Ascending Aortic Dilation - Ascending Aortic Aneurysm

Posted by rory @rory, Apr 2, 2018

I was diagnosed in 2012 with ascending aorta dialation of 4.1 cm. In 2013 no change. Finally went back to dr in 2017 and echo showed 4.3 cm. 2 months later dr made me have a chest scan which read 4.5 cm. which is correct? Echo or scan? Dr wants me to have another in 6 months. Very stressful.

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

debbydiane | @debbydiane | Jan 24, 2020

In reply to @debbydiane "Diagnosed with BAV and a 5.4cm aortic aneurysm. It was found during treatment for something else...." + (show)

I have a great support system. My husband is with me at all times and I have a grown daughter and parents who are going to hold things down here at home while I am in the hospital. I am glad I got the second opinion. I never would have known about the CoA. Thank you for responding.

debbydiane | @debbydiane | Jan 24, 2020

In reply to @debbydiane "Diagnosed with BAV and a 5.4cm aortic aneurysm. It was found during treatment for something else...." + (show)

Thank you!

Teresa, Volunteer Mentor | @hopeful33250 | Jan 24, 2020

In reply to @debbydiane "Diagnosed with BAV and a 5.4cm aortic aneurysm. It was found during treatment for something else...." + (show)

Hello @debbydiane and thank you so much for letting me know how your appointment went. I know you were shocked by the unexpected DX of CoA, but isn't good to know about it rather than having it as an uncertainty?

I am so glad that you liked the cardiologist and the surgeon. A comfort level with your medical professionals tends to give you more confidence and less anxiety about a procedure. Will you let me know the date that your first surgery will be scheduled?

You mentioned that the bowel obstruction and the heart problem were connected, I'm not sure I understand. Can you tell me more about that?

Teresa

nancykare | @nancykare | Jan 24, 2020

In reply to @laverne ""Incidentental finding " of a 4.2 CM ascending aorta aneurysm on a CT. I am 66..." + (show)

Hi! I just found out a month ago that I have a 4.0 ascending aortic aneurysm. My calcium score was 116. I saw my cardiologist and have another appointment in 2 months. I am very nervous about this. I am 67. My sister who is 60 has the same thing. She has know about it for 5 or 6 years with no change. I would love a second opinion -- I live in Florida.

nancykare | @nancykare | Jan 24, 2020

In reply to @debbydiane "Diagnosed with BAV and a 5.4cm aortic aneurysm. It was found during treatment for something else...." + (show)

I would also like to know about the bowel and heart issue too please. I'm afraid I might have the same problem

Teresa, Volunteer Mentor | @hopeful33250 | Jan 24, 2020

In reply to @laverne ""Incidentental finding " of a 4.2 CM ascending aorta aneurysm on a CT. I am 66..." + (show)

Hello @nancykare and welcome to Mayo Connect,

Your concern about your new cardiac diagnosis is certainly understandable. Here is some information from Mayo Clinic's website with some information regarding this disorder, https://www.mayoclinic.org/diseases-conditions/thoracic-aortic-aneurysm/symptoms-causes/syc-20350188. I would encourage you to read this information. In most cases, the more a person understands their health condition, the better prepared they can be to ask good questions of their medical team and seek out the best treatment.

You mentioned getting a second opinion. This is always a wise decision. You mention living in Florida, there is a Mayo Clinic facility in Jacksonville, FL. If you like to set up an appointment there for a second opinion, here is some information about making an appointment:

"Mayo Clinic works with hundreds of insurance companies and is an in-network provider for millions of people. In most cases, Mayo Clinic doesn't require a physician referral. Some insurers require referrals, or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need, and the team members who will care for you or your family have the expertise and skills to provide the best care possible."

Mayo Clinic in Florida
904-339-5809
8 a.m. to 5 p.m. Eastern time, Monday through Friday

I look forward to hearing from you again. If you are comfortable sharing more, what symptoms led you to the diagnosis?

Teresa

Kanaaz Pereira, Connect Moderator | @kanaazpereira | Jan 24, 2020

In reply to @laverne ""Incidentental finding " of a 4.2 CM ascending aorta aneurysm on a CT. I am 66..." + (show)

I'd also like to invite @ginko @kdh1 @jpmerk @dixitworld @amiscott32 @lynnw @grandmajan to join in – I'm certain they will have some valuable insights and information to share intros group.

janet26 | @janet26 | Jan 24, 2020

In reply to @nancykare "Hi! I just found out a month ago that I have a 4.0 ascending aortic aneurysm...." + (show)

I wonder what would cause the elevated calcium. MYbe that’s worth looking into as part of the cause. Just asking only going on what I have been reading also.

laverne | @laverne | Jan 24, 2020

"Incidentental finding " of a 4.2 CM ascending aorta aneurysm on a CT. I am 66 . My Doctor plans f/u CT in March, started me on a 3rd blood pressure pill and cholesterol med to gain better control, told to continue treadmill and free weights at the gym I joined before the diagnosis and said life as usual. Why am I still panicky?? Can this be right?

nancykare | @nancykare | Jan 24, 2020

In reply to @hopeful33250 "Hello @nancykare and welcome to Mayo Connect, Your concern about your new cardiac diagnosis is certainly..." + (show)

Thank you so much for the info. I will try to get an appointment in Jacksonville.

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