I'm having multiple odd episodes that are keeping me undiagnosed. Help

Dear John I have a lot of your symptoms which in my case I partly explain by the fact that I have a short transit because I had a colon resection. Pain can raise Blood Pressure & your fast heartbeats are probably the results of anxiety. It is frightening to have symptoms we cannot explain..so we become anxious & that by itself can create weird symtoms. It is a vicious circle. I have also been disgnosed with IBS Yellow stools are probably caused by a lack of digestive enzymes. What helps me with all of the above is meditation. As we age our neuro system like our other systems deteriorate & create strange hard to explain symptoms as well. Good 🍀🍀🍀🍀

@lisalucier , I forgot with my Autistic to ask @johnwes5819 if he has had blood work done for his liver LFT and alt and ast ,kidney function tests urea ,uric acid and creatine, Thyroid function and parathyroid , piturity gland ,adrenal gland for a tumor, Pancreatic enzymes and also gall bladder and bile . sorries because of the diverse symptoms I cant thin k of which one to pick for you to focus .except due to medications I would look at the health of your liver and kidneys and gall bladder and for to look at the hormone levels in particular thyroid and also to rule out diabetes . I am a bio medical scientist and as didn't point any areas in your torso of pain sights and tightness and uncomfortable . I am not a doctor I diagnose from blood tests and morphology screening and pass the results onto the consultant and specialist doctors I am also autistic . hugs and I hope you get to mayo clinic and get a good proper work up to actually identify what's is triggering your symptom's

Hi john, I was diagnosed with depression and anxiety for similar reasons despite having big wounds and hair loss, and multiple odd symptoms including body temperature going down to 94. I just wanted to tell you that the conventional Lyme test suck. Although I’m not suggesting it’s that I’m just saying that if you continue to have medical symptoms without answers you may want to get a specialty Lyme test done by igenex.

@shelby99 Lyme disease really has horrible effects. I think the test has to be done within a certain window of time or it's not accurate.

There is a doctor in MA who I have heard is the foremost expert on Lyme, being an area where it is relatively common. The wait for an appointment is many months. We have a number of family members who have it, and have recurring problems from it.
JK

@johnwes5819 I don't recall you mentioning seeing a urologist, but given the frequent urination, it might be worth another specialist appointment.
What do you think about seeing a urologist or nephrologist?

@johnwes5819 Lyme is difficult and has a way of acting up when other things are going on. It seems as though it lies dormant at times. Anymore it is hard to tell what symptoms mean as they can mimic other things. Any type of an infection can cause mood issues. I do know I have as @shelby99 pointed out that Lyme can be difficult to diagnose after so long. Conventional tests will not detect thus after a certain amount of time-don't know the time frame. I have always been an outdoors, nature type person and was diagnosed with Lyme in 1983 and little was known. Seems little is still known.
Again, only a comment as I can only go with how it has been for me.

Yes Im right next door to MA and there is a good Lyme literate doctor in Cumberland RI (Lyme center) too. I agree about the test and unfortunately the better one Igenex you may have to pay a bit for but it also might be worth it. I paid so much in alternative treatment w/o success. Now I lived on handfuls of antibiotics daily for almost 3 years and it’s helped but now afraid to get off. I’m on another post cause my symptoms are the same as Morgellons (and not the delusional one). Although I’ve been told that which blows my mind since I was a mess. Being ill certainly causes anxiety and depression when your not getting answers. I have symptoms similar to ptsd from suffering so long (almost 10 years).

@afrobin Thank you. I am suffering in the worst way. I'm currently not on any medications and haven't been for a long time. Unfortunately, I've been to a number of internists and none of them have been able to help me. When you think Internist, or DO, you may think more inclined or knowledgable than an MD, unfortunately, this isn't the case. I'm a living testament to that. I wish it was that easy but I've had lots of tests including all of the basics.

I was dx with autonomic dysfunction years before I finally got a dx of Complex Regional Pain Syndrome. I probably had the CRPS when I was dx with the autonomic dysfunction but I don't think many knew about CRPS 20 years ago. My range of temperatures 93 to 98. Heart rate 43 - 140. Episode 3 sounds a lot like autonomic dysfunction. I have Reynauds but I also have small fiber neuropathy confirmed by two biopsies that cause very cold feet and hands, but then so does CRPS! No one has ever treated my a d. It does leave me wondering at times.
I have resolved my yellow stool by taking a product called Energy Greens in a smoothie. You might give it a try. Just google it. I think the founder's name is Yuri Elkaim - not sure of the spelling of that last name. I use it every morning.
Keep seeking. You WILL find!

And don't forget probiotics!