Strabismus

@

Just had the most profound eye surgery at Mayo Clinic Rochester for my 9+year problem with double vision. I only see one image now w/o wearing prisms! A big miracle.
My surgeon gave me the "Connect" handout. I cannot find a group associated with this condition. Just wondering if one exists.
Thank you.

Hi, @roewes07 - I wanted to let you know that I moved your post on your strabismus surgery to this existing discussion on the same topic in the Connect Eye Conditions group so that you can connect with @ihatediabetes who has talked about it here before.

Sounds like your vision is really different now after the surgery, roewes07, seeing only one image without wearing prisms. Great your doctor who did the surgery offered you a Connect handout.

I also wanted you to meet a few others who have talked about strabismus on Connect, like @kristin1990 @rckj @claire1983. Thought they might be interested to hear about your surgery and how it turned out, and interact with you about it. I'd also like you to meet @johnhans and @hopeful33250.

How has your recovery from the strabismus surgery gone, @roewes57?

@ihatediabetes - how are your eyes doing lately? Is the prism film working well for you?

Hello @roewes07

So glad to hear that your surgery was so beneficial! It must be a real relief to be able to see without the prisms. I'm not very familiar with this eye condition. Can you tell us something about what causes it?

Also, I'm wondering if you were a Mayo patient before having strabismus and the surgery?

I became a patient at Rochester Mayo in February of 2018 for a different condition that required a 2nd opinion.
I had researched "stabismus surgeons" after I had a failed surgery locally in 2015. When I initially called it was almost a year wait just to be seen. It was truly worth the wait. I had never worn glasses or had eye problems as a child. I started needed readers at 62 yrs. My strabismus was not caused by a stroke, diabetes, myasthenia gravis or thyroid problems. I was diagnosed with esotropia which was probably caused by problems with eye muscles or the way my nerves were not transmitting information to my brain. I remember the term "sagging eye syndrome" was used by my physician also.
But the final comment is..........I see only one image w/o prisms in both lenses! Life is so fine due to the expertise of my eye surgeon at Mayo Clinic!

Thank you so much Lisa @lisalucier for connecting me with others who have talked about adult strabismus. My recovery has followed the expected route. Eight days of 3 different eye drops every hour. Pain that was significant the first 24 hours but semi-controlled with Tylenol and Ibuprofen. Now almost 2 weeks later I only have to do RX drops 2X/day!! If any of the folks @hopeful33250 @kristin1990
@claire1983 @ihatediabetes @rckj @johnhans would like to text me, I am happy to spread my good vision!
@ihatediabetes I started out with prism films and then had prescription prisms in both lenses. Sometimes my vision would change every 3 months and I would have a prism film added and then wait for my new glasses. I could not have survived w/o the miracle of prisms!
I am now on a 4x day eye exercise program to keep my brain/eye muscles/nerves seeing only one image. I will never forget to do these exercises! Good wishes to all.

I'm scheduled to have surgery on both eyes to fix esotropia in December, at Kellogg Eye Center in Michigan. However, something has come up and i need to move to Minnesota to join you guys in November. I see that Mayo does this surgery on children, but does it do the same surgery on adults?

Hi, @owlify - welcome to Mayo Clinic Connect. You will note I moved your post so that you could meet others in this discussion who have been talking about strabismus.

The answer to your question is yes, Mayo Clinic in Minnesota does indeed do strabismus surgery in adults.

Here are a few more recent studies Mayo conducted with strabismus in adults that may be of interest:

-On incidence and demographics of new-onset strabismus in adults https://www.mayoclinic.org/medical-professionals/ophthalmology/news/retrospective-study-identifies-incidence-and-demographics-of-new-onset-strabismus-in-adults/mac-20431002

-On strabismus in adults and quality of life: https://www.mayoclinic.org/medical-professionals/ophthalmology/news/psychological-factors-may-impact-quality-of-life-after-strabismus-surgery/mac-20430900

- On strabismus and mental illness https://www.mayoclinic.org/medical-professionals/ophthalmology/news/adults-with-nonparalytic-forms-of-strabismus-face-increased-risk-of-mental-illness/mac-20429327

Some other Connect members I'd like you to meet from this thread or elsewhere on Connect who have experienced strabismus in themselves or a loved one include @kristin1990 @ihatediabetes @rckj @claire1983. @roewes07 @hopeful33250 also may have some input.

How are you feeling about having this surgery, @owlify?

Hi @roewes07. I read your chat regarding your eye surgery, What type of strabismus did you have causing the double vision? I am considering surgery for cranial nerve 4 palsy being the cause of my double vision. It has been going on 4 years. Now that my eyes have settled from the AVM, the ophthalmologist suggests corrective surgery as an option since prisms offer no help. How has your experience been since your last chat? Did you have any motion sickness prior to the strabismus surgery? My ophthalmologist believes the majority of my motion sickness is due to the strabismus. It would be nice someday to be free of dizziness so I can do more. I wish you well. I can imagine the surgery has made a huge impact in your life.