1. < Osteoporosis & Bone Health

Reclast Infusions: Side-effects & Recovery time

Posted by cindydee @cindydee, Mar 20, 2018

I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?

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giovi | @giovi | Aug 17, 2020
In reply to @parrotqueen "Dear lilypaws - You can take all the guesswork out of purchasing supplements - I have..." + (show)
@parrotqueen

Dear lilypaws - You can take all the guesswork out of purchasing supplements - I have posted this link here many times and they allow it. Consumerlab.com is a consumer watchdog group for supplements; they test for purity, strength, and such things as whether or not they open up in the body. I once spent $80 for some turmeric that would NOT open up - not even in a glass of water or a glass of vinegar for two days! There is a fee for their service which helps to fund the work - but it is not too much considering the money they can save you on a lousy supplement. For instance, many people are surprised to learn that AlgeaCal has too much lead in it and it only contains 87% of the magnesium it claims to have! The address is http://www.consumerlab.com. They also have hundreds and hundreds of articles about different supplements and what they do for your body. I've been a member for a decade and I consider it money well spent.

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Thank you for posting. I subscribed to Consumer Lab. It’s a great site!

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Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 17, 2020
In reply to @parrotqueen "My osteoporosis is at -5.7, so I started adding boron to my daily supplements. I couldn't..." + (show)
@parrotqueen

My osteoporosis is at -5.7, so I started adding boron to my daily supplements. I couldn't believe it when ALL my symptoms of rheumatoid and osteoarthritis as well as fibromyalgia are GONE. I take between 1-12-15 mg per day in divided doses. There is a wonderful video on You Tube by Dr. Jorge Fleches (who has osteoporosis which he treats with boron). He trained at Loma Linda in California and was able to stop his osteoporosis. I know many people who take large amounts of boron for their osteoporosis and they are having very good reversals. I went from about 15 years of not being able to use my hands for very much at all - I couldn't even make a fist or put sheets on the bed! Now I can crochet and play piano again!

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@parrotqueen, I appreciate your sharing your experience with supplements and the research you do to verify their contents. Knowing many people is referred to as "anecdotal evidence" and I'd like to take this opportunity to talk about anecdotal vs scientific evidence.

Most scientific and medical discoveries have their roots in anecdotes, which have led to hypotheses that are then proved by rigorous testing. The rigorous testing is "scientific evidence." This article is a wonderful explanation of anecdotal evidence, its importance and the danger of the anecdote. It also includes a great comparison table comparing between reliable and unreliable use of anecdotal evidence.

I encourage everyone to read this:
- Smart Health Choices: Making Sense of Health Advice. Chapter 8: The weakness of one https://www.ncbi.nlm.nih.gov/books/NBK63643/

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sue225 | @sue225 | Aug 17, 2020
In reply to @colleenyoung "@parrotqueen, I appreciate your sharing your experience with supplements and the research you do to verify..." + (show)
@colleenyoung

@parrotqueen, I appreciate your sharing your experience with supplements and the research you do to verify their contents. Knowing many people is referred to as "anecdotal evidence" and I'd like to take this opportunity to talk about anecdotal vs scientific evidence.

Most scientific and medical discoveries have their roots in anecdotes, which have led to hypotheses that are then proved by rigorous testing. The rigorous testing is "scientific evidence." This article is a wonderful explanation of anecdotal evidence, its importance and the danger of the anecdote. It also includes a great comparison table comparing between reliable and unreliable use of anecdotal evidence.

I encourage everyone to read this:
- Smart Health Choices: Making Sense of Health Advice. Chapter 8: The weakness of one https://www.ncbi.nlm.nih.gov/books/NBK63643/

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Thanks Colleen for this link. The sentence in this article that jumped out for me: "Anecdotal information is useful when you are looking for immediate symptomatic relief for a relatively minor condition, and there is little potential for the treatment to do harm." Thanks again for making us aware of this well-written article.

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lilypaws | @lilypaws | Aug 18, 2020
In reply to @contentandwell "@parrotqueen It is thought that Boron may be helpful for osteoporosis but from what I have..." + (show)
@contentandwell

@parrotqueen It is thought that Boron may be helpful for osteoporosis but from what I have read Borax is not recommended for human consumption, it’s pretty iffy.
https://www.webmd.com/a-to-z-guides/borax-sodium-tetraborate

I knew prunes were good for osteoporosis but did not realize it was because they contain boron. The recommended dosage I have seen is 6 prunes a day, but that’s too much for me. Despite having the typical constipation from calcium, 6 prunes causes an extreme opposite reaction! I think three is my “sweet spot”.
JK

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@VGball I sent a message to my endocrinologist and he sent back the only they boron and folate helps is if you are lose in them. Prunes does not help osteoporosis there's not enough boron in them, but you can go by @contententandwell.

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parrotqueen | @parrotqueen | Aug 18, 2020
In reply to @giovi "Thank you for posting. I subscribed to Consumer Lab. It’s a great site!" + (show)
@giovi

Thank you for posting. I subscribed to Consumer Lab. It’s a great site!

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Don't forget to look up articles about your favorite vitamins and minerals, etc. They have a vast library! I'm so happy you like it. I have been a member for many years - I was taking turmeric and they found lead in five kinds of turmeric being sold!!! It pays to be informed.

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parrotqueen | @parrotqueen | Aug 18, 2020

Doctors are usually not a good source of nutritional information, Most doctors are too busy dealing with all the diseases people on their huge caseloads have. Nutritionists are very good! My niece is a nutritionist. I am reading Ph.D. level nutrition books now - if I weren't so sick - I would pursue a master's degree in nutrition. To the best of my knowledge - there is no test for boron levels in the human body. It really removes all the arthritis pain (both osteoarthritis and rheumatoid arthritis) and fibromyalgia symptoms that usually have me sidelined.

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giovi | @giovi | Aug 18, 2020
In reply to @parrotqueen "Don't forget to look up articles about your favorite vitamins and minerals, etc. They have a..." + (show)
@parrotqueen

Don't forget to look up articles about your favorite vitamins and minerals, etc. They have a vast library! I'm so happy you like it. I have been a member for many years - I was taking turmeric and they found lead in five kinds of turmeric being sold!!! It pays to be informed.

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I am looking into Vitamin D3 more carefully. It seems that recent studies indicate that it may not be as helpful to bones as previously thought. Then there's conflicting opinions about the accuracy of DEXA. There's the debate about obtaining calcium through supplements or food and how much is actually needed. I'm starting to get to the point where I am going to continue eating whatever agrees with me whenever I want to, get sunshine, go out walking, and stop fretting about my osteoporosis. Some times I feel that I am tilting at windmills in trying to find the right combo of supplements, diet, and exercise that will reverse my osteoporosis. I've had osteoporosis for years and knock on wood at the tender age of 68, I still feel good. And I want to keep it that way - mentally and emotionally too - by taking a big deep breath, stepping back, and stop worrying about sugar, anti nutrients, weighted vests, vibration platforms, a cocktail of D3, MK7, Magnesium, Boron, Vitamin C and so on, and so on, and so on. I don't know if and when I will ever fracture but for now, I am living life with OP instead of letting OP consume my life.

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sharronschieble | @sharronschieble | Aug 18, 2020

I have reached the same point as you! It appears that the medications for osteoporosis are not without severe side effects, and merely stopping gaps which then need to be filled by another dangerous medication. I take my vitamins, eat well, walk, garden, take care of 5 year old twin grandchildren and do my best! I was letting my worry about osteoporosis consume me for a while, and I have so much more in my life than osteoporosis! I too have taken a step back, a deep breath, and then decided to get on with my life! I am 71 years old and feel great!

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merie | @merie | Aug 19, 2020
In reply to @sharronschieble "I have reached the same point as you! It appears that the medications for osteoporosis are..." + (show)
@sharronschieble

I have reached the same point as you! It appears that the medications for osteoporosis are not without severe side effects, and merely stopping gaps which then need to be filled by another dangerous medication. I take my vitamins, eat well, walk, garden, take care of 5 year old twin grandchildren and do my best! I was letting my worry about osteoporosis consume me for a while, and I have so much more in my life than osteoporosis! I too have taken a step back, a deep breath, and then decided to get on with my life! I am 71 years old and feel great!

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Thanks for your uplifting post. I too look beyond my health and keep my eyes on the goal post.

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gretchen1018 | @gretchen1018 | Oct 29, 2020
In reply to @contentandwell "@gmbritko @cindydee Having recently discovered that I have osteoporosis these discussions are very pertinent to me...." + (show)
@contentandwell

@gmbritko @cindydee Having recently discovered that I have osteoporosis these discussions are very pertinent to me. I don't have an appointment with a doctor for this until January, that was the earliest I could get with the doctor I want to go to, so I don't know which medication will be suggested.
Does reclast maintain or build bone? I am hoping to use one of the ones that can build bone. I believe that Forteo and Tymlos are the only two that can.
Your symptoms sound pretty bad. It seems as if none of these medications are without some problems so of course I am worried about that.
JK

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Reclast does not build bone. Can maintain .

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