Reclast Infusions: Side-effects & Recovery time

I am looking into Vitamin D3 more carefully. It seems that recent studies indicate that it may not be as helpful to bones as previously thought. Then there's conflicting opinions about the accuracy of DEXA. There's the debate about obtaining calcium through supplements or food and how much is actually needed. I'm starting to get to the point where I am going to continue eating whatever agrees with me whenever I want to, get sunshine, go out walking, and stop fretting about my osteoporosis. Some times I feel that I am tilting at windmills in trying to find the right combo of supplements, diet, and exercise that will reverse my osteoporosis. I've had osteoporosis for years and knock on wood at the tender age of 68, I still feel good. And I want to keep it that way - mentally and emotionally too - by taking a big deep breath, stepping back, and stop worrying about sugar, anti nutrients, weighted vests, vibration platforms, a cocktail of D3, MK7, Magnesium, Boron, Vitamin C and so on, and so on, and so on. I don't know if and when I will ever fracture but for now, I am living life with OP instead of letting OP consume my life.

When you decide to make OP a priority again. there is an excellent group on Facebook called Osteoporosis Natural Remedies. There is a nutritionist, Douglas Johnson, that has posted a lot. OP is his specialty. He has a group on Facebook - if you go to the Natural Remedies group, you can get the name of his other healthy bone group. I will be getting my new DEXA scan done probably in two months - although I have not been doing everything I can, I have been doing a lot. I have been reading and studying like a wild woman trying to get a grip on OP. I'll try to let you know if I made a dent in my OP. I got to the point of fracturing and then I could have no peace until I could get better. The fracturing has stopped - but I will be interested to see if I have stopped the downward progression of my bones. The deal with getting vitamin D3 from the sun is that there is too much particulate in the air these days - you just cannot get enough from the sun unless you live at the equator. But you can try. It means not using sunblock. The supplements are not so difficult. I use those daily pill containers with morning, noon, night and bed. That way I don't have to remember. I really do not trust the prescription bone-building meds. I've heard way too many horror stories. Good luck to you! I wish you only the best.

Parrotqueen, I will be very interested to hear your bone scan results. Am praying it will show an improvement.
Here is some info on a new technology in addition to for DEXA scans that my endocrinologist sent to me: Trabecular bone score — Trabecular bone score (TBS) is a commercially available software add-on for late-generation DXA systems that has been cleared by the US Food and Drug Administration (FDA) for use as a complement to DXA analysis and clinical examination for assessment of fracture risk and monitoring the effects of therapy. TBS uses data derived from lumbar spine DXA images to generate a gray-level textural index. TBS is associated with vertebral, hip, and major osteoporotic fracture risk in postmenopausal women, with major osteoporotic fracture risk in postmenopausal women with type 2 diabetes mellitus, and with hip fracture risk and major osteoporotic fracture risk in men over age 50 years [76,77]. It can be included in the FRAX algorithm to estimate fracture risk [78].
TBS cannot diagnose osteoporosis and should not be used alone to initiate therapy. TBS does not appear to be clinically useful to monitor the skeletal effects of bisphosphonates and denosumab, but it is potentially useful as a component of monitoring the skeletal effects of teriparatide and abaloparatide, provided precision assessment has been done and the least significant change (LSC) has been calculated.

She said she would order it for me if it's available when I get my next scan. Unfortunately she's leaving her practice but thankfully has referred me to an endocrinologist who sounds great!

Blessings to all, Sunny flower

When you decide to make OP a priority again. there is an excellent group on Facebook called Osteoporosis Natural Remedies. There is a nutritionist, Douglas Johnson, that has posted a lot. OP is his specialty. He has a group on Facebook - if you go to the Natural Remedies group, you can get the name of his other healthy bone group. I will be getting my new DEXA scan done probably in two months - although I have not been doing everything I can, I have been doing a lot. I have been reading and studying like a wild woman trying to get a grip on OP. I'll try to let you know if I made a dent in my OP. I got to the point of fracturing and then I could have no peace until I could get better. The fracturing has stopped - but I will be interested to see if I have stopped the downward progression of my bones. The deal with getting vitamin D3 from the sun is that there is too much particulate in the air these days - you just cannot get enough from the sun unless you live at the equator. But you can try. It means not using sunblock. The supplements are not so difficult. I use those daily pill containers with morning, noon, night and bed. That way I don't have to remember. I really do not trust the prescription bone-building meds. I've heard way too many horror stories. Good luck to you! I wish you only the best.

@sunnyflower, It has been 18 mos since my last Reclast infusion and I'm still waiting for my referral to an endocrinologist. I am so hoping for additional guidance from the endo and appreciate the Trabecular bone score info you posted. Will add it to my "asks" at my endo visit. It is so hard to change docs. Your endo has been of real help and I'm hoping the new one will be as well.

I thought I would write to see if anyone has figured out any tips for dealing with the bone pain, muscle pain and other side affects of the Reclast. I had my 1st infusion several weeks ago and can't believe the pain. It is really hard to walk or do much. I have some of the other GI issues, chills, night sweats, etc. other side effect others have mentioned as well. My doctor didn't have any suggestions. I didn't realize how you could feel every single little and big bone after this infusion. I'm also curious to hear how long your symptoms lasted.

I thought I would write to see if anyone has figured out any tips for dealing with the bone pain, muscle pain and other side affects of the Reclast. I had my 1st infusion several weeks ago and can't believe the pain. It is really hard to walk or do much. I have some of the other GI issues, chills, night sweats, etc. other side effect others have mentioned as well. My doctor didn't have any suggestions. I didn't realize how you could feel every single little and big bone after this infusion. I'm also curious to hear how long your symptoms lasted.