1. < Osteoporosis & Bone Health

How did you manage the pain side effects of Prolia?

Posted by pine4234 @pine4234, Oct 26, 2018

I had prolia injection a week ago. I've developed lower back pain and severe spasms. The spasms are so bad I can hardly get out of bed or even out of a chair. Is there anything I can do or take to alleviate this awful pain.

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suzannex | @suzannex | Oct 24, 2019
In reply to @parrotqueen "Are you taking a probiotic? I strongly urge you to take a probiotic, limit your sugar..." + (show)
@parrotqueen

Are you taking a probiotic? I strongly urge you to take a probiotic, limit your sugar intake (that includes bread and fruit), and take herbal antifungals or eat anti fungal food (garlic, ginger, apple cider vinegar, coconut oil, oregano, etc.) for a period of 90 days. Antibiotics and chemo drugs can kill the good bacteria in your gut, allowing then Candida (which is a fungus) that lives in all of us to take over your gut. Once candida takes over your gut - you are in for real trouble. At least check out a book called The Candida Cure by Ann Boroch. That is what happened to me and I got VERY sick over time. If you do the diet for 90 days, you can restore your gut health. Hypocrites said "All disease begins in the gut," and I think he was correct. I got so sick, I thought I was going to die. The good news is that you can get your gut health back. If you want to do this and you need support, I can hook you up and I will help you as much or as little as you need.

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I would like some help. Thanks.

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1 reply
parrotqueen | @parrotqueen | Oct 24, 2019
In reply to @suzannex "I would like some help. Thanks." + (show)
@suzannex

I would like some help. Thanks.

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The best advice I can give you is to follow the instructions and diet in the book called "The Candida Cure" by Ann Boroch. I can tell you the probiotics and antifungals I take (I use herbal antifungals). All the instructions are in the book. If I can say this here, you can private message me and from there I can give you information on the group I am in. We help people stay on the diet and provide all sorts of recipes and tips that will help you. There is a private group on Facebook that you will be invited to join. The moderators have all been on the diet a long time (I'm almost at five years) and there are people at all stages of being in the group - brand new people and people six months or six weeks along on the diet. The first 90 days of the diet are very strict, and that may be all you need. Most people decide to continue on the diet, which is when you can add certain foods back and you get a ton of recipes. Let me know if you want into the group on Facebook. If you contact me I will give you ore information.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 25, 2019
In reply to @parrotqueen "The best advice I can give you is to follow the instructions and diet in the..." + (show)
@parrotqueen

The best advice I can give you is to follow the instructions and diet in the book called "The Candida Cure" by Ann Boroch. I can tell you the probiotics and antifungals I take (I use herbal antifungals). All the instructions are in the book. If I can say this here, you can private message me and from there I can give you information on the group I am in. We help people stay on the diet and provide all sorts of recipes and tips that will help you. There is a private group on Facebook that you will be invited to join. The moderators have all been on the diet a long time (I'm almost at five years) and there are people at all stages of being in the group - brand new people and people six months or six weeks along on the diet. The first 90 days of the diet are very strict, and that may be all you need. Most people decide to continue on the diet, which is when you can add certain foods back and you get a ton of recipes. Let me know if you want into the group on Facebook. If you contact me I will give you ore information.

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Hi @parrotqueen, you'll notice that I removed your personal contact information from your post above. We recommend sharing personal contact information using the secure private message function to avoid your getting unwanted spam from potential bots or trolls.

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1 reply
parrotqueen | @parrotqueen | Oct 25, 2019
In reply to @colleenyoung "Hi @parrotqueen, you'll notice that I removed your personal contact information from your post above. We..." + (show)
@colleenyoung

Hi @parrotqueen, you'll notice that I removed your personal contact information from your post above. We recommend sharing personal contact information using the secure private message function to avoid your getting unwanted spam from potential bots or trolls.

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Thank you. I guess I do not know about the private contact function. Thank you for having my back. Sometimes I forget there is so much evil in the world.

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1 reply
JK | @contentandwell | Oct 26, 2019
In reply to @parrotqueen "Thank you. I guess I do not know about the private contact function. Thank you for..." + (show)
@parrotqueen

Thank you. I guess I do not know about the private contact function. Thank you for having my back. Sometimes I forget there is so much evil in the world.

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@parrotqueen if you click on a person’s name (the one with the @) it will bring you to that person’s profile page and there is a link there to send a private message.
JK

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Jan 4, 2020
In reply to @kay71 "This is very rare but wanted to know if it has happened to anyone on this..." + (show)
@kay71

This is very rare but wanted to know if it has happened to anyone on this site. It’s a severe jaw infection and bone loss. It takes a long time to get relief. I would like to know the outcome for others that have gone through this. This is happening more and more and maybe not so rare after all. Prolia is poison!!!

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Good morning @kay71 . I’ve heard of osteonecrosis of the jaw and sometimes worry about it. I take Fosamax and it, too, lists this awful jaw problem. I just make sure I have good dental checkups! Have you felt any symptoms that make you think it’s happening?

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JK | @contentandwell | Jan 4, 2020
In reply to @kay71 "This is very rare but wanted to know if it has happened to anyone on this..." + (show)
@kay71

This is very rare but wanted to know if it has happened to anyone on this site. It’s a severe jaw infection and bone loss. It takes a long time to get relief. I would like to know the outcome for others that have gone through this. This is happening more and more and maybe not so rare after all. Prolia is poison!!!

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@kay71 this is a problem, but the incidence is far less than the incidence of a fracture. I plan to start with one of these medications, but haven’t decided which one yet. 20%-30% of “elderly” (I put that in quotation marks because at 72 I still find it difficult to think of myself as elderly) people who have hip fractures, die within a year due to loss of mobility. Many people can never again walk independently. There are downsides, but I think the minute risk is worth it. We each have to research and decide for ourselves. Some choose to use various supplements but those too can be dangerous, there is no inspection and approval of many of them.
JK

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1 reply
kay71 | @kay71 | Jan 4, 2020

This is very rare but wanted to know if it has happened to anyone on this site. It’s a severe jaw infection and bone loss. It takes a long time to get relief. I would like to know the outcome for others that have gone through this. This is happening more and more and maybe not so rare after all. Prolia is poison!!!

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5 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 4, 2020
In reply to @kay71 "This is very rare but wanted to know if it has happened to anyone on this..." + (show)
@kay71

This is very rare but wanted to know if it has happened to anyone on this site. It’s a severe jaw infection and bone loss. It takes a long time to get relief. I would like to know the outcome for others that have gone through this. This is happening more and more and maybe not so rare after all. Prolia is poison!!!

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Hi @kay71, I moved your message to this existing discussion in the Bones, Joints and Muscles group https://connect.mayoclinic.org/group/arthritis-and-joint-conditions-268850/ Here's you'll connect with many members dealing with osteoporosis and managing its treatment.

Osteonecrosis of the jaw is a horrible potential side effect of antiresorptive medications including bisphosphonates. How have you been managing it?

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mhalpin53 | @mhalpin53 | Jan 6, 2020
In reply to @twocents "I am new to this group. My doctor just prescribed Prolia, but with all the side..." + (show)
@twocents

I am new to this group. My doctor just prescribed Prolia, but with all the side effects, I'm not sure that's the way to go. In reading all of the discussion on Prolia, I haven't seen anyone share their results. I'm wondering if anyone has actually improved their bone density by having the prolia injections. Thanks

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I've been on prolia for one year and have a dexascan scheduled in a couple weeks. I've written myself a note to remember to let you know if it made a difference. In 2013 I fell and fractured my femur (age 60) and discovered I had severe osteoporosis. I've broken the other leg and a wrist since then. I took alendronate (generic fosamax) for five years and I improved to osteopenia. A year ago my dexascan showed severe osteoporosis again so Dr. switched me to Prolia. I too am anxious to see if there is change.

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