Want to talk with others. Have you found relief from CRPS?

Posted by mam14 @mam14, Feb 4, 2019

I was diagnosed with complex regional pain syndrome a year ago. It has since spread and I am experiencing a decline in my health at an alarming rate. I am hoping to talk to others that may have found relief.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

rsnowflake | @rsnowflake | Feb 27, 2019

In reply to @mam14 "That's a lot of medicine." + (show)

Trust me I know.....but I have a wonderful daughter who depends on me, but she's great with all the medical stuff. My husband's amazing I've made it through and I will continue to do so...nothing will make me give up trying something new.

rsnowflake | @rsnowflake | Feb 28, 2019

In reply to @mam14 "I am going to Birmingham this weekend for an appointment with my neurologist Monday. I hope..." + (show)

Best luck on Monday. I hope you have a wonderful doctor to help and support you. Don't give up, just keep pushing on. It's horrible I know, but know your not alone!! And many others I've talked with feel the same way. Sometimes crazy, cause people don't believe you or sometimes u r even in 2 much pain to complain, I do that a lot! Keep a smile on your face. Renee

cm49ers | @cm49ers | Feb 28, 2019

CBD Daily. It’s a cream that helps me.

cm49ers | @cm49ers | Feb 28, 2019

In reply to @rsnowflake "Just wrote u but I know the feeling. I have chronic hives, I am bipolar, and..." + (show)

I too have hives.

rsnowflake | @rsnowflake | Feb 28, 2019

In reply to @cm49ers "I too have hives." + (show)

Do you know what they r from?

barbbie | @barbbie | Mar 3, 2019

In reply to @mam14 "Thank you Renee. I am Mary Ann. I am about to walk into an optometrists office...." + (show)

I also have trouble with my vision. I have had CRPS for just about 20 years. I have visual disturbances - see black and white lines in somewhat of a wavy pattern. Reading is also difficult but I also have corneal dystrophy and cataracts. The blurriness is most disturbing to me. I am taking CDB capsules called Green Mountain, made in Vermont. I stopped taking them for a while but have recently started up again. I was taking them at night but it seemed to hinder my sleep so now I am taking them twice during the day. I am looking forward to improvement.

barbbie | @barbbie | Mar 3, 2019

In reply to @mam14 "I am going to Birmingham this weekend for an appointment with my neurologist Monday. I hope..." + (show)

I see a marvelous pain management doctor. He's been taking great care of me. This week I am having radio frequency ablation on my occipital nerve.The last one gave me great relief for almost six months. Once workers' comp approves I will have rfas on my low back. It's been two years since I had my last ones. That''s great relief. I had a second spinal cord stimulator implanted this past summer. The first was done in 2012 and the newer model is far more useful for me. I have CRPS in both feet, left knee, and left butt.

mam14 | @mam14 | Mar 5, 2019

In reply to @barbbie "I see a marvelous pain management doctor. He's been taking great care of me. This week..." + (show)

I'm sorry to hear this. I can't imagine 20 years of this. I'm glad that you have found help. Where do you live?

ardsu | @ardsu | Mar 6, 2019

Could CRPS be related to Stiff Man(Person) Syndrome? Never heard of either until recently and my doctor said both could be possibilities re: my pain.

lizzyisme | @lizzyisme | Mar 6, 2019

Sorry to hear about your health issues with CRPS, I too was diagnosed about 4 month ago. I had a TKR and developed CRPS in the knee area. I have had granular shots in the knee and use a cream and patch when nerves are active. This has helped very much. The concern for me is that I am starting to feel nerve pain on the opposite knee and breast. Did yours start in one place and spread?