Copd, pulmonary fibrosis, mac bacterial infection and honeycomb lung

Posted by tmmmrlts @tmmmrlts, Jan 7, 2019

My husband has been diagnosed with all four of these and I just want to understand more about what is to be expected. And what I can do to help.

Interested in more discussions like this? Go to the Lung Health Support Group.

@merpreb

@tmmmrlts- Oh no, has he taken a turn for the worst? How can I help you?

Jump to this post

@merpreb thank you but unless my husband changes his mind there is nothing anyone can do

REPLY
@tmmmrlts

He has had copd since 2011, and dont know how long he has had pulmonary fibrosis, or the honey comb lung and it's been almost a year since he was diagnosed with mac bacterial infection.
I know my husband and he is not one to just sit around and do nothing. But he has been running fever in the afternoon and throwing up every day. No matter what he eats. He has lost 20 lbs in about a month. He lays down more than he ever has. I brung this up to his dr in dec and he said I will let the infectious disease dr handle it. We have used this doctor for 30+years and I dont understand him anymore.

Jump to this post

@tmmmrlts- Have you told the infectious disease doctor? I don't understand that dr. either. Shame on him for blowing you off like that.

REPLY

@@merpreb haven't got hold of him yet he won't be back in office from holiday until monday

REPLY
@tmmmrlts

@merpreb thank you but unless my husband changes his mind there is nothing anyone can do

Jump to this post

@tmmmrlts- I've tried to find on your conversations here if you mentioned why he didn't want to do anything different.

REPLY
@tmmmrlts

@@merpreb haven't got hold of him yet he won't be back in office from holiday until monday

Jump to this post

I have been trying to get my husband to go to er or urgent care and he hasn't yet. I'm just trying to get through this. But it is hard with him. He is hurting in his chest on his left side and he gets out of breath to easy. He goes outside and he gets sick from the cold I don't know what makes that happen. He also throws up most of the time when he eats. I'm at a loss for what to do.

REPLY
@tmmmrlts

I have been trying to get my husband to go to er or urgent care and he hasn't yet. I'm just trying to get through this. But it is hard with him. He is hurting in his chest on his left side and he gets out of breath to easy. He goes outside and he gets sick from the cold I don't know what makes that happen. He also throws up most of the time when he eats. I'm at a loss for what to do.

Jump to this post

@tmmmrlts- When do you next see your infectious disease guy? You know that you can call the ER or urgent care and tell them his symptoms saying that he is getting worse and needs an ambulance...

REPLY
@merpreb

@tmmmrlts- I've tried to find on your conversations here if you mentioned why he didn't want to do anything different.

Jump to this post

He is tired of hurting and being sick all the time. He has back and neck problems and a pinched nerve in his back and the neurologist and back dr said he wasn't a good candidate for back surgery this was back in 2011 and now they won't because of his lungs. I think it also has to do with losing our daughter, back in 08 he really hasn't been the same. He is scared to eat sometimes because he throws it up. He has told me the only reason he is living is for his 4 children and 7 grandchildren and not for me.

REPLY
@merpreb

@tmmmrlts- When do you next see your infectious disease guy? You know that you can call the ER or urgent care and tell them his symptoms saying that he is getting worse and needs an ambulance...

Jump to this post

@merpreb as long as he refuses they cant take him and he would refuse and be angry with me

REPLY
@tmmmrlts

He is tired of hurting and being sick all the time. He has back and neck problems and a pinched nerve in his back and the neurologist and back dr said he wasn't a good candidate for back surgery this was back in 2011 and now they won't because of his lungs. I think it also has to do with losing our daughter, back in 08 he really hasn't been the same. He is scared to eat sometimes because he throws it up. He has told me the only reason he is living is for his 4 children and 7 grandchildren and not for me.

Jump to this post

@tmmmrlts- Oh my. I'm tongue tied. Can you go to counseling?

REPLY
@tmmmrlts

@merpreb as long as he refuses they cant take him and he would refuse and be angry with me

Jump to this post

@merpreb I have to call Monday and talk to his infectious disease dr

REPLY
Please sign in or register to post a reply.