Dialated Cardiomyopathy with decreased EF rate

Posted by camaroyo @camaroyo, Sun, Jan 20 7:07am

I had mitrol valve replacement in 2014. I was recently diagnosed with dialated cardiomyopathy. I’m getting a muga scan end of Jan 2019 to get a better read on my EF rate cause it’s right on the cusp of heart failure. I’m trying to find more info on this diagnosis. Supposedly, life span has increased from 2 to 5 years to possibly 7 or more years. I have a pacemaker but expect to get a defibrillator put in to help avoid possible sudden death. The muga scan will determine my need for this. Any one have any current information on this diagnosis.

@hopeful33250

Hello @camaroyo

You posted about a MUGA scan at the end of January. I hope that went well for you. If you are comfortable doing so, please provide an update as to how you are doing and the scan results. Did they provide your doctor with any new information?

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@hopeful33250 hi thanks so much for asking. I got the scan 30 Jan and actually go for the results later this morning. I’ve been walking daily and hoping that may be helping some. I feel fine so far and did not receive a call from dr. during my wait for results to today so that’s a good sign. I plan to post later…hopefully with positive news. Thanks again!!

@camaroyo

@hopeful33250 hi thanks so much for asking. I got the scan 30 Jan and actually go for the results later this morning. I’ve been walking daily and hoping that may be helping some. I feel fine so far and did not receive a call from dr. during my wait for results to today so that’s a good sign. I plan to post later…hopefully with positive news. Thanks again!!

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@hopeful33250 I got my results from muga scan and got very positive news!! My EF is at 47% so nothing to be done at this time. We are very relieved. I’m continuing walking everyday…I believe it helped me. I’ve been chair bound for a bit due to foot surgery, but finally able to walk some. Not stopping!!! Very happy!!!!

@camaroyo

@hopeful33250 I got my results from muga scan and got very positive news!! My EF is at 47% so nothing to be done at this time. We are very relieved. I’m continuing walking everyday…I believe it helped me. I’ve been chair bound for a bit due to foot surgery, but finally able to walk some. Not stopping!!! Very happy!!!!

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@camaroyo

Thanks for your update. That is a wonderful increase in your EF, congratulations!!! It must be a relief to know that nothing else needs to be done now.
Is your foot healing well?

@hopeful33250

@camaroyo

Thanks for your update. That is a wonderful increase in your EF, congratulations!!! It must be a relief to know that nothing else needs to be done now.
Is your foot healing well?

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@hopeful33250 Yes, it is great news for us. I’m always thankful for everyday, but this type of scare makes you even more grateful! (If thats possible!) lol. My foot healed very well overall, but needs to be “tweaked” again to make it right. Means another 6 weeks or so in a boot and then re-healing again. Not sure now when I’ll do that. It hurts to walk… but, I wear Tommie Copper compressions on feet and Oofa shoes so my walking is pretty pain free… these two items made a huge difference…when there’s a will there’s a way!!!

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