1. < Ear, Nose & Throat (ENT)

Anyone have Laryngeal Sensory Neuropathy?

Posted by tkubby @tkubby, Jan 23, 2019

I am looking to talk with anyone that has been told they have larynx sensory neuropathy. In other words, over active nerves in the larynx.

Interested in more discussions like this? Go to the Ear, Nose & Throat (ENT) Support Group.

pfbacon | @pfbacon | Sep 14, 2019

I developed a cough when I was in college - it got worse quickly. I noticed that it was worst when I was studying Algebra - no kidding! In Algebra class, I started coughing convulsively until I got muscle cramps in my abdomen - I had to step out so the other students could hear the professor. My algebra book was brand new ... I figured out that micro-particles from the ink were floating into the air as I read, it was printed in soy ink, I'm allergic to soy beans. I started wiping each page with a slightly humid cloth before I read it to keep the particles down. I coughed less, I muddled through that class and escaped with a B. Peggy

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jaygats | @jaygats | Oct 1, 2019
In reply to @arlinebringhurst "I am told that because the nerve has become hypersensitive , reflux or allergies that normally..." + (show)
@arlinebringhurst

I am told that because the nerve has become hypersensitive , reflux or allergies that normally wouldn’t affect you causes the irritation that triggers the cough. I did the barium swallow and know that I have a very mild case of reflux as well as allergies. Acid seems to be a trigger as well. When both the reflux and allergies are managed well, it does reduce my cough but not eliminate it. I ALWAYS cough with my first bite of food. It is the exact location of a sore throat I had at the onset of mono. It is on my left side of my throat and the food causes an immediate tickle. It is definitely life altering. I even fear going to the dentist now for fear I have a coughing jag.

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Those are my exact conditions, I was on gabapentin for a bit had improvement but had side effects ; so went on Lyrica last 2 months. Its helped make it more manageable but first bit of food triggers it for 1-2 hours. Lyrica causing me to gain +15 pounds in 8 weeks so going to get off and try something else I hope. I have been suffering since I had bronchitis in Feb 2019. Cough was chronic before the drugs but just maintainable now but no cure and side effects from drugs not helping

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2 replies
Mentor
John, Volunteer Mentor | @johnbishop | Oct 1, 2019
In reply to @jaygats "Those are my exact conditions, I was on gabapentin for a bit had improvement but had..." + (show)
@jaygats

Those are my exact conditions, I was on gabapentin for a bit had improvement but had side effects ; so went on Lyrica last 2 months. Its helped make it more manageable but first bit of food triggers it for 1-2 hours. Lyrica causing me to gain +15 pounds in 8 weeks so going to get off and try something else I hope. I have been suffering since I had bronchitis in Feb 2019. Cough was chronic before the drugs but just maintainable now but no cure and side effects from drugs not helping

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Hi @jaygats, Welcome to Connect. I ran across this blog that seems like it might be helpful.

Laryngeal Sensory Neuropathy How to Diagnose & Treat and its Relation to LPR
-- https://www.wipeoutreflux.com/laryngeal-sensory-neuropathy/

Did your doctor diagnose you with Laryngeal Sensory Neuropathy?

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arlinebringhurst | @arlinebringhurst | Oct 9, 2019
In reply to @jaygats "Those are my exact conditions, I was on gabapentin for a bit had improvement but had..." + (show)
@jaygats

Those are my exact conditions, I was on gabapentin for a bit had improvement but had side effects ; so went on Lyrica last 2 months. Its helped make it more manageable but first bit of food triggers it for 1-2 hours. Lyrica causing me to gain +15 pounds in 8 weeks so going to get off and try something else I hope. I have been suffering since I had bronchitis in Feb 2019. Cough was chronic before the drugs but just maintainable now but no cure and side effects from drugs not helping

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I tried putting hot sauce on my first bite of food, and it does coat the area and gives it a numbing effect. I read in another blog about capsaicin spray. Not sure it wouldn’t aggravate reflux symptoms.

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avmcbellar | @avmcbellar | Oct 9, 2019
In reply to @arlinebringhurst "I tried putting hot sauce on my first bite of food, and it does coat the..." + (show)
@arlinebringhurst

I tried putting hot sauce on my first bite of food, and it does coat the area and gives it a numbing effect. I read in another blog about capsaicin spray. Not sure it wouldn’t aggravate reflux symptoms.

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I tried the pepper capsule supplements at each meal. Most of the time the “heartburn” sensation got eliminated. I eat spicy foods too which I think help.

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sj1950 | @sj1950 | Oct 24, 2019

I have had a chronic cough for 30 years. I have been told I have LSN. I have tried EVERYTHING including Botox injections, amitriptyline, two complete workups at National Jewish Hospital in Denver, CO. I have allergies that are managed with over the counter antihistamine. I am on a small dose of omeprazole. I have tried speech therapy. Nothing so far has worked. I have read through the post and was curious about the voice therapy using a Kazoo? Any other suggestions would be helpful. Thank you

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jnttaz | @jnttaz | Mar 15, 2020
In reply to @2011panc "@tkubby I have not been told that I have larynx sensory neuropathy. I have noticed changes..." + (show)
@2011panc

@tkubby I have not been told that I have larynx sensory neuropathy. I have noticed changes in my voice and throat that I associate with reflux and many intubations. My throat is sensitive (mildly achy) most of the time and my voice is scratchy. I almost always have a buildup of phlegm in my throat. I do not talk as much as I once did and no longer attempt to sing. I used to talk quite a lot and sang in choirs since my youth. I can no longer do phone work because after 1/2 day I lose my voice. Are these symptoms similar to yours?

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Your symptoms exactly mirror mine. Ohio State doctor started me on Tramadol and Lyrica which gave me 80% relief but I still cannot sing without coughing and when become stressed the coughing increases......not fun. I have been diagnosed with Laryngeal Sensory Neuropathy.

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joanna48 | @joanna48 | Apr 17, 2021

Pleased to discover this site and Connect

I have larynx sensory neuropathy and here I have found others who suffer the same condition. The greatest frustrations I have experienced with the Australian medical system to date are a. that doctors don't listen to me and b. give me so little information. I also have Mac lung disease and the blogs/groups for this have been of enormous benefit to me over the past 4+ years.

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2 replies
Mentor
Ginger, Volunteer Mentor | @gingerw | Apr 17, 2021
In reply to @joanna48 "Pleased to discover this site and Connect I have larynx sensory neuropathy and here I have..." + (show)
@joanna48

Pleased to discover this site and Connect

I have larynx sensory neuropathy and here I have found others who suffer the same condition. The greatest frustrations I have experienced with the Australian medical system to date are a. that doctors don't listen to me and b. give me so little information. I also have Mac lung disease and the blogs/groups for this have been of enormous benefit to me over the past 4+ years.

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@joanna48 Welcome to Mayo Clinic Connect! I found that exactly what you pointed out, is a major reason this site is comfortable. While we each have our own journey with health issues and concerns, others are here to help us along! There is no "one-size-fits-all" and listening to others can give us hope. The website for Mayo Clinic itself offers so much information. https://www.mayoclinic.org

Here is the discussion group for lung health https://connect.mayoclinic.org/group/lung-conditions/
One for neuropathy https://connect.mayoclinic.org/group/neuropathy/
And one for ear/nose/throat https://connect.mayoclinic.org/group/ear-nose-throat-conditions/

Please feel free to wander through the different conversations and join in!
Ginger

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Erika | @erikas | Apr 17, 2021
In reply to @joanna48 "Pleased to discover this site and Connect I have larynx sensory neuropathy and here I have..." + (show)
@joanna48

Pleased to discover this site and Connect

I have larynx sensory neuropathy and here I have found others who suffer the same condition. The greatest frustrations I have experienced with the Australian medical system to date are a. that doctors don't listen to me and b. give me so little information. I also have Mac lung disease and the blogs/groups for this have been of enormous benefit to me over the past 4+ years.

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@joanna48 Welcome to Mayo Clinic Connect, a place to give and get support.

We are happy you found Connect too.

You'll notice I moved your question to an existing discussion on larynx sensory neuropathy. I did this so you could connect with members like @avmcbellar @arlinebringhurst @tkubby @kimduncan1211 in a central location.

You may wish to scroll through the previous posts in search of information and connection.

May I ask how you are managing larynx sensory neuropathy and MAC lung disease?

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