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Paralyzed Diaphragm
My name is John and I was diagnosed this past January with a paralyzed right diaphragm. Phrenic nerve damage has been ruled out because of the amount of time between my heart valve surgery and when this started. I still cannot figure how this happened, I have a couple of ideas but nothing conclusive. I have seen two pulmonary doctors and both say there is a surgical procedure that can be done but no guarantee that it will work. I would like to know if anyone out there has been diagnosed with a paralyzed diaphragm and if they had it fixed.
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@teresa Yes, I will post after my 23rd appointment. Thank you.
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4 Reactions@john I will discuss with my Doc or technician when I see them. I wanted a nasal mask but using 6 LPM of 02, they said I could not use a nasal one. We will see. Thanks
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3 Reactions@Dawn I have not talked to anyone on the BiPap issue as everyone's concern in on the paralyzed diaphragm issues. BiPap was ordered to help me get some better sleep as I only get 2 hours in as many days due to the breathing difficulties. I will know more on the 23rd and will post an update then. Thank you so much.
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3 Reactions@thankful Thanks for your reply and insights.
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3 ReactionsCurious on paralyzed diaphragm. I’ve not been diagnosed. For 8 months I’ve struggled with pain and pressure in my diaphragm that is followed by loss of voice. It’s like no air can get through my vocals. Causes severe fatigue. Causes chest pain but only on left side. Has anyone had these symptoms.
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2 ReactionsHi @cathleenmc and welcome to Connect. That pain and pressure in your diaphragm must be irritating and painful.
I wanted to introduce you to fellow Connect members @giller198 @allisonsnow and @usmccam who have experience with similar feelings and may be able to offer you support and share their experience with you.
What has your doctor said about this pain?
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2 Reactions@cathleenmc There could be different causes of the pain, so it's best to see a specialist. If you had a paralyzed diaphragm, you would be doing more work with upper chest muscles to breathe, which in itself, does cause some anxiety and raises your heart rate. I know someone with that condition as a result of spinal cord injury. He speaks just fine, and he was a clarinet player. He can still play the clarinet, but doesn't have any air power behind it to play as the virtuoso that he was. He is functioning without a mechanical assist.
What I think might be a possibility for you is phlegm buildup which could explain chest and lung pain, tightness, and loss of voice. I did have symptoms like this too, and I had reoccurring chest infections, and I thought I had one of the bad ones that are hard to cure. I have allergic asthma, or what they like to call Eosinophilic asthma. I have multiple allergies including to my own cats and do allergy shots, but it wasn't enough. The amount of exposure I was getting from cat dander overpowered my allergy treatments and I continually had phlegm buildup and used Guaifenesin (over the counter) to thin the phlegm so I could expel it. I would always feel it start in my left lung. By making changes at home with the position of my HEPA air filter when I sleep and wearing paper surgical masks when I am near the cats, and cleaning as much as possible, I was able to resolve the problem completely even well enough that we can coexist and the masks are good enough to prevent problems even if I don't take antihistamines or do the allergy shots. Phlegm does cause severe fatigue if it is blocking the air from getting to the surface of your lung tissue air sacs. We are also most vulnerable sleeping, because we are not expelling mucous, and it builds up, so in the morning, it is the worst. If this is happening to you, the question then is why is there excess phlegm? Infection? Allergy? Asthma? Physical issue? For me, when I had these infections, my resting heart rate was over 100/minute and I went to the emergency room. I had this problem for a couple years before I figured it out. I do now have a steroid type preventative asthma inhaler, but don't want to use that long term to avoid the side effects, and it works by depressing the immune system, so I would be more at risk for the infection I'm trying to prevent. I hope that gives you some insight on possible solutions.
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1 ReactionI'm late comming into the discussion, but FYI, my pulmonologist ordered a "sniff test" when he suspected a paralysed diaphram last June. Have you had this done? Its a XR Fluoro proceedure with contrast where they watch the diaphram as you "sniff"...
mine proved...
I am having similar issues with congestion since going on the Resmed CPAP machine summer of 2018..I attribute it to an alergy to the silicoln mask materials, but not sure. It seems that when I replace the mask I immediately get the congestion for a week or so...hardly able to talk.
I have used the SoClean 2 since I first went on the machine last summer.
When I confronted the pulmonologist with the issue, he sent me to an ENT doc, who in turn prescribed an antibiotic whcih I took for 2 weeks and added Zantac to my tray of tablets...seems like a guessing game to me!! The problem subsided for awhile, but is still troubling.
Interestingly, the Pulmonologist told me to turn up the machine's humidity setting...a week later, the sleep clinic nurse called as a followup and she told me to turn off the humidity!!!???? When I turned it off the congestion subsided some, but still there today.
Biggest concern is my wife is a lung cancer patient and she went through a similar run around with pulmonologists, gastro docs etc., before we finally went to Mayo and found the underlying problem was LUNG CANCER!
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1 ReactionSorry to hear about your wife. I’ve had pulmonary breathing test but not sniff test. Says I have a small nodule on lung but not worried since not a smoker. ENT did two scopes and said no lesions or nodules. Gastroenterologist did an EDG and found some bacteria and infection, followed with antibiotics and steroids. Been no change. Go back to UAB in March.
Hope you gets answers and relief.
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2 ReactionsThanks!
Beware of the non smoker thought...you can get lung cancer - smoker or not! Linda Wortman can attest to that...
Good luck with you health issues..
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