How did you manage the pain side effects of Prolia?

Yes. I had an appointment with Integrative Medicine and Health at Mayo. I was on it before I went and they went through all my prescriptions and over the counter vitamins and minerals. K2 was part of it and was approved.

Has anyone had severe jawbone infection? I have dealt with this almost 6 months with part of the time wasted by doing dental surgeries to solve the problem. This has been very serious and a result of taking Prolia for cancer prevention along with a cancer medication. It seems now I find out my bone density was fine and didn’t need Prolia.

Yes. after fosamax I developed jaw necrosis. Lost 4 bottom molars. They just cracked and had to have them extracted. Will never take any of these drugs. I am on algae cal boost. Hoping it will help

Oh Kay, I am so sorry that happened to you. I am proud of you for standing your ground. You are an inspiration to others.

Yes. after fosamax I developed jaw necrosis. Lost 4 bottom molars. They just cracked and had to have them extracted. Will never take any of these drugs. I am on algae cal boost. Hoping it will help

Attached is my osteoporosis spreadsheet. Make one for yourself. This spreadsheet is from 1999. I am now 70. The T-score that they all use is based on a 32 year old's bone density. The Z score is based on your age. Hmmm. We all know that as you age from 30 on, we lose some bone. Some of us lose more bone at a faster rate as we all know. But look at how long it took you to get where you are right now. Before you take this drug or any injectable drug, get online and research it. Go to the Amgen website and review the tables there. This quote is taken from their medication guide. "• Increased risk of broken bones, including broken bones in the spine, after stopping Prolia. After your treatment with Prolia is stopped, your risk for breaking bones, including bones in your spine, is increased. Your risk for having more than 1 broken bone in your spine is increased if you have already had a broken bone in your spine. Do not stop taking Prolia without first talking with your doctor. If your Prolia treatment is stopped, talk to your doctor about other medicine that you
can take." So when you have to stop taking it at the 3 year level, what happens? Another drug? My endocrinologist agreed to prescribe physical therapy for resistance training. I have been doing that for almost 2 years. I have been doing strength training for 3 years. In the past 4 months I have enrolled in a balance class with other adults. I go to each one every week. My balance class costs me $30 a MONTH and it is ran by a physical therapist. We all get individualized help because we are not all at the same level of fitness. My physical therapist for resistance training is paid for by insurance. My strength training is done by a physical therapist and I do pay for that myself but it's worth it. If you aren't familiar with any good physical therapists, contact a good orthopedic clinic. They can recommend a great one. That's where mine came from. I get my next bone density this summer.

Yes. after fosamax I developed jaw necrosis. Lost 4 bottom molars. They just cracked and had to have them extracted. Will never take any of these drugs. I am on algae cal boost. Hoping it will help

I as so glad you spoke up. I was on the verge of starting Prolia, but checked in with a support group for osteoporosis on Facebook. They put me in touch with two women who had full-blown osteonecrosis. They told me they lost use of their jaws and the osteonecrosis was now attacking other bones! The next time I saw my endocrinologist, I told her I would not take Prolia. She got up and walked out of the room. Needless to say, I will be looking for another doctor to work with me on bone health. I hope you will alert others to what happened every chance you get. Those bone drugs are poorly studied and have little redeeming features once you study them. I am now studying nutritions books such as "Advance Nutrition: Macronutrients, Micronutrients, and Metabolism" by Carolyn D. Berdanier and Janos Zempleni in my quest for knowledge on how to help my bones. There must be a better way - and I think it can be addressed with diet. I wish you all the best luck with your cancer treatment.

Hey Diva. Do some research about these drugs. The way they work is by not allowing the old, dead bone to exit the body. Usually it is excreted in the urine. But these drugs keep the dead bone in place until you quit taking it. It makes it appear as though you have new bone - stronger bone - when in fact, it is dead bone. That is why people start fracturing when they stop taking the meds.

Do other "bone meds" also not allow DEAD BONE to exit the body? I am on generic Fosamax, so far no problems, I am aware of. Have not had a bone scan since being on the med. I consulted 2 Orthopedic doctors before I started the generic Fosamax. Do notice popping in lower back when turning, twisting etc. Thank you for all you share with us.