emy.

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Hi everyone. I was having incontinence and was given Imipramine to take at night. It has solved the problem of having accidents in public but not the dumping and general constipation. I have been diagnosed with Celiac since 2008 and IBS since 2013. I was afraid to go out due to the accidents and now I can at least hold it till I get to a bathroom. Still, going to the bathroom in public stalls is not fun. I believe it is from (for me)the 5 days of constipation (or more) then my body's desire to rid itself of all the toxins inside it. My celiac panels are also very good, so I not I am not eating badly that way. I researched the foods that cause gas and bloating soooo I don't know what else to do. Stop eating?
Reny

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what do you guys think pf the Keto diet? Would that be too hard on a thyroid patient? I also have Hypothyroid (along with everything else).

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@emyliander

Hi Jackie, this is @emyliander, I have been referred finally by my GP for Pelvic PT, that was a week ago and I haven’t heard from them so on Monday I will call my GP and get their # . In the meantime I get emails from Harvard Health Medical and I just received an invitation to purchase an e-book on urinary and fecal incontinence, with up to date info on treatments and meds to help this problem. The cost is $18.00. I’m wondering if anyone else has purchased this and if you think it’s a reputable deal. Thanks for any info you can give me. Emy.

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@emyliander Around here, when you are referred to someone like a physical therapist, it is up to you, the patient, to call and make the appointment.
I had pelvic floor PT and did find it helpful. I also get emails from Harvard Health and I think I saw the one you mention. I have not purchased it. They do have a lot of good titles and they probably are helpful. Harvard is definitely reputable.
JK

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@jackiem95. Hi this is Emy, I wrote a note yesterday but don’t know what happened to it. Just to say I had my first evaluation for Pelvic Floor PT. I will continue with treatment after I return from Spain. I am taking Iron pills as my count was down, and am using that about every other day to keep my stool solid, it seems to be a happy medium. So I am doing well but still take precautions. I have had to increase my antidepressant and anti anxiety meds as all of this, and my vacation coming up was overwhelming.
Thanks , Emy.

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@emyliander

@jackiem95. Hi this is Emy, I wrote a note yesterday but don’t know what happened to it. Just to say I had my first evaluation for Pelvic Floor PT. I will continue with treatment after I return from Spain. I am taking Iron pills as my count was down, and am using that about every other day to keep my stool solid, it seems to be a happy medium. So I am doing well but still take precautions. I have had to increase my antidepressant and anti anxiety meds as all of this, and my vacation coming up was overwhelming.
Thanks , Emy.

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Safe travels and good luck with health!

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@jackiem95

Safe travels and good luck with health!

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@ jackiem95
Well I’m back, and I don’t understand what has happened but from the day I left on vacation on until now, I have not had one incident of incontinence. I don’t know if it was the iron I was taking, but previously I had problems even when constipated. I have had my third visit for Pelvic Floor Therapy, I don’t know if the exercises helped enough, it seems too short a time to be that effective, but I’m enjoying it while it lasts.
Before leaving for my vacation, my therapist at the Dr.s office suggested that I might have mild cognitive problems, even saying that the quicker it’s treated the better the outcome. I asked my friend what she thought and she said she had been thinking the same thing. She asked me if I was upset about it. I said “ no because I don’t really believe it.
My sister-in-law said she noticed a difference but thought it was because of my antidepressant which was recently increased.
I am very forgetful which causes a lot of inconveniences. Tomorrow I go back to the therapist and will ask him what he based his suggestion on. On Wednesday I see my psychiatrist and will tell him about this and see what he thinks. In the meantime I wanted to go on the MCI group to see if others problems matched up with mine at all. I am a very busy person and have a lot on my mind with sick friends, and family to keep up with, including our handicapped daughter who lives with us. So I’m wondering if I could join that group.
Thanks for your time and the work that you do. Emi.
It’s

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@emyliander

@ jackiem95
Well I’m back, and I don’t understand what has happened but from the day I left on vacation on until now, I have not had one incident of incontinence. I don’t know if it was the iron I was taking, but previously I had problems even when constipated. I have had my third visit for Pelvic Floor Therapy, I don’t know if the exercises helped enough, it seems too short a time to be that effective, but I’m enjoying it while it lasts.
Before leaving for my vacation, my therapist at the Dr.s office suggested that I might have mild cognitive problems, even saying that the quicker it’s treated the better the outcome. I asked my friend what she thought and she said she had been thinking the same thing. She asked me if I was upset about it. I said “ no because I don’t really believe it.
My sister-in-law said she noticed a difference but thought it was because of my antidepressant which was recently increased.
I am very forgetful which causes a lot of inconveniences. Tomorrow I go back to the therapist and will ask him what he based his suggestion on. On Wednesday I see my psychiatrist and will tell him about this and see what he thinks. In the meantime I wanted to go on the MCI group to see if others problems matched up with mine at all. I am a very busy person and have a lot on my mind with sick friends, and family to keep up with, including our handicapped daughter who lives with us. So I’m wondering if I could join that group.
Thanks for your time and the work that you do. Emi.
It’s

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@emyliander Three sessions of pelvic floor PT does seem like a very short amount of time for them to help that much. I assume along with the sessions you do the exercises at home also though.

It sounds to me as if perhaps your diet changed when you were away and that's what gave you relief. It will be interesting to see if now that you are home your problems resume. As I have mentioned, when I had these problems I tried eliminating various things, never even dreaming it could be lactose. Then I started noticing that on the days when I had a lot of food with lactose my problem was more severe. I have eliminated lactose and the problem is gone. When I am out and think a smidgen might be hidden in something I am served I take two Digestive Advantage Lactose Defense tablets before eating. I find them to be much more effective than Lactaid. Lactaid did not help me at all.
JK

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@emyliander

@ jackiem95
Well I’m back, and I don’t understand what has happened but from the day I left on vacation on until now, I have not had one incident of incontinence. I don’t know if it was the iron I was taking, but previously I had problems even when constipated. I have had my third visit for Pelvic Floor Therapy, I don’t know if the exercises helped enough, it seems too short a time to be that effective, but I’m enjoying it while it lasts.
Before leaving for my vacation, my therapist at the Dr.s office suggested that I might have mild cognitive problems, even saying that the quicker it’s treated the better the outcome. I asked my friend what she thought and she said she had been thinking the same thing. She asked me if I was upset about it. I said “ no because I don’t really believe it.
My sister-in-law said she noticed a difference but thought it was because of my antidepressant which was recently increased.
I am very forgetful which causes a lot of inconveniences. Tomorrow I go back to the therapist and will ask him what he based his suggestion on. On Wednesday I see my psychiatrist and will tell him about this and see what he thinks. In the meantime I wanted to go on the MCI group to see if others problems matched up with mine at all. I am a very busy person and have a lot on my mind with sick friends, and family to keep up with, including our handicapped daughter who lives with us. So I’m wondering if I could join that group.
Thanks for your time and the work that you do. Emi.
It’s

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Glad you were able to enjoy your vacation without problems! I think continuing with the Pelvic Floor therapy would be worthwhile. I am a bit puzzled though about your comments about possible cognitive issues. Are you thinking this may be related to your digestive conditions?

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