Reclast Infusions: Side-effects & Recovery time

Posted by cindydee @cindydee, Mar 20, 2018

I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?

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@contentandwell Thats also what I take along with magnesium calcium citrate

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@lioness

@contentandwell Thats also what I take along with magnesium calcium citrate

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@lioness. Do you mean boron, or prunes?
JK

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About Boron
Some of you have raised concerns about claims made about boron. Thank you for flagging this.

This article provides a great overview of evidence. "Boron supplementation cannot be recommended on the basis of current research. Its basic role in metabolism of bone and the reproductive system remains unclear."
- Boron Supplementation for Low Bone Density and Osteoarthritis (2002) https://www.reliasmedia.com/articles/118545-boron-supplementation-for-low-bone-density-and-osteoarthritis

Updated info here:
- Brains, Bones, and Boron https://www.healthline.com/health/brains-bones-boron
"While boron supplements have been considered as a possible treatment for people with arthritis, more clinical evidence is needed to support this claim.
Boron is considered safe for most people, but large amounts can be harmful. There also isn’t data regarding a safe level for children younger than 1 year old. Its safety hasn’t been studied in pregnant women.
It’s important that you talk with your doctor before taking supplements. It’s unlikely that boron supplements are necessary. Most experts recommend increasing intake through dietary sources like fruits and vegetables before considering supplements.
If you don’t want to take additional boron supplements, eating foods that contain boron, like prunes, raisins, dried apricots, or avocados, can help increase boron levels."

- NIH Medline Plus: Boron https://medlineplus.gov/druginfo/natural/894.html
"When taken by mouth: Boron is LIKELY SAFE when taken by mouth in doses that don't exceed 20 mg per day. Boron is POSSIBLY UNSAFE when taken by mouth in higher doses. There is some concern that doses over 20 mg per day might harm a man's ability to father a child. Large quantities of boron can also cause poisoning. Signs of poisoning include skin inflammation and peeling, irritability, tremors, convulsions, weakness, headaches, depression, diarrhea, vomiting, and other symptoms."
"Hormone-sensitive condition such as breast cancer, uterine cancer, ovarian cancer, endometriosis, or uterine fibroids: Boron might act like estrogen. If you have any condition that might be made worse by exposure to estrogen, avoid supplemental boron or high amounts of boron from foods."

As always, please consult with your medical provider before taking supplements.

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@artscaping

Hi Giovi, @giovi. Nice to see your name in the Posted by field. I looked up this Fosteum PLUS. It appears to be that this medication is classified as food. The claims are that it will perform both functions of building bone and restoring it. The main active ingredient.....genistein is acknowledged for its purity by the NIH and they conclude the following:

"Conclusions and implications:"
The results strongly suggest that the genistein aglycone might be a new therapy for the management of postmenopausal osteoporosis in humans.

Here is the link,
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2515927/

Apparently, more studies will be required before the final review. How did you hear about this.....just wondering how the word spreads in this age of instant knowledge. Would you be interested in a clinical trial? Here's the link.
https://www.nih.gov/health-information/nih-clinical-research-trials-you.

Thanks for introducing so many to an interesting new treatment with some potential. We at Connect appreciate the sharing. How is your dexaScan score holding up? Have you had any problems getting medications because of COVID-19?

Is your heartburn under control? I have noticed that some osteoporosis medications do mention heartburn as a side effect. That would be awfully scary.

May you have happiness and the causes of happiness.
Chris

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Hi Chris, thanks for your reply. I heard about Fosteum Plus on a Facebook page and am looking into it because I am concerned about the side effects of the traditional pharma drugs - Forteo, Tymlos, Reclast, Prolia, Fosamax, Boniva etc. I am hoping to reverse or maintain my current level of osteoporosis more naturally. I take Vitamin D3 and MK7 and will be adding Magnesium. I have decided to get calcium through my foods rather than supplements. I take Protonix for my heartburn and it really has been ineffective. Since the PPIs affect bones, I am going to find a way to taper off it. Also, thank you for the links. I have read them and am researching Genistein a little more due to my ovarian cancer history many years ago. There has to be a way to treat/manage to treat OP without drugs that the risk of side effects and rebound fractures.

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@contentandwell

@lioness. Do you mean boron, or prunes?
JK

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@contentandwell I use both Boron 3 mg and eat 3 prunes a day .

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@contentandwell

@lioness. Do you mean boron, or prunes?
JK

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@contentandwell I thought I already answered this but got lost in space I guess . I take 3 mg of Boron and also eat about 3 prunes a day . I love Prunes but only so many at once .

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@lioness

@contentandwell I use both Boron 3 mg and eat 3 prunes a day .

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@lioness As @colleenyoung posted, Boron is really not recommended as a supplement. It's actually not difficult to get an adequate amount of Boron through dietary sources either.
JK

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@colleenyoung

About Boron
Some of you have raised concerns about claims made about boron. Thank you for flagging this.

This article provides a great overview of evidence. "Boron supplementation cannot be recommended on the basis of current research. Its basic role in metabolism of bone and the reproductive system remains unclear."
- Boron Supplementation for Low Bone Density and Osteoarthritis (2002) https://www.reliasmedia.com/articles/118545-boron-supplementation-for-low-bone-density-and-osteoarthritis

Updated info here:
- Brains, Bones, and Boron https://www.healthline.com/health/brains-bones-boron
"While boron supplements have been considered as a possible treatment for people with arthritis, more clinical evidence is needed to support this claim.
Boron is considered safe for most people, but large amounts can be harmful. There also isn’t data regarding a safe level for children younger than 1 year old. Its safety hasn’t been studied in pregnant women.
It’s important that you talk with your doctor before taking supplements. It’s unlikely that boron supplements are necessary. Most experts recommend increasing intake through dietary sources like fruits and vegetables before considering supplements.
If you don’t want to take additional boron supplements, eating foods that contain boron, like prunes, raisins, dried apricots, or avocados, can help increase boron levels."

- NIH Medline Plus: Boron https://medlineplus.gov/druginfo/natural/894.html
"When taken by mouth: Boron is LIKELY SAFE when taken by mouth in doses that don't exceed 20 mg per day. Boron is POSSIBLY UNSAFE when taken by mouth in higher doses. There is some concern that doses over 20 mg per day might harm a man's ability to father a child. Large quantities of boron can also cause poisoning. Signs of poisoning include skin inflammation and peeling, irritability, tremors, convulsions, weakness, headaches, depression, diarrhea, vomiting, and other symptoms."
"Hormone-sensitive condition such as breast cancer, uterine cancer, ovarian cancer, endometriosis, or uterine fibroids: Boron might act like estrogen. If you have any condition that might be made worse by exposure to estrogen, avoid supplemental boron or high amounts of boron from foods."

As always, please consult with your medical provider before taking supplements.

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@colleenyoung . There are so many supplements out there that are bad for you and not approved by the FDA. Thank you for posting the artical colleen. I sent a message to my endocrinologist about taking Boron and he hasn't gotten back to me. But I won't take anything unless it's approved my a doctor.

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Dear lilypaws - You can take all the guesswork out of purchasing supplements - I have posted this link here many times and they allow it. Consumerlab.com is a consumer watchdog group for supplements; they test for purity, strength, and such things as whether or not they open up in the body. I once spent $80 for some turmeric that would NOT open up - not even in a glass of water or a glass of vinegar for two days! There is a fee for their service which helps to fund the work - but it is not too much considering the money they can save you on a lousy supplement. For instance, many people are surprised to learn that AlgeaCal has too much lead in it and it only contains 87% of the magnesium it claims to have! The address is http://www.consumerlab.com. They also have hundreds and hundreds of articles about different supplements and what they do for your body. I've been a member for a decade and I consider it money well spent.

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@contentandwell

@lioness As @colleenyoung posted, Boron is really not recommended as a supplement. It's actually not difficult to get an adequate amount of Boron through dietary sources either.
JK

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My osteoporosis is at -5.7, so I started adding boron to my daily supplements. I couldn't believe it when ALL my symptoms of rheumatoid and osteoarthritis as well as fibromyalgia are GONE. I take between 1-12-15 mg per day in divided doses. There is a wonderful video on You Tube by Dr. Jorge Fleches (who has osteoporosis which he treats with boron). He trained at Loma Linda in California and was able to stop his osteoporosis. I know many people who take large amounts of boron for their osteoporosis and they are having very good reversals. I went from about 15 years of not being able to use my hands for very much at all - I couldn't even make a fist or put sheets on the bed! Now I can crochet and play piano again!

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