I'm having multiple odd episodes that are keeping me undiagnosed. Help

Posted by johnwes5819 @johnwes5819, Mar 10, 2019

Hello,

I posted before in another group in its entirety but I think it’s too broad and there could be a multitude of theories and explanations. So I’m going to break my story down into my most bothersome episodic symptoms. To start, everything on the surface looks like panic disorder or anxiety. However, my different episodes seem to be helping each other keep me feeling frantic more days than not so on the surface it looks like anxiety. I’ve had lots of lab work testing including thyroid, Lyme, sleep apnea home test, brain MRI, spine MRI, abdominal ct scan, and way too many doctor visits with no answer, but they do agree on one thing. The symptoms are weird and seem to be more than just anxiety. There are little bits here and there but unfortunately not enough to go on.

Keep in mind these episodes aren’t all going on at the same time but they’re not giving me any recovery time and feel like i’m sinking further down the hole. It’s like fighting 5 bullies one at a time and losing. Just as you feel like you can get up another bully hops in.

Episode 1: After waking up with head pressure, teeth chattering, shivering, lower back pain, and sweating. Oral temperature is ALWAYS between 93.8 F and 94.8 during these episodes. Also, every day is constant cold hands and feet that never happened until all of these episodes started.

Episode 2: Brain fog, head pressure that feels like you’re being pushed down when standing (like when you’ve had one too many drinks), usually later in the day when that feeling wears off, I’ll have adrenaline body tingling, uncontrollable thoughts of self-harm and head chatter. (Not dwelling on things or worried about things, it’s just the mind doing what it does and I have no control.) Also, my eye will twitch like crazy before and during these.

Episode 3: When standing for a long period of time, like cooking or washing dishes, and sweating starts to happen my heart rate increases and get extremely dizzy and feels like I’m being physically pulled down.

Episode 4: An overly excited feeling, almost like needing to yell or run to get adrenaline out, Heart rate is low.

Episode 5. Sharp colon pain, yellow stools (frequently), stools that look sickly or unhealthy, and constipation more often than not. I had a colonoscopy recently and I was told everything looks good.

I’ve tried SSRI’s and benzodiazepines and they don’t stop these episodes from occurring. I’ve tried strict diets and those don’t help.

If you have any thought about even one of these episodes please don’t be shy to comment. Thank you so much for taking the time to read.

@sirgalahad

should check stop taking the medicine for a couple of days 2-3 dyas and see if its the meds or an underlying causal agent like asthma or pneumonia chest infection .get diaphragm check .when you cough what colour sputum are you cringing up .if white frothy to clear then its not an infection if brown yellow and or bloody then it is an infection and go back and get a sputum culture of that infection.
I would chat to your doctor about the cough before taking yourself off the meds and also check and look up mims and see what the contraindications of the medicine you are on is

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also consider lung function test or a spirometry tests and or Mantoux test to rule out stuff

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@sirgalahad

also consider lung function test or a spirometry tests and or Mantoux test to rule out stuff

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@sirgalahad Thanks for all of your input. If anyone has any other input in regards to my original post, I'm open ears, thanks a lot everyone!

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@johnwes5819

@sirgalahad Thanks for all of your input. If anyone has any other input in regards to my original post, I'm open ears, thanks a lot everyone!

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your welcome hopefully you will get to the root cause of your health issues

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Do you have a doctor who is prepared to test you for EVERYTHING? Brain scans, hormone issues such as thyroid and adrenal. Could it be Addison's disease? https://www.mayoclinic.org/diseases-conditions/addisons-disease/symptoms-causes/syc-20350293 Leave no stone unturned until every organ in your body has been examined. I presume you live in the US so I hope you have insurance. Here in Canada, it would all be free. Let us know how this mysterious condition is diagnosed because there IS something not right. And it could be a simple fix. Take care!

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@afrobin

Do you have a doctor who is prepared to test you for EVERYTHING? Brain scans, hormone issues such as thyroid and adrenal. Could it be Addison's disease? https://www.mayoclinic.org/diseases-conditions/addisons-disease/symptoms-causes/syc-20350293 Leave no stone unturned until every organ in your body has been examined. I presume you live in the US so I hope you have insurance. Here in Canada, it would all be free. Let us know how this mysterious condition is diagnosed because there IS something not right. And it could be a simple fix. Take care!

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For some reason that made me laugh. I think that’s the main problem in the us. We pay a lot to get shoved in stupid shit. Someone is making out but usually not the patient.

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@dorisena

Thank you for the information. What I am really interested in is what increases the risk of cancer and whether or not diabetes makes the risk higher, because my husband did not take care of his diabetes and did not stay on the prescribed regimen and his cancer metasticized into a tumor on the spine which killed him in short order. I have been taught that there is a relationship between fat in the breasts and cancer, which I had and survived, so I am more careful about fat in my diet. I prefer olive oil and no longer raise hogs on the farm, so the lard is gone out of my life. I did not believe that sugar speeds cancer cell growth.
I thought it went to the cancer cells first, and neglected the good cells. Of course, I will continue searching for the latest information. I certainly am happy avoiding sugar and sweets, however, it is difficult to convince my friends of my content. I want to feel as though I am doing everything I can to avoid recurring cancer if possible, or have it return at a very old age and die quickly. I prefer not to die being run over by a truck. My husband ran over my leg with a disk and I survived that without losing my leg, so I tend to be careful about many risks. I am glad to hear that obesity is associated with increased risk of cancer, because I believe that dealing with his overeating disorder could have helped prevent his early death. His awful death was a big lesson for me.
What I read was that sugar 'feeds cancer cells" and that was a turn off for me. Dorisena

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Hi, @dorisena – your question about diabetes increasing the risk of cancer would be a perfect topic for starting a new discussion in the Connect Diabetes & Endocrine System group, https://connect.mayoclinic.org/group/diabetes-and-endocrine-problems/

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Yes, I agree, because first of all, I have learned that the body seldom has just one problem to deal with since every part of the body works together with every other part, or it is supposed to happen this way. We are also learning that diabetes affects the eyes, the ears, the mind, and God knows what else during the course of our lives, so we need to concentrate on prevention of future illnesses and decline if we are to live a long life. As I watched my husband live in denial of his bad health and refuse to cooperate in better care, I saw the destruction slowly take place. When he started having bleeding episodes which put him in the hospital four times without good progress, I knew in February that he would not be alive for Christmas, even though the doctors were telling me nothing because he wouldn't sign a paper allowing me to be informed. There is a problem with the HIPPA law in this regard. There is so much we can do for ourselves to delay or prevent these horrible illnesses to our body, if we join together and believe we can do better. Cookies no longer make me happy.
Good health does! And I get much satisfaction in joining with others for support and education. We are a team. Dorisena

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I personally believe that an excellent diet with lots of fresh vegetables and fruit helps the body with the "feel good" feeling, and I believe that you should stay on a healthy diet for you regardless. There may minor adjustments for your body's personal needs, such as solving constipation or paying attention to dairy sensitivities, or allergies. I believe that after you have tried meds, without success, you should avoid most of them, except ones that your doctor thinks will prevent you from dying soon. I believe that you should try to spend much time with someone who cares about you and loves you, which was missing in my life for so many years. I believe that you should trust that some of these problems can be made better eventually. It is a process. It won't happen tomorrow.
But life and health can improve, even in old age. And don't forget that unhealthy stress should be made to disappear from our lives. But please, don't shoot the offender! Stay away. Dorisena

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Have your ever studied and understood the fight or flight response that the body can make in times of sudden stress? It also can happen at the dentist office if the dentist uses the wrong numbing medicines. It is what happens when a person at the scene of an accident lifts a car off a victim and saves a life. The body just responds to an emergency. When I have these sudden hot spells, it feels like an emergency and I have to step outside to cool down and calm down. I am not worried about it anymore because I don't pass out or anything. I march in place for cold feet and I wear socks to bed. I have had the problem for years, and blame it on a low metabolism and not enough exercise. The body needs more as you age, and that is a crazy thought. I'd rather be reading a book and sipping wine, but then I wouldn't stay awake to read. I find that colon problems come from not the right diet for me and stress. I have won that battle but I avoid a lot of people. I tried some of those pills the doctor prescribed and dropped every one of them as they made me feel like I need to go to the emergency room. I stopped the Xanax on my own three weeks before my husband's death because after a good cry, I realized the end was coming and I would be free from most of my stress. The funeral and luncheon afterward went fine. Sometimes you just have to admit where the problem is coming from and get opportunity to let go and move on. Sounds callous but it saved my life. I am not ashamed to admit it. Dorisena

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Years ago when I admitted my happy mood at being a widow, my new doctor looked at me and said "sometimes ya just gotta do what ya gotta do!" It made my day and I think of it often these many years. Dorisena

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I don't think there is any direct association between diabetes and cancer. It could be that people on a high carb diet who are obese…(and diabetic) are more inclined to get cancer. But not being diabetic, I don't think.

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My husband was diagnosed with diabetes and prostate cancer at the same time. He hadn't been to the doctor in years. He laughed. He had some treatment for the prostate but no surgery. He quit the program. The cancer came back as a tumor in his spine. He told everyone he injured his back and was having therapy. He was paralyzed before dying. I have survived two surgeries for cancer, breast and thyroid. I have type 2 diabetes. You can imagine that I am interested in any research and development because we know that diabetes does damage to the eyes, hearing, brain, liver, and God know what else.
A few doctors call Alzheimer's disease Diabetes III because of the relationship between dementia from diabetes damage and the actual Alzheimer/s. Also loss of taste and smell is associated with dementia of some kind and even hoarding is considered by some a precursor of Alzheimer/s. We need to study.
Then there is the issue of antioxidents which are known to help lower the risk. . We are talking carbs, of course. More study is need. Dorisena

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