Financial strain of having multiple autoimmune diseases

Posted by mary1121 @mary1121, Aug 10, 2018

I have just been diagnosed with my 6th autoimmune disease. I am in a panic state. MS, Celiac,hypothyroidism, fibromyalgia and lupus. I want to get in with a functional doctor, but all of the ones that I have talked to cost between $10,000-15,000 upfront. I don’t know where to turn.

Thanks John ……hope you are not doing too much in the garden!! Beryl

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@beryl

Hello all this is Beryl …..I was sitting here reading some of the posts and realized that it makes such a difference to see that there are lots of people in the same boat and worse…..I always felt a bit of a freak as people round you really don't know what the dickens is wrong with you …..I used to find myself floundering and making excuses for myself so it didn't feel so bad ……Now I don't Mayo Connect has given me confidence …..thank you guys for sharing and unfreaking me…..ha ha ……

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@beryl we are all in the same ⛵ but we all need to keep rowing LOL

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@lioness

@beryl we are all in the same ⛵ but we all need to keep rowing LOL

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Yes Lioness I am doing my best….Beryl

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@beryl

Yes Lioness I am doing my best….Beryl

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@beryl thats all we can do

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@mary1121 Mary, are you anywhere near Massachusetts? If so, I'll give you contact information for a functional medicine doc who doesn't charge outrageous fees and participates in Medicare.

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@steeldove

@mary1121 Mary, are you anywhere near Massachusetts? If so, I'll give you contact information for a functional medicine doc who doesn't charge outrageous fees and participates in Medicare.

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Hello @steeldove
I am not familiar with the term, "functional medicine doc" can you explain what kind of the doctor that is and how it is different from other medical professionals? The name sounds very interesting.

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@hopeful33250

Hello @steeldove
I am not familiar with the term, "functional medicine doc" can you explain what kind of the doctor that is and how it is different from other medical professionals? The name sounds very interesting.

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@hopeful33250 I hope this helps: Various forms of alternative medicine, such as functional medicine and integrative medicine, have been quickly gaining popularity in the 21st century. Both disciplines are highly regarded by world-renowned health care practitioners such as Drs. Deepak Chopra, Mark Hyman and Dean Ornish. Many believe functional and integrative medicine are the future of medicine. Physicians are beginning to take a more holistic approach to treating patients, no longer just concentrating on treating a disease. Although functional medicine and integrative medicine have similarities and overlap in several areas, there are a few factors that make each discipline somewhat unique.

What is Integrative Medicine?

Integrative medicine is a holistic medical discipline which takes into account the lifestyle habits of a patient. The physician works to treat the whole person rather than just the disease. The mind, body, and soul of a patient are taken into consideration to promote healing and well-being.

Integrative medicine uses a combination of modern healthcare practices to diagnose and treat a patient. Treatments may include such modalities as acupuncture, yoga, or massage. This medical practice also focuses on the nutritional and exercise habits of the patient to curb factors related to obesity and diabetes. Integrative medicine physicians believe poor lifestyle choices are the root cause of many modern chronic diseases.

What is Functional Medicine?

Functional medicine embraces much of the philosophy of Integrative medicine as described above but also employs a systems-oriented medical approach that works to identify and understand the underlying or root causes of a disease. This discipline takes into account the personalization of healthcare, as each patient care plan is distinct and unique. The relationship between patient and practitioner effectively becomes a partnership; every aspect of a patient’s medical history is reviewed in detail. Much like integrative medicine, functional medicine treats the individual rather than the disease.

Often, individual genetic and environmental research is conducted to obtain a deeper knowledge of the patient’s health status. Understanding the biochemical individuality of a patient can lead to the underlying causes of disease and furthermore, the prevention of additional health risks in the future. Functional Medicine has gained much popularity, even spurring the creation of the Institute for Functional Medicine. Personalized medicine is without a doubt, the future model of medical care.

Interested in personalized medical care? Learn more here.

Although integrative medicine and functional medicine have similarities, there is one important distinction. Both practices focus on supporting the patient as a whole person; however, functional medicine strives to determine the root cause of each and every disease, particularly chronic diseases such as autoimmune and cardiovascular diseases as well as, diabetes and obesity. Rather than simply making a diagnosis and then determining which drugs or surgery will best treat the condition, Functional Medicine practitioners dive deep into the patient's history and biochemistry and ask why this patient is ill. Functional medicine is highly personalized and often includes a detailed analysis of an individual’s genetic makeup.

Healthcare is undergoing drastic changes in the 21st century. In as few as five years we will look back and ask ourselves how we could have been practicing medicine so primitively. Those practitioners who embrace the Functional and Integrative Medicine paradigms will be at the forefront of healthcare in the 21st century.

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Does anyone have problems with Oriencia effecting their Menieres Disease. Mine has escalated & lasts for days. Like I’m stuck in a Minieres attack. My RA hasn’t been successfully controlled & I’ve had so many side effects from the many treatments in the last 12 yrs? Help. My ENT & rheumatologist disagree.

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@pjshoppes

Does anyone have problems with Oriencia effecting their Menieres Disease. Mine has escalated & lasts for days. Like I’m stuck in a Minieres attack. My RA hasn’t been successfully controlled & I’ve had so many side effects from the many treatments in the last 12 yrs? Help. My ENT & rheumatologist disagree.

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Hello @pjshoppes, welcome to Mayo Clinic Connect. I'm glad you are asking questions and trying to find answers. We each need to advocate for our own health.

Here are some links I found that may be helpful.

rxlist.com — Common side effects of Orencia (dizzyness is one of them)
https://www.rxlist.com/orencia-side-effects-drug-center.htm

eHealthMe — Orencia and Meniere's disease – from FDA reports
https://www.ehealthme.com/ds/orencia/meniere-s-disease/

Mayo Clinic – Meniere's disease – Symptoms & causes
https://www.mayoclinic.org/diseases-conditions/menieres-disease/symptoms-causes/syc-20374910

NIH – Ménière's Disease
https://www.nidcd.nih.gov/health/menieres-disease

@pjshoppes did your ENT & rheumatologist offer any explanations or alternatives that might be causing you to feel like you are stuck in a Minieres attack?

John

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Hello all. Arkansas here and I’m not even sure where to start regarding my health issues, but I strongly believe I have metal poisoning and the doctors here have given up on me. My PCP yesterday said I should go to Mayo, so I’m just now trying to find a place to start

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@pcjohnson

Hello all. Arkansas here and I’m not even sure where to start regarding my health issues, but I strongly believe I have metal poisoning and the doctors here have given up on me. My PCP yesterday said I should go to Mayo, so I’m just now trying to find a place to start

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Hello @pcjohnson, welcome to Mayo Connect. I'm glad you are being an advocate for your health and search for answers. I'm sorry to hear your doctors are not able to diagnose your health issues. I would ask my PCP if they will give you a referral to Mayo Clinic to help you get an appointment. Mayo Clinic is very good at diagnosing health issues that are difficult to diagnose. If you would like to seek help from Mayo Clinic, you can contact one of their appointment offices. The contact information for Minnesota, Arizona and Florida can be found here:

Mayo Clinic Contact Information:
https://www.mayoclinic.org/appointments

@pcjohnson can you share why you believe you have metal poisoning?

John

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@pcjohnson – from Tinkerbell – My neighbor had cobalt poisining from a hip replacement. She was diagnosed at Mayo and both hip joints have been replaced. My neighbor and I both go to Mayo. It is a wonderful facility. We go to the Clinic in Jacksonville. They do have hotels nearby that give you a discount if you are a patient at Mayo.

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