Thyroid? Or something else? Constant internal shakiness

Hi, I'm just wondering you ever got a diagnosis? I am experiencing the exact same thing, internal tremors when I'm sleeping, only in my trunk and head. I don't feel them in my limbs. I also feel the need to get up and move around and this definitely helps.

No one can figure out what's wrong . All my blood work is fine, and indicate no thyroid issues but am in Peri menopause. Started estrogen and progesterone but hasn't helped.

I'm starting to worry about MS or Parkinsons but apparently I don't have any of the other symptoms.

It's all very frustrating and scary.

Happy St. Patrick's Day
I think everyone is Irish on this day. lol
Anyway, due to having pink eye and just starting eye meds, I'm not going back to read all your posts. So, If I say something you already addressed, I'm sorry!

I've had a sluggish thyroid for years and years. With meds, it has kept it normal. All of a sudden, about 3 weeks ago, I went to the neurologist (will tell you about it in a minute) and she ordered blood work. My thyroid number was way, way, way low. My PCP had me take it again (3 weeks later) and the result was the same. He is reducing my dosage. It must explain why I am so tired and why when I look at food I put on 10 pounds. He will redo the blood work in 3 months after I've had time to get the new dosage. I am hoping it will arrive this week from my mail away pharmacy.

That's the story about my thyroid. Now the shaking. Another story...….
This year I've had 2 spinal surgeries (Feb. my cervical spine and Oct.my lumbar spine). As far as I am concerned they were a success because it too away the chronic pain (24/7) that I experienced for over 10 years, probably closer to 15. Just a couple of months before my lumbar surgery, I noticed that when I sat, I couldn't sway my right foot, lift my toes or move my toe at all. I also noticed that although it was not the same as the right, my left foot did not feel normal, either. My neurosurgeon took ALLLLLLL SORTS OF TESTS and could not figure it out. He said if it didn't improve after the lumbar surgery, he wanted me to see a neurologist.

Not only did my symptoms NOT improve, they were worse. I needed to use a cane to walk and I had s few falls. This is something you don't want to do after spine surgery. Off to the neurologist I went...….

During my preliminary exam she noticed my hands quivered. I did notice that starting to happen, too. My mom, son and cousin also have (or had) quivering hands. It did not prevent any of them from writing or doing anything. As a matter of fact, my mother was a typist and my son does nuclear medicine tests that require him to give injections. Neither had a problem. Then, the doctor looked in my mouth. She noticed the roof of my mouth was quivering, too. I never felt that.

She reviewed my MRI (ordered by the neurosurgeon) and noticed that a bunch of nerves are clumping together. I also still have stenosis. However, NONE of these hurt. The doctor who performed the test said I have SIGNIFICANT nerve damage coming from my lumbar spine and S1. That is all he would say. I meet with the neurologist Tuesday, followed by an appointment with the neurosurgeon. It is my hope that they will be able to give me a diagnosis (more than neuropathy in my feet) and come up with some sort of a plan of action to slow down the neuropathy.

The reason I al telling you all this is because I have some of the similar symptoms and I wanted you to know about who I have seen and tests they performed. Will share more after my appointments; that is if they give me more information.

Happy Sunday...…
Ronnie (GRANDMAr)

Hi, Over a year later , 4 more Drs after being hospitalized for chest pain for 4 days and still no answers. Referred me to Shands Gainsville Fl and did find a dr for the chest pain ,4 heart meds later for possible micro vascular disease causing heart spasms as for the vibration it’s still going strong driving me crazy. I was switched from Gabapentin to Lyrica this last month but really no change just worse headaches. My neurologist referred me to Mayo Jacksonville Fl so I wait for an appointment . We will see !!!

Hi I also have internal shakiness but I call it electricity. Not sure if we have the same symptom. I have it in my legs (calves) bad and over the last few years in my hands. It gets much worse if I don't sleep well. I also need pain killers for it as the vibrations don't stop and the shakiness is also painful after I start feeling it for 5 minutes. Nothing else has helped me. I am also hypothyroid. It was also spreading to the bottom of my lumbar. I had that for a week and I did read on line that there is not enough calcium in your body and the nerves are not connecting and can cause this tremor. This person recommended taking Tums - since I was desperate for it not to be in another spot in my body I did take Tums , the first 2 weeks every day just 2 or 3 at the most. And believe it or not that stopped the vibrations in my lower back. Who knows? I now take Tums about 3 or 4 times a week to make sure, if they are helping to stop this weird electricity, that I have enough calcium in my system. Maybe it is part of a calcium issue? NO dr. in 20 years has any idea why this happened but it happened to me at the exact same time my thyroid went. I am sorry that this is going on at only 28, but maybe the Tums might help you.

This reminds me of my mother whom I couldn't convince her that her heart is a muscle. She thought she should save her heart so it would last longer. Then she wouldn't buy fresh milk because she couldn't use it up before it got bad. But she would eat vegetables from my garden, so that was good. I managed to get her to walk in the summer for a couple of years, but then the arthritis hurt to much for her. The heart needs exercise like the rest of the body. Dorisena

Good morning @hope58 @jewles63 @khali I found this article about internal tremors that might be interesting. But, please, don’t get me wrong; I’m NOT saying that anyone one of these diseases! But, maybe there would be something of interest. https://www.medicalnewstoday.com/articles/322217
Have the doctors said anything? Maybe keep a log with time of day, location of tremors, how long they last, etc. Then you can show it to the doctors. Good luck to you!

Have they tested your calcium levels? Calcium is necessary for the movement of the muscles, including your heart (which is a muscle). Without enough calcium your heart can stop...