Dialated Cardiomyopathy with decreased EF rate

Posted by camaroyo @camaroyo, Jan 20, 2019

I had mitrol valve replacement in 2014. I was recently diagnosed with dialated cardiomyopathy. I’m getting a muga scan end of Jan 2019 to get a better read on my EF rate cause it’s right on the cusp of heart failure. I’m trying to find more info on this diagnosis. Supposedly, life span has increased from 2 to 5 years to possibly 7 or more years. I have a pacemaker but expect to get a defibrillator put in to help avoid possible sudden death. The muga scan will determine my need for this. Any one have any current information on this diagnosis.

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

Colleen Young, Connect Director | @colleenyoung | Jan 20, 2019

Hi @camaroyo, I moved your message to the Heart & Blood Health group to connect you with others who have similar issues with mitral valve replacement, ejection fraction and dialated cardiomyopathy, like @jillybeans22 @tiredofbeingsick @predictable @hopeful33250 and @murryone.

Did you see this video with Dr Timimi about heart failure with preserved ejection fraction? https://connect.mayoclinic.org/discussion/confused-about-stiff-heart-diastolic-heart-failure-or-hfpef/

Camaroyo, what is your EF rate?

camaroyo | @camaroyo | Jan 20, 2019

In reply to @colleenyoung "Hi @camaroyo, I moved your message to the Heart & Blood Health group to connect you..." + (show)

Appears to be 35%. Muga scan should help define that

Teresa, Volunteer Mentor | @hopeful33250 | Jan 20, 2019

In reply to @camaroyo "Appears to be 35%. Muga scan should help define that" + (show)

With an EF rate of 35% I can understand your concern, @camaroyo. For those on Connect who might not be familiar with a MUGA Scan, here is some information about this procedure, https://www.mayoclinic.org/departments-centers/overview/ovc-20442550.

When will you be having the MUGA scan?

suscros68 | @suscros68 | Jan 20, 2019

In reply to @hopeful33250 "With an EF rate of 35% I can understand your concern, @camaroyo. For those on Connect..." + (show)

Great. I was wondering.bive never heard of that. I have a defibrillator, heart failure. I've had nuclear testing and r heart Cath. Good info

lioness | @lioness | Jan 20, 2019

@suscros68 How was your heart catheterization? For me that's where they found my blockages in my heart arteries that led to my by pass

suscros68 | @suscros68 | Jan 20, 2019

In reply to @lioness "@suscros68 How was your heart catheterization? For me that's where they found my blockages in my..." + (show)

I've had several of them now.vthey check for how my heart failure is doing . The procedure is always scary for me. They don't put me to sleep just stick a giant needle in neck and guide wire to heart. Doctors make it sound like it's no big deal. Bet they've never had one.

lioness | @lioness | Jan 20, 2019

In reply to @suscros68 "I've had several of them now.vthey check for how my heart failure is doing . The..." + (show)

@suscros68 Mine was in my groin they threaded it up into my heart since I'm retired nurse I watched it on the monitor ,did you?

suscros68 | @suscros68 | Jan 20, 2019

No because it was in neck and had my head draped .

lioness | @lioness | Jan 20, 2019

In reply to @suscros68 "No because it was in neck and had my head draped ." + (show)

@suscros68 Oh sorry it was so interesting lol

camaroyo | @camaroyo | Jan 20, 2019

In reply to @hopeful33250 "With an EF rate of 35% I can understand your concern, @camaroyo. For those on Connect..." + (show)

30 Jan is my Muga scan. Anxious to see what it shows, but I am expecting a defibrillator to b needed w/ my pacemaker. Praying that works if needed because the next step is very scary.

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