1. < Transplants

Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

racing212 | @racing212 | Sep 28, 2019
In reply to @rosemarya "@racing212, It is good to hear that you are being monitored for this while it is..." + (show)
@rosemarya

@racing212, It is good to hear that you are being monitored for this while it is a 'could be' tumor. My Mayo experience is that they will keep a close watch on it for you. I know that this is not a comfortable position to be in. I was believed to have cancer tumors in my bile ducts and my local transplant hospital was unable to get tissue samples so they had to inactivate me from the transplant list until they could get me to the Mayo team in Rochester for the tests. I did not have cancer and was able to be activated again. Rodney, I will be thinking of you during this time.
When you return in December, do you know what kind of tests they will do?
With an increased score, have your symptoms changed any?

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I go back for another ct scan blood work and an ultra sound....

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JK | @contentandwell | Sep 28, 2019
In reply to @racing212 "Im on the list for liver transplant...went to Rochester last week for more tests and found..." + (show)
@racing212

Im on the list for liver transplant...went to Rochester last week for more tests and found out there's 3 spots that could turn into a tumor. My meld score also went up from 3 months ago. I go back in December for more tests..... Chuck

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@racing212 When you go back for more tests will they determine if the “spots” are benign or malignant? I had malignant lesions and they did an ablation to get rid of them. That was more than a year before my transplant which occurred in September 2016.
JK

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1 reply
livertrex | @livertrex | Sep 29, 2019
In reply to @contentandwell "@racing212 When you go back for more tests will they determine if the “spots” are benign..." + (show)
@contentandwell

@racing212 When you go back for more tests will they determine if the “spots” are benign or malignant? I had malignant lesions and they did an ablation to get rid of them. That was more than a year before my transplant which occurred in September 2016.
JK

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I just had a liver transplant in August at the Mayo Clinic in Arizona everything went well it's taking a little longer to get back on my feet and I thought ,I guess I had great expectations I'll have the great expectations for you too so congratulations on your liver transplant and the doctor had me go ahead and get a dermatologist in my local community look at Maya dark spots all over my body and give me a plan to move forward with him to make sure that I wore sunscreen. Thank you

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1 reply
gaylea1 | @gaylea1 | Sep 29, 2019
In reply to @livertrex "I just had a liver transplant in August at the Mayo Clinic in Arizona everything went..." + (show)
@livertrex

I just had a liver transplant in August at the Mayo Clinic in Arizona everything went well it's taking a little longer to get back on my feet and I thought ,I guess I had great expectations I'll have the great expectations for you too so congratulations on your liver transplant and the doctor had me go ahead and get a dermatologist in my local community look at Maya dark spots all over my body and give me a plan to move forward with him to make sure that I wore sunscreen. Thank you

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@livertrex I am just seeing a dermatologist now. Some of my brown sun spots have turned cancerous and a biopsy has been taken on the largest one. I am waiting for results and am sure they will be removed in office. This has happened post transplant. I'm not sure if this relates to your conversation or not but thought I'd share anyway. I am now 9 months post transplant.

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rodney9999 | @rodney9999 | Sep 29, 2019

I am 6 months post transplant and am scheduled to see a dermatologist next week. I use sunscreen regularly but not sure what to expect.

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1 reply
Mentor
Ginger, Volunteer Mentor | @gingerw | Sep 29, 2019
In reply to @rodney9999 "I am 6 months post transplant and am scheduled to see a dermatologist next week. I..." + (show)
@rodney9999

I am 6 months post transplant and am scheduled to see a dermatologist next week. I use sunscreen regularly but not sure what to expect.

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@rodney9999 Because organ recipients are on immunosupressants, there seems to be a higher incident of them developing skin cancer. A visit to the dermatologist will include a visual check by that person, to check for any signs of skin cancer. They will advise you to have a yearly or even semi-annual check. Congratulations on your successful transplant! How are you feeling these days?
Ginger

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2 replies
rodney9999 | @rodney9999 | Sep 29, 2019
In reply to @gingerw "@rodney9999 Because organ recipients are on immunosupressants, there seems to be a higher incident of them..." + (show)
@gingerw

@rodney9999 Because organ recipients are on immunosupressants, there seems to be a higher incident of them developing skin cancer. A visit to the dermatologist will include a visual check by that person, to check for any signs of skin cancer. They will advise you to have a yearly or even semi-annual check. Congratulations on your successful transplant! How are you feeling these days?
Ginger

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I have been doing well since transplant. Thanks for asking and thanks for the information.

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JK | @contentandwell | Sep 29, 2019
In reply to @gingerw "@rodney9999 Because organ recipients are on immunosupressants, there seems to be a higher incident of them..." + (show)
@gingerw

@rodney9999 Because organ recipients are on immunosupressants, there seems to be a higher incident of them developing skin cancer. A visit to the dermatologist will include a visual check by that person, to check for any signs of skin cancer. They will advise you to have a yearly or even semi-annual check. Congratulations on your successful transplant! How are you feeling these days?
Ginger

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@gingerw. I knew we were at higher risk but I read somewhere a number of months back that we are at 200% greater risk! My favorite way to avoid sunburn is avoidance. I hate the feeling of sunscreen.

MGH has a dermatologist who specializes in post-transplant patients so I see him.
JK

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Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 30, 2019

Here is a relevant discussion in our group about sun protection started by @jolinda :
- Anyone have tips on sun protection? https://connect.mayoclinic.org/discussion/anyone-have-tips-on-sun-protection/

The discussion helped inform this useful blog post by the transplant team:
- Vacation Tips and Tricks for Transplant Patients https://connect.mayoclinic.org/page/transplant/newsfeed-post/vacation-tips-and-tricks-for-transplant-patients/

Is everybody getting their flu shot too?
- Flu Season: What You Can Do To Stay Healthy https://connect.mayoclinic.org/page/transplant/newsfeed-post/flu-season-what-you-can-do-to-stay-healthy/

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