1. < Autoimmune Diseases

Body itching

Posted by Retired teacher @specialteacher, Jul 31, 2018

I’ve had almost unbearable itching for over 3 months. Was prescribed hydroxyzine, but it doesn’t seem to help. It started when I was in the ER having a very frightening allergic reaction. I was given an epinephrine iv, and a breathing treatment. My legs started to shake uncontrollably. Then I couldn’t breathe, was given an injection of something at that point. I’m taking benadryl and paxil but don’t know how much longer I can deal with this.

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jeanne5009 | @jeanne5009 | Dec 14, 2018

@quiteachiver
Yes now I do ...looks like bug bites with a raised rash all around it. I have it on my scalp so that part is hard to see.

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Mentor
Ginger, Volunteer Mentor | @gingerw | Dec 14, 2018
In reply to @jeanne5009 "@gingerw I just found this group and am hoping to get some ideas. I have a..." + (show)
@jeanne5009

@gingerw
I just found this group and am hoping to get some ideas. I have a rash on my scalp and now on my back. Been to my PCP and dermatologist 2 times each. Been on more drugs ointments etc. So yesterday my Dr. Said to try the treatment for Scabies....EeeeKkkkk!
I have done the lotion and cleaned my already clean house and I am itching worse than ever. After reading this groups ideas...I am thinking that it is exema. Did not know that is connected to auto immune. I am Stage 4 Cirrhosis. Nothing is showing up in my routine bloodwork. ANYONE have ideas?

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@jeanne5009 My apologies for not responding to you. I have autoimmune issues, and kidney disease caused by hyperactive immune system. It seems to me since the rash is localized to scalp and back, it may be a contact issue. Bedding, or new shampoo/conditioner, perhaps? New laundry soap? Change in vehicles, now receiving a different type of light? Change in medication [either dosage or type, including over the counter]? Change in anxiety or stress levels, sleep patterns, or diet? Having a compromised system due to your cirrhosis may lead to hypersensitivity from nothing that you can put a finger on. Do oatmeal baths work to calm the skin down? I hope we have given you some ideas here.
Ginger

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1 reply
Mentor
Ginger, Volunteer Mentor | @gingerw | Dec 14, 2018
In reply to @bailey32 "@basslakereview. I have Morgellons Disease too. I have rashes and lesions (deep holes in skin and..." + (show)
@bailey32

@basslakereview. I have Morgellons Disease too. I have rashes and lesions (deep holes in skin and very large, deep sores that are painful, but have an underlying itch that is worse than any other type.I have had. It itches even worse when the sores spontaneously spread and I find a huge amount of white, glittery specks and fibers surfacing from the skin. I have very active 'hair' aka fibers that tie themselves in knots and loops. I normally have very fine, straight hair, but not anymore. Horrible looking things come out of the lesions. This bizzare disease defies all logic and is not a delusion and leaves me with a very high anxiety level. I also end up with holes in my clothing that I must throw away; leaves me wondering if I might have a parasite, such as Nematodes or Horsehair Nematode. My doctor does not believe me even though she has seen My videos and pictures. I have no support system and think I would probably be better off dead. I can't deal with this anymore. Would like to connect With anyone else who has this.

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@bailey32 Oh, my, keep demanding some positive action from your doctor's. Get a new one if needed. This sounds so uncomfortable, and depressing to suffer with!
Ginger

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jeanne5009 | @jeanne5009 | Dec 14, 2018
In reply to @gingerw "@jeanne5009 My apologies for not responding to you. I have autoimmune issues, and kidney disease caused..." + (show)
@gingerw

@jeanne5009 My apologies for not responding to you. I have autoimmune issues, and kidney disease caused by hyperactive immune system. It seems to me since the rash is localized to scalp and back, it may be a contact issue. Bedding, or new shampoo/conditioner, perhaps? New laundry soap? Change in vehicles, now receiving a different type of light? Change in medication [either dosage or type, including over the counter]? Change in anxiety or stress levels, sleep patterns, or diet? Having a compromised system due to your cirrhosis may lead to hypersensitivity from nothing that you can put a finger on. Do oatmeal baths work to calm the skin down? I hope we have given you some ideas here.
Ginger

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@gingerw
Thanks...lots of new ideas. I'm going to another derm next week..maybe he has some magic potion. We all seem to have our battles..I hope you conquer yours!

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jeanne5009 | @jeanne5009 | Dec 14, 2018

Hope you are getting thru the battle...dont stop.

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gardeningjunkie | @gardeningjunkie | Dec 14, 2018

You mentioned a biopsy showing eczema. What type of eczema? As I have mentioned you must get the exact name of your type. If Allergic Contact Dermatitis the 5 Day Extended Patch Test will identify the names of your allergens so you can avoid them. Don't settle for the general term "eczema".

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jeanne5009 | @jeanne5009 | Dec 15, 2018

@gardeningjunkie
I will see her this week and find out. Meanwhile I've got an appt with another derm. Thanks for your help...this saves me lots of time learning the hard way...

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mrshonesty355 | @mrshonesty355 | Dec 17, 2018
In reply to @dazlin "I've gotten these rashes before. I was seen at Mayo clinic. Had blood work, and biopsies..." + (show)
@dazlin

I've gotten these rashes before. I was seen at Mayo clinic. Had blood work, and biopsies done since 2014. I usually see my dermatologist once a year, or longer if I can. So this time it's mainly on my back. Large red itchy patch over both kidney areas, red bumps on entire back stomach, and chest. Looks like measles?? Few on my arms and legs. Strangely, the arches, and ankles of my feet go wildly itchy during the night too. I called mayo, but they said my dr retired, and pushed me off until November , with a new dr who recently came on board . I went to my local physician, and only was able to see a nurse (they said dr booked up).
After looking at me, dr came in for a quick peek. They dont know what's causing it. They put on Hydroxyzine 3x day, said continue all my home care, cortisone prescription cream, baths etc. Nothing helps. The medicine does knock me out, but I wake up needing to push up my next dose. I'm miserably itchy and exhausted. The bumps burn a bit, and I have chills. No fever. Getting depressed. Been severe for over 2 weeks. Going on 3 weeks now. I need to see a dr at mayo clinic ASAP...they have all my records and I am an MGUS patient in oncology. I called them too...they said it's not related, to see the dermatologist. I cannot wait till November. I'm wondering if mayo in Florida has an E.R...maybe go there??

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Have them check your tryptase levels and do biopsy of your skin where rash is the worst. Allergist and Dermotologist would be best for all this. Check Mast Cell diseases. I have been going thru this constant for 3 years now ever since knee replacement. Turned out I was allergic to replacement and had revision but still having issues. Pain, itching and rash constantly getting worse. Turned out my tryptase is high and had biopsy and I have Mastocytosis. I see the doctor for that Wednesday to figure out which one. Prayers for answers and to feel better! I know what you are going thru!

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1 reply
jeanne5009 | @jeanne5009 | Dec 18, 2018

@mrshonesty355mrshonesty355
Wow..thanks I GET to see the derm next week. She biopsied but one spot wss eczema the other foliculitus..they THINK. I'm sick of this..
Thanks for your help...take good care of YOU!
Merry Itchmas!

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gardeningjunkie | @gardeningjunkie | Dec 18, 2018
In reply to @mrshonesty355 "Have them check your tryptase levels and do biopsy of your skin where rash is the..." + (show)
@mrshonesty355

Have them check your tryptase levels and do biopsy of your skin where rash is the worst. Allergist and Dermotologist would be best for all this. Check Mast Cell diseases. I have been going thru this constant for 3 years now ever since knee replacement. Turned out I was allergic to replacement and had revision but still having issues. Pain, itching and rash constantly getting worse. Turned out my tryptase is high and had biopsy and I have Mastocytosis. I see the doctor for that Wednesday to figure out which one. Prayers for answers and to feel better! I know what you are going thru!

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I know knee replacement is in my future in a few years, but because of all my allergies I am concerned about a reaction like you are dealing with. Because of your post I now have more homework to study what is- typtase and mastocytosis or mast cell disease is. I feared an allergic reaction to the synthetic mesh put in 3 years ago to tie up bladder prolapse and was told it would be safe and it was. Great successful results! But putting foreign substances in my body is a gamble and would rather use a walker than deal with the misery of 24/7 itching and raised inflammation level pain which is inescapable. I know, I have been there. I will pray for you mrshonesty (love your blogging name), prayers helped me with a miracle cure for an autoimmune disease I got at age 50 disappeared totally 5 years ago- gone! Shouldn't have happened according to medical science.

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