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Long-term Antibiotics for Bronchiectasis & MAC

Posted by pejohnston @pejohnston, Feb 26, 2018

Diagnosed w/Bronchiectasis in 2008, MAC in 2011 and have been on many medications since then. Under control for several years, but reinfected a couple of years ago while on antibiotics. My body became somewhat immune to some of meds I was on. I am now taking several more drugs that have pretty significant side affects. Fortunately, I've been okay with them. Anyone else been on antibiotics for this length of time?

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Aug 13, 2020
In reply to @janrn1 "can you tell me which 3 antibiotics you alternate with? Augmentin is one, but I do..." + (show)
@janrn1

can you tell me which 3 antibiotics you alternate with? Augmentin is one, but I do not know the others. Thank you, I would love to be able to take this to my Dr's appointment tomorrow.

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Hi Jan. please click on my photo icon at the left to see the three drugs used and duration. In a nutshell: doxycycline, ciprofloxacin, and inhaled tobramycin. Nebulizing 7% saline (sodium chloride) really helps to keep the mac down or gone. Be sure to ask your dr about that. Good luck with your dr visit.

REPLY
janrn1 | @janrn1 | Aug 13, 2020
In reply to @windwalker "@pejohnston , Hello, and welcome to the Connect community. Do you have a a first name..." + (show)
@windwalker

@pejohnston , Hello, and welcome to the Connect community. Do you have a a first name that you would like to use? To answer your question about long term antibiotics; you will see that many of our members are on a long term regimine. Most that are taking antibiotics are taking the 'Big 3' cocktail. People usually are on them anywhere from 18 months to 3 years. I am on a different kind of ongoing regimine. I have been taking alternating singular antibiotics on alternating months. I have been doing this since 2013. It is known as a prophylactic approach. My doctor explained that he liked this approach because it is more tolerable for the organs and prevents the mac from becoming resistant to the antibiotics.

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Can you tell me which 3 antibiotics you take for MAC?

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Aug 13, 2020
In reply to @ckscoville "I don’t have MAC; instead I have an Achromobacter infection with my Bronchiectasis and am on..." + (show)
@ckscoville

I don’t have MAC; instead I have an Achromobacter infection with my Bronchiectasis and am on a rotation of these 3 antibiotics: Augmentin, Doxycycline, and Bactrim.

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Hi ckscoville, I was curious about your particular organism, so I looked it up. I thought this tidbit about antibiotics might be useful for you. It is usually resistant to a variety of antibiotics including penicillins, ; cephalosporins, quinolones, and aminoglycosides. Ampicillin and carbenicillin, which are penicillins, are an exception. It is variably susceptible to tetracyclines, chloramphenicol, trimethoprim-sulfamethoxazole, and colistin.[7]

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1 reply
ckscoville | @ckscoville | Aug 14, 2020
In reply to @windwalker "Hi ckscoville, I was curious about your particular organism, so I looked it up. I thought..." + (show)
@windwalker

Hi ckscoville, I was curious about your particular organism, so I looked it up. I thought this tidbit about antibiotics might be useful for you. It is usually resistant to a variety of antibiotics including penicillins, ; cephalosporins, quinolones, and aminoglycosides. Ampicillin and carbenicillin, which are penicillins, are an exception. It is variably susceptible to tetracyclines, chloramphenicol, trimethoprim-sulfamethoxazole, and colistin.[7]

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Thanks. I have the feeling that my doctors at Mayo are still trying to figure out the best approach. The rotation of different antibiotics is what they just started in July, but I've been dealing with this bacteria for at least a year and a half.

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