Weary of Caregiving

Posted by susan2018 @susan2018, Jan 24, 2019

I feel like I’m being nibbled to death by ducks. I’m weary of caregiving. Whenever I think things are getting better something else happens. I worry that I am the person who is holding everything together. I’m frustrated that I’m looked at as being capable and strong enough to help everyone. I’m scared I’m not going to stand up to the stress. I know that others reading this know exactly what I mean. My husband had a heart attack and open heart surgery this fall and was in the hospital In another town for a prolonged period with complications. At the same time my brother was seemingly having worrisome heart symptoms. My son’s father in law had a stroke. The mother of my son’s significant other was hospitalized and died. All at the same time. All of us scattered across the country. We had to cancel a vacation trip. Another family member was discovered to have serious kidney problems.Then it was Christmas with all its attendant responsibilities. Over this time we had out of state houseguests off and on for a total of about three weeks, some of the time to help me with tasks I needed help with while my husband was recovering. Then my daughter in law had issues at work and has been looking to me for guidance and support. Then my elderly mother who lives “independently”, only because I do many things for her, got sick with a terrible respiratory virus and ended up in ER. I had been scheduled for an elective one day surgery procedure in the city away from our town and had to cancel it. Then before my mother completely recovered she got sick with Norovirus and ended up hospitalized. I had to sanitize her apartment. She is back home but has required additional support. Then my husband came down with probably the same Norovirus that has been rampant in our community. I confined him to a bedroom hoping I can avoid catching this and knowing I’m going to need to sanitize this too. Yesterday Mother fell asleep in her chair with a pot on the stove setting off a smoke detector, calling me in distress. Today my husband in his weakened state fell in the bathroom. I had rescheduled my surgery for next week, but am concerned with my husband recovering, as well as traveling while the winter weather forecast is so horrible, hoping I can stay healthy and that my mother manages ok the days I’m out of town. We have a Caregiver Support group in our town. I guess I’m a candidate for membership even though what I’d really like is to just go away someplace by myself, away from phones, e mail, and texts knowing someone else is taking care of everyone and everything.

Interested in more discussions like this? Go to the Caregivers Support Group.

@becsbuddy

Hi, again @tasher3433 Why not join our Virtual walking group! This link will take you to our site. We hope to start on Monday. https://connect.mayoclinic.org/discussion/lets-go-walking-join-me-for-a-virtual-walking-support-group/. You’ll be looking for exercise while you’re in the hospital and this is a great way to get it! Becky

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What a great idea! Thanks for the info, I’ll check this out.

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@tasher3433

I am a newbie caregiver. My husband (75)will be the kidney recipient, my daughter (36) the kidney donor in April this year, at Mayo Scottsdale. Thank you all for sharing your lives..it can’t be easy, but please know that by doing so, you give incredible support to others. I am a nurturer, and feel as though it is up to me to make things right, and blame myself when things go sideways, regardless if they are within my control! I have gained so much insight through you all: keep a journal, ask questions, walk, walk away to take a breath, breathe, pack things to make my people comfortable post surgery, do not try to control the impossible, try to be a better person, as you all are. I know I will continue to lurk here!

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Hi @tasher3433 Have you looked into the discussion on this site? There is a whole group for Transplants. I’ll ask @rosemarya to get into the conversation. https://connect.mayoclinic.org/discussion/living-donor-kidney-surgery-next-tuesday/

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