Getting off of Seroquel

Posted by anniegk @anniegk, Jun 8, 2018

I have been on 300 mgs. Seroquel ER for over a year for augmenting my antidepressant which is 45 mgs. Of Mirtazapine. I decided to try and get off of the Seroquel. I was on 300mgs ER (extended release). I titrated down to 250 mg ER for 2 months without too many problems.than i titrated down to 200mgs ER just 5 days ago. My plan is to try to titrate off using ER tablets. My thinking is that perhaps the drug will remove its self from my system more gradually. I have had some nausea and a couple of episodes of diarrhea. I also have a very irregular heart beat and was started on 60 mgs of Propranolol ER (extended release) 4 weeks ago. It seems to be helping my heartbeat. I have wondered if the nausea and light headness is from the Propranolol, a Beta Blocker, or the dose reduction of the Seroquel. I also wonder if the way iam titrating the Seroquel is safe. My doctor says it will only take a couple of weeks...I think that is too fast of a taper after being on a drug for over a year. What do you think?

Interested in more discussions like this? Go to the Depression & Anxiety Support Group.

@jh1

I stopped Effexor, Seroquel, lexapro and everything else. I feel great. Medicine-free for the first time in 16 years. Amazing how much the meds can mess you up and become the new normal. I wish they invested as much time and money into working with actual mental illness as they did with thinking they were alleviating symptoms. I’ve been in the psychiatric regime for 17 years, paranoid schizophrenic for 25 and nobody to this day has investigated the nature of my delusions. I ended up doing it myself and went off all of my meds and am completely fine.

Jump to this post

Thank you for writing. I am happy to hear that you are doing well. I am also tapering off of a medicine...
Not easy! Painful cramping.

There are side effects to withdrawal and some of us may need to be monitored. My biggest helper has been my gastroenterologist! She has given me information about the cramping I might have and not to confuse it with IBS... although it is irritable!

Others, including your former doctor, would benefit from knowing your success story.
Perhaps the doctor would not be so quick to prescribe Meds that cause dependence?

Thank you again for writing.

REPLY
@helenfrances

Thank you for writing. I am happy to hear that you are doing well. I am also tapering off of a medicine...
Not easy! Painful cramping.

There are side effects to withdrawal and some of us may need to be monitored. My biggest helper has been my gastroenterologist! She has given me information about the cramping I might have and not to confuse it with IBS... although it is irritable!

Others, including your former doctor, would benefit from knowing your success story.
Perhaps the doctor would not be so quick to prescribe Meds that cause dependence?

Thank you again for writing.

Jump to this post

Thanks for the reply. Nobody told me about Effexor dependence when it was prescribed and my current psychiatrist doesn’t treat my condition, he just works with medicine. I’m sure he will be interested to hear how it’s going at our next appointment. The current treatment of schizophrenia is ect and meds. I’ve scoured many writings on the topic but haven’t found anyone who treats the underlying condition yet.

REPLY

Suggest you research natural, herbal options, they are there and research shows they are successful, w no side effects, or minimum side effects. Dr Becker is a GP/natrolpath , also Dr Amen has had great success says most mental issues are curable,, not just tolerated.but big pharma doesn't want Americans to know.. Google Dr Amen, do your research

REPLY
@helenfrances

Dear Caf,
I have no knowledge about these pharmaceuticals, but your question makes me wonder why I never inquired about my prescriptions:

-what are side effects,
-drug interactions, or precautions were ...
-and will this drug interact negatively with a medication I am already taking.
I never asked the doctor, the pharmacist
or read all of the accompanying literature on the prescription.

I do now! AND I ask if the benefit of this script outweighs the negative consequences!

Jump to this post

My husband was on 3 depression related meds plus 1 for high cholesterol. Not only was nothing working he was getting worse with major terror attacks and he was sleeping 20 hrs a day. His psychiatrist never actually talks to him, only checks in every 3 months for about 3 min and increases dosage. I had had it and researched each drug as to sideffects, created a spreadsheet to see how they compared plus which side effects he had and how severe he was experiencing them on a scale of 1to3. Of all the effects possible he had every single one except one. 7 of them were caused by all 3 meds! Another 6 were shared between 2, plus others per med. He was having a storm of side effects!! Armed with this spreadsheet we called the psychiatrist for an emergency meeting. He was quite surprised by the sheet and promptly canceled every drug, prescribed a new one for night (because of drowsiness effect) and 1 for terror as needed. Almost every side effect disappeared except no energy and sleeping alot. I had insisted on a meeting in 30 days to reassess. We switched meds again and things are better. Not great but he can function in public and do errands, mow, drive. My big point is to do your research and self advocate. No one is taking new patients in our area so we are stuck with this Doc, who is basically a pill pusher, or we'd change in a heartbeat. Best to all who are struggling to find what works for you.

REPLY
@helenfrances

Caf,
I have learned to ask:
“Do the benefits outweigh the risks? What are the risks?”
If I had asked that question and read the literature with the prescription I never would have taken the dosage, the length of time, that I took Clonazepam. It impairs you’re memory and mood when taken for years.
I am titrating off of this script.
More later!

Jump to this post

Keep us posted for sure!

REPLY
@helenfrances

Dear Caf,
I have no knowledge about these pharmaceuticals, but your question makes me wonder why I never inquired about my prescriptions:

-what are side effects,
-drug interactions, or precautions were ...
-and will this drug interact negatively with a medication I am already taking.
I never asked the doctor, the pharmacist
or read all of the accompanying literature on the prescription.

I do now! AND I ask if the benefit of this script outweighs the negative consequences!

Jump to this post

When i started on an anti depressant and Xanax many many years ago I was so miserable. Debilitating anxiety, no appetite. lost a massive amount of weight, crying and vomiting constantly, insomnia. I was so desperate I would have taken arsenic if that’s what I had been told to take. I had children to take care of. Now I’m reaping all the side effects and dependency from these drugs. Take someone with you when starting medication if you’re in no shape to ask questions. Days turn into months, months turn into years when you take these drugs. Wish I would have known then what I know now.

REPLY

OK so I don't mean to hijack a Seroquel thread with Effexor, but I did want to update that my attempt to go completely off Effexor was unsuccessful and instead I will be staying on 75 mg for a month then, 37.5 for a month, then 0. I will be able to push through the horrible withdrawal but i'll probably need a week off from any major work or maybe even driving a car. I went one day medicine free and was fine (that's when I wrote that post) but by day 2 the withdrawal began. It was pretty bad but I think milder than most people's. I got something similar to what people describe as brain zaps, but more like a brain fog. It was actually a permanent kind of fog that made reality kind of cotton-like. Hard to describe but if you've had it, you'll know what I mean. I also thought several times I would be sick. I was dizzy but not losing balance. Mood was irritable, easily annoyed. There's a feeling of anger and resentment and a kind of regret/guilt combo and also a feeling of wanting to be safe. It's not entirely pleasant.

Physical symptoms: like a moderate hangover or like the first few days of a cold or flu without congestion or fever.

REPLY
@mcshibe

Hello again everybody. My update:
I recently bought the 25mg pill pack and I've been cutting them into halves and trying to sleep on those halves for three nights.
So far, it seems to be working well. And last night I was able to fall asleep with less effort than the previous two nights.
Still, I'm going to bed very late these days and waking up very late too because I currently have no schedule to maintain.
I'll try to impose a more rigid and early pattern from now on just to see if I can with only 12.5mg. Also because it's healthier. So will probably post if I'll have success or not with that.

Jump to this post

A new update:
Starting about 3-4 weeks ago, I've been skipping on the med altogether.
It's not that I successfully got off Seroquel, but simply 12.5mg felt no different than nothing at all.
Now off Seroquel (and any meds in general), I've got back to suffering anxiety and insomnia like prior to when I was put on medication.
I don't know if I'll have to second guess this decision but the reason I'm so reluctant to do so is that now I'm more aware of the problems in my life and of the urgency of a fix.
I mean that in the last years I've been accepting my situation through a good dose of denial, because I was too young and being given bad advice by my family.
Perhaps I'm at a stage where I'm demonizing meds and I shouldn't, but I can't help but think that meds have made me acceptant of a situation that should have been dealt with promptly rather than disregarded.

As for withdrawal symptoms, I don't have anything significant to report. My dose, 25mg, was pretty low to begin with. I don't even feel a noticeable change in libido.
Like I mentioned, now I'm having troubles falling asleep, and the amount of sleep I get at night is reduced to 4-5 hours, but this is just a problem I was struggling with before being on meds (also what made me look for meds back then).

REPLY

@mcshibe
Hello,
Are you seeing a counselor? If not that might help.
I believe you’re right about dealing with problems. Difficult as it is sometimes we have to face our problems head on and deal with them the best we can. If you require medication to do that then that’s probably what you should do. As far as the insomnia is concerned I can totally relate. If I get four hours of sleep at night I’m thrilled. Just love yourself and have a positive attitude, it will work wonders.
Congratulations on getting off Seroquel. Although it’s not always possible but if you can cope without the medication I am sure thats better for you all the way around.
I hope you keep us posted on how you’re progressing.
Best of luck & be strong,
Jake

REPLY

@mcshibe yes counseling will help. My mother and brother intentionally took actions against me that could have caused my death. Insomnia needs a Cognitive Behavioural Therapist. CBT works for working on the dysfunctional family issues that are so prevalent. Some people need medication in addition to therapy. Every long-term problem takes time to get under our control. I'm 77 now there was no child protection agency no health insurance parents did what ever they wanted and no monitoring they're actions. Years later there's been improvements. It took a long time before we had options. I was told many times to forgive myself and others. That didn't work any better than medications. One day I had a spark of intuition that there was help. That was the beginning of nine years of acting in my best interest. Sleep issues are slowly receeding. It's up to you to take the reins and find your own way. There is help once you commit to doing the work. It took me almost 30 years to get off medications. Stay strong.

REPLY
Please sign in or register to post a reply.