1. < Fibromyalgia

Fibromyalgia Medication and treatment

Posted by Sundance(RB) @sundance6, Jun 1, 2019

I have been on the Mayo Connect for over six months. My symptoms point to the umbrella of things, Lyme disease, West Nile, Fibromyalgia, Lupus, and Chronice Fatigue. I have seen every doctor in my hospital system. Had every test and scans done. JUST MADE MORE $$ FOR THE HOSPITAL SYSTEM!

Yesterday I finally went to a Rheumatologist for a consultation on a blood test. When I expalined what I had been going through the last ten months he finally gave me a diagnoses. (First one after 10 months and 10 doctors.)There is a small chance I may have Lyme Disease, but to late to tell. He said he was sure it is Fibromyalgia. He said I should have been directed to him when it first started. (Again as many of you agree they put you through unecessay test and perscribe pills to make $$ for the industry.

So now that I finally have some direction to move, I need some advice, information, what helps, what causes it and such. He said he feels mine is in the area of sleep. Does this make sense to anyone? He is sending me to a sleep clinic for evaluation.

I know I have seen many postings about Fibromyalgia, but I guess it is the "Fibro Fog" that dosen't remember all.

I had been on Gabretentian but the side effects were worse than my pain! We are tryng Cymbalta. Can anyone let me know how it has worked for them. Anything to watch for?
As always this site is the Best! People are so honest and open about helping.
Thanks,
Sundance 🙂

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

capausz | @capausz | Jun 2, 2019
In reply to @sundance6 "Thanks Ginger! Sounds like our symptoms are very similiar. The last blood test showed up in..." + (show)
@sundance6

Thanks Ginger! Sounds like our symptoms are very similiar. The last blood test showed up in an autoimune condition that they are researching now. Interesting you bring up the streching and Tai Chi. That is what the Rheumotoligist reconmended Friday. He said Tai Chi or Yoga. Can anyone chirp in if they have tried both and which works for them. We're all different! Being a senior, my YMCA has the Silver Sneakers program that I am going to look into this week. Funny thing is I don't want to embarass myself in front of others! Does that give you a clue of deep issues I have! LOL!

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@sundance6, I have taken both Chair Yoga (which does not require getting on the floor [two TKR] and getting up), as well as Tai Chi. Both are wonderful in terms of stretching , flexibility, and balance. Both give you an incredible workout. Make sure you find an instructor that will allow you to work at your own pace and ability. We are all in different spots on the path to wellness.

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2 replies
lioness | @lioness | Jun 2, 2019
In reply to @sandytoes14 "@lioness I dread taking Prednisone. The side effects are sometimes worse than the symptoms. Because I..." + (show)
@sandytoes14

@lioness I dread taking Prednisone. The side effects are sometimes worse than the symptoms. Because I had RNY gastric bypass the absorption is so different on all my meds.

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@sandytoes I'm On a sliding scale from 6-1 to none I saw what it did for my Mom I don't want to be On it only when I need it Its been 8-9 yrs since I took it it was only when I underwriTer would order like this.I've started to look at nerve surgery on my burning pain in my legs To it to talk to pain Dr I think.

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tazscott | @tazscott | Jun 2, 2019
In reply to @capausz "@sundance6, I have taken both Chair Yoga (which does not require getting on the floor [two..." + (show)
@capausz

@sundance6, I have taken both Chair Yoga (which does not require getting on the floor [two TKR] and getting up), as well as Tai Chi. Both are wonderful in terms of stretching , flexibility, and balance. Both give you an incredible workout. Make sure you find an instructor that will allow you to work at your own pace and ability. We are all in different spots on the path to wellness.

Jump to this post

Is Tai chi expensive to take ?

REPLY
2 replies
capausz | @capausz | Jun 2, 2019
In reply to @tazscott "Is Tai chi expensive to take ?" + (show)
@tazscott

Is Tai chi expensive to take ?

Jump to this post

@tazscott, at my local community center, I pay $3 per session, and I pay $5 per session at my local health wellness center. Each class is typically 50 to 60 minutes in duration. I find two classes a week works well for me.

REPLY
1 reply
elmay | @elmay | Jun 2, 2019
In reply to @sundance6 "Thanks Ginger! Sounds like our symptoms are very similiar. The last blood test showed up in..." + (show)
@sundance6

Thanks Ginger! Sounds like our symptoms are very similiar. The last blood test showed up in an autoimune condition that they are researching now. Interesting you bring up the streching and Tai Chi. That is what the Rheumotoligist reconmended Friday. He said Tai Chi or Yoga. Can anyone chirp in if they have tried both and which works for them. We're all different! Being a senior, my YMCA has the Silver Sneakers program that I am going to look into this week. Funny thing is I don't want to embarass myself in front of others! Does that give you a clue of deep issues I have! LOL!

Jump to this post

I am 71. I have had fibromyalgia since the 80s. I also have Raynaud’s, Sjogren’s, and Sicca Syndromes as well as unnamed auto immune diseases. When the fibromyalgia is bad, nothing seems to help except perhaps a warm bath. Due to GERD issues I can’t take most pain meds.

For the last 2 and a half years I have been going to yoga, tai ch, Strong Bodies class, walking, zumba gold, and trying to play pickle ball when I feel up to it. The more physical activities I do, the better I feel. I had to quit tai chi after a while because my balance is very poor and I could not do it. The yoga in particular has been good medicine.

My fibromyalgia comes in waves. Several weeks of feeling almost “normal “, and then the chest, shoulders, neck, and back start to ache. (Headaches as well) The pain usually peaks after 2 to 4 weeks and then suddenly subsided just when I think I’ll never feel well again. It’s a cycle I’ve begun to recognize . I’ve also learned that staying positive, staying busy, and doing things for others really help. Otherwise fibromyalgia can be too depressing.

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1 reply
lioness | @lioness | Jun 2, 2019
In reply to @tazscott "Is Tai chi expensive to take ?" + (show)
@tazscott

Is Tai chi expensive to take ?

Jump to this post

@capausz I do Two Chi at home on you tube there are a lot of videos check them out

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1 reply
tazscott | @tazscott | Jun 2, 2019
In reply to @capausz "@tazscott, at my local community center, I pay $3 per session, and I pay $5 per..." + (show)
@capausz

@tazscott, at my local community center, I pay $3 per session, and I pay $5 per session at my local health wellness center. Each class is typically 50 to 60 minutes in duration. I find two classes a week works well for me.

Jump to this post

Well,that is cheap enough. My pain therphist at mayo recommended it.

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tazscott | @tazscott | Jun 2, 2019
In reply to @elmay "I am 71. I have had fibromyalgia since the 80s. I also have Raynaud’s, Sjogren’s, and..." + (show)
@elmay

I am 71. I have had fibromyalgia since the 80s. I also have Raynaud’s, Sjogren’s, and Sicca Syndromes as well as unnamed auto immune diseases. When the fibromyalgia is bad, nothing seems to help except perhaps a warm bath. Due to GERD issues I can’t take most pain meds.

For the last 2 and a half years I have been going to yoga, tai ch, Strong Bodies class, walking, zumba gold, and trying to play pickle ball when I feel up to it. The more physical activities I do, the better I feel. I had to quit tai chi after a while because my balance is very poor and I could not do it. The yoga in particular has been good medicine.

My fibromyalgia comes in waves. Several weeks of feeling almost “normal “, and then the chest, shoulders, neck, and back start to ache. (Headaches as well) The pain usually peaks after 2 to 4 weeks and then suddenly subsided just when I think I’ll never feel well again. It’s a cycle I’ve begun to recognize . I’ve also learned that staying positive, staying busy, and doing things for others really help. Otherwise fibromyalgia can be too depressing.

Jump to this post

Have you tried narcotics patches instead of pills. I'm missing 3/4 of my stomach and upper small intestines. So I don't take pills. Don't absorb, goes through way to fast. You only have to put a new patch on every 7 days

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tazscott | @tazscott | Jun 2, 2019
In reply to @lioness "@capausz I do Two Chi at home on you tube there are a lot of videos..." + (show)
@lioness

@capausz I do Two Chi at home on you tube there are a lot of videos check them out

Jump to this post

Is it easy to get the hang of it ?

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Sundance(RB) | @sundance6 | Jun 2, 2019
In reply to @capausz "@sundance6, I have taken both Chair Yoga (which does not require getting on the floor [two..." + (show)
@capausz

@sundance6, I have taken both Chair Yoga (which does not require getting on the floor [two TKR] and getting up), as well as Tai Chi. Both are wonderful in terms of stretching , flexibility, and balance. Both give you an incredible workout. Make sure you find an instructor that will allow you to work at your own pace and ability. We are all in different spots on the path to wellness.

Jump to this post

Thanks for the info! It is a must to let them know! I know I did some work in my yard today and how it affected me. Reseted for a bit then did a little more. Pretty tired tonight.
Thanks,
Sundance

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