Financial strain of having multiple autoimmune diseases

@juanr1520 Thats terrible I hope you can find an explanation and treatment for this evidently you where allergic to the contrast dye for one Is there an antidote for this dye?Milk is an antidote but not sure that will help you .My experience with burning sensations I have in my thighs is I use a cool washcloth and popsicles Im sorry I cant help you this is just my suggestions I know of and do for myself

Replying to @tinkerbell and @redhead63 Don't know where you live Tinkerbell, but I know of an excellent environmental M.D. in the area of Charleston, South Carolina. It's now called Center for Occupational & Environmental Medicine (COEM). Try http://www.coem.com

@steeldove - Thanks for the information. I live in Orlando, Florida.

Hi @juanr1520,

According to this recent study, https://www.sciencedirect.com/science/article/pii/S1548559517300575, "Patients presenting with gadolinium deposition disease may show signs and symptoms that somewhat follows a pattern similar but not identical, and also less severe, to those observed in nephrogenic systemic fibrosis."

I'm tagging @ca426 as he has mentioned nephrogenic systemic fibrosis (NSF), and may be able to share some insights with you.
I'm not sure if you're being treated at Mayo Clinic, but here's some information about Mayo Clinic's care approach for NSF: https://www.mayoclinic.org/diseases-conditions/nephrogenic-systemic-fibrosis/care-at-mayo-clinic/mac-20352305

I have fibro, ms, sjogrens, cfs, lupus, peripheral neuropathy-100 types of neuropathy. I would see a rheumatologist or internal medicine. My rheumatologist said my sjogrens is my primary disease, and sjogrens can cause multiple organ issues. I knew I had lupus, no one would believe me, I had a butterfly rash for months. All my ANA tests were normal. I went online found a test called anti-sm,or anti-smith. Not a common test. But always lupus, I tested positive 3 times 10 yrs ago, but also negative last few yrs. I was told the numbers go up and they go down. Like a lot of medical tests. My lupus is not active at this time.

Hello I'm new to this site, I'm looking for answers and people I can talk to that has the same problems I do. It's scary alone. I can't talk to my husband because he is permanently in a wheelchair. I have fibromaylia , Addison and just this month after a biopsy on my arm, it has been itching and looking like I had a bad sun burn, they diagnosed with connective tissue disase. I feel like I'm go crazy I itch ALL over my body. I have cream and a pill that I take it helps but it doesn't last long. I'm so fatigue, I do things, for example, I go to town to do groceries and by the time I get back I just collapse and the next day I'm in the bed. It's so hard for me also to push my self everyday cause I have to take care my husband. I do have a nurse 2 hours a day, thank God. But the rest of the day is on me, it's so hard. I'm scare of what this disease is about and symptoms and etc.. can someone help me understand the disease, please, I'm one of those people the more I know the better I can deal with it. I also know my back and the bones in my body hurt every time I get up moving, about 10 mins. the pain is unbearable. I'm in the middle of taking a mailigance panel have 1 more left. Once everything is done I meet back with the dermatologist to see where we go from there. This is my story sorry it was so long.

I can certainly relate to all the symptoms from the unbearable pain in the abdomen, all over body itching and joint muscle pain. The most menial tasks might put me in bed for 2-3 days. And I mean not get up to do anything! At Mayo, my endocrinologist told me it was not Addison’s Disease, because I increased in cortisol when stressed during my ACTH test. However, I had no baseline cortisol @

My itching is only on my arms, since 1988. But if I take an pain meds, then I am allergic and it is this awful feather like itching all over, pain is better. As to abdomen, if I get a bad stomach ache or I am on antibiotics then I take a probiotic. It's amazing how great it works. I am constantly tested all the time, blood work slways. I am the only one in my family with these issues. So strange. I hated to have my right knee done and cataracts, but putting off, just so tired of the doctors. Lately some pretty bad ones. I figure nothing is going to kill me, it will just make life miserable, just my luck I will out live everyone.

We did the test where they take a baseline blood, where your npo then they take your blood and right after they would get me corsoul shot then you wait some many mins. And 3 times my results was at 1. I understand that disease well somewhat this my endocrinologists , then my arm turn very red and was itching really bad.at my elbow alway up and about 8 inches my arm looked I was severely sunburned, had it for now a year I'd show it to doctors and they would say they just did not know, I took it upon my self to call a dermatologist and they did a biopsy and diagnostic had connective tissue disease, I don't understand anything about it but I'm so tired and itching terribly and can tell my health is declining and I'm scare any suggestions is helpful . More I can find out about the disease the better I will be. Thanks!

I begged a doctor in 2000 for something for my arms. She prescribed hydroxzine. It is a lifesaver. I was originally given 8 in a day and I took 4 in the morning & 4 at night. Well over the yrs they have cut that back, my doctor says something about Beers Criteria, in the elderly, I really don't care, I can't handle the itching. I am 70, my mind is 30. One dermatologist said we could do light therapy on my arms, but it would make the lupus worse, said o thanks. Lupus is not active. I have also been on lyrica since about 2005 for tingling in my right arm I am trying to get off that, it added 25 lbs.