1. < Bladder Cancer

My dad has a mass on bladder and kidney not functioning

Posted by formydad @formydad, Apr 24, 2019

He is getting surgery tomorrow to remove mass have no idea if cancerous- assuming they will send off - doc said removal may”jump start his kidney which he was unaware is not functioning.. he had prostate cancer and has brach treatment i believe - that cancers gone but i have been reading that having had radiation for it may lead to bladder cancer - anyone experience this?

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JK | @contentandwell | Dec 12, 2019
In reply to @formydad "Its not easy seeing your parents age or yourself i think. Its hard but its life...." + (show)
@formydad

Its not easy seeing your parents age or yourself i think. Its hard but its life.
My husbands mom n dad have been having issues too lately- his dad passed out at a poker game and his heart thing was set too high so it didnt shock him- so Ended up at hospital for observation-hes following up with cardiologist- and his mom is in a home- started in independent living- had a small stroke and uti moved to assisted in same complex was doing therapy- but never was able to get back to walking or doing enough anymore to be in assisted shes in memory care part now and its worse! She was found on floor yesterday am from bed! - im daughter in law so gotta stay zipped there are eight kids and the one in charge of medical lives in texas😵 she calls gets ahold of people ect but old fashioned get in peoples faces is the best and most fruitful for movement or attention to an issue i think. Ive been reading on delirium Vs. Dementia and i think she has delirium- maybe another uti
Shes swollen she has heart issues and she said she thinks she has narcolepsy now..idk its hard for me to stand on sidelines but i know i have to although i did tell them id be glad to get in faces up the food chain to get some results.
They are testing the fluid in his abdomen now to see if it is urine or something else.they are putting a drain in bigger than what he had right after operation so idk how long he’ll be in here...
- i was perusing online reading and thought it might be ascites but the nurse said no she thinks it may be a fissure or something related to post op not ongoing which hopefully is a better senario.

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@formydad You sure have your hands full with both sets of parents having aging problems. I agree with @becsbuddy, you may just need to let your in-law's problems to be handled by some of their 8 offspring. You can't do everything. Hopefully some of them live closer than the one in Texas.
JK

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formydad | @formydad | Dec 12, 2019

Yeah- im letting his family handle his parents just giving suggestions from the sidelines😉 one more of the 8 lives in seattle but the rest are nearby. which is good.
Dads settled at home with his drain and new Urostomy bag.still has dull healing pain. He also has been getting a benign-cyst .- (at least it was last scan)on his brain watched- however this past Friday he had another check up scan done and they want him to make apt to come in- he wasn't at home to set it up but geeze it better not be anything! Moms taking it easy. “For her”- gonna help her get some christmas shopping done next week. Yes dad has home nurse care that come help. And he was finally able to get some good phone #rs for who to call if he has issues next time. yes it aure is a memorable year!

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formydad | @formydad | Dec 17, 2019

Do you have any ideas about what to do about intense itching on belly - mom keeps calling it a burn like they dropped something on his belly during operation..? dad says its so bad he just wants to lay there

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2 replies
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Dec 17, 2019
In reply to @formydad "Do you have any ideas about what to do about intense itching on belly - mom..." + (show)
@formydad

Do you have any ideas about what to do about intense itching on belly - mom keeps calling it a burn like they dropped something on his belly during operation..? dad says its so bad he just wants to lay there

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@formydad, As far as a topical relief – I got some relief with Sarna anti itch lotion. It is an over the counter lotion that I used before my liver/kidney transplant.

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Mentor
Ginger, Volunteer Mentor | @gingerw | Dec 17, 2019
In reply to @formydad "Do you have any ideas about what to do about intense itching on belly - mom..." + (show)
@formydad

Do you have any ideas about what to do about intense itching on belly - mom keeps calling it a burn like they dropped something on his belly during operation..? dad says its so bad he just wants to lay there

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@formydad An allergic reaction to a medication, or something topical [betadine used to clean area for surgery, surgical tape, etc.]? Have your dad let his team know about it, in case it is a medication.
Ginger

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2 replies
formydad | @formydad | Dec 17, 2019
In reply to @gingerw "@formydad An allergic reaction to a medication, or something topical [betadine used to clean area for..." + (show)
@gingerw

@formydad An allergic reaction to a medication, or something topical [betadine used to clean area for surgery, surgical tape, etc.]? Have your dad let his team know about it, in case it is a medication.
Ginger

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I think he has let them know but ill double check that and tell him about the lotion thank you!

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Dec 18, 2019
In reply to @gingerw "@formydad An allergic reaction to a medication, or something topical [betadine used to clean area for..." + (show)
@gingerw

@formydad An allergic reaction to a medication, or something topical [betadine used to clean area for surgery, surgical tape, etc.]? Have your dad let his team know about it, in case it is a medication.
Ginger

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@gingerw great advice!

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1 reply
formydad | @formydad | Dec 25, 2019
In reply to @becsbuddy "@gingerw great advice!" + (show)
@becsbuddy

@gingerw great advice!

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Extra body fluid Draining has been an issue for my dad since his bladder removal surgery on nov 19- he had a build up of fluid that became very painful they finally got him into doc and they put a drain in for a few days in hosp and watched him as fluid drained he felt better and so they sent him home with it to monitor amount that continued to drain... well he went back to soc and they tried to just plug it to see how he would do but then it started leaking from the hole of the drain that was put in - so dad unplugged it and now its draining again into the bag.. its not slowing down though...
Has anyone experienced this? My dad says hes been searching for others who have experienced this and he has not yet found anyone.. im trying to help him find answers

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1 reply
formydad | @formydad | Dec 28, 2019
In reply to @formydad "Extra body fluid Draining has been an issue for my dad since his bladder removal surgery..." + (show)
@formydad

Extra body fluid Draining has been an issue for my dad since his bladder removal surgery on nov 19- he had a build up of fluid that became very painful they finally got him into doc and they put a drain in for a few days in hosp and watched him as fluid drained he felt better and so they sent him home with it to monitor amount that continued to drain... well he went back to soc and they tried to just plug it to see how he would do but then it started leaking from the hole of the drain that was put in - so dad unplugged it and now its draining again into the bag.. its not slowing down though...
Has anyone experienced this? My dad says hes been searching for others who have experienced this and he has not yet found anyone.. im trying to help him find answers

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Any suggestions?

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1 reply
Mentor
Ginger, Volunteer Mentor | @gingerw | Dec 28, 2019
In reply to @formydad "Any suggestions?" + (show)
@formydad

Any suggestions?

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@formydad Has your dad contacted his team to tell them about the modification he did? I think they would like to know. Having the setup he does may be his "new normal"?
Ginger

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