Welcome to Connect. We are glad you found us. It's a great place to learn what other members with similar health problems are doing for treatments. We have a few discussion on Lichen sclerosis that you may wish to view:
Good morning @ret18. Several things I can tell you about this disease begin with getting rid of any soaps, laundry soap included that contain dyes and perfumes. These, for me, were true irritants. Keep the area clean and most importantly dry. Also, keep in mind that steroids could thin the skin over time so ask your gynecologist to either give you a mix of topical ointments or find a doctor that specializes in this disease. I started, luckily, with an oncologist who helped me TREMENDOUSLY. Because I carried my disease around, untreated, for so long my skin became paper thin and I had constant fractures of the skin that were very painful and caused scarring. Most recently, I found that CO2 laser therapy can help and it certainly has for me. Please don't hesitate to message me. I'd be happy to help in any way I can. Perhaps I can at least point you in the right direction. Keep in mind, everyone is different and just because something works for one, doesn't necessarily mean it will work for all. ***Keep your head up and I promise you there is help out there!!***
Good morning @ret18. Several things I can tell you about this disease begin with getting rid of any soaps, laundry soap included that contain dyes and perfumes. These, for me, were true irritants. Keep the area clean and most importantly dry. Also, keep in mind that steroids could thin the skin over time so ask your gynecologist to either give you a mix of topical ointments or find a doctor that specializes in this disease. I started, luckily, with an oncologist who helped me TREMENDOUSLY. Because I carried my disease around, untreated, for so long my skin became paper thin and I had constant fractures of the skin that were very painful and caused scarring. Most recently, I found that CO2 laser therapy can help and it certainly has for me. Please don't hesitate to message me. I'd be happy to help in any way I can. Perhaps I can at least point you in the right direction. Keep in mind, everyone is different and just because something works for one, doesn't necessarily mean it will work for all. ***Keep your head up and I promise you there is help out there!!***
Hello @kitten92, Thank you for sharing what has helped you. This is valuable information and I'm sure will help @ret18. To protect your privacy, I've asked a moderator to remove your personal email address. It's much safer to send a private message to another member by clicking on their Connect name @name and clicking the Send Private Message link at the bottom of their profile description. Then you can share the personal email address in the private message if you want.
Good morning @ret18. Several things I can tell you about this disease begin with getting rid of any soaps, laundry soap included that contain dyes and perfumes. These, for me, were true irritants. Keep the area clean and most importantly dry. Also, keep in mind that steroids could thin the skin over time so ask your gynecologist to either give you a mix of topical ointments or find a doctor that specializes in this disease. I started, luckily, with an oncologist who helped me TREMENDOUSLY. Because I carried my disease around, untreated, for so long my skin became paper thin and I had constant fractures of the skin that were very painful and caused scarring. Most recently, I found that CO2 laser therapy can help and it certainly has for me. Please don't hesitate to message me. I'd be happy to help in any way I can. Perhaps I can at least point you in the right direction. Keep in mind, everyone is different and just because something works for one, doesn't necessarily mean it will work for all. ***Keep your head up and I promise you there is help out there!!***
Good morning @ret18. Several things I can tell you about this disease begin with getting rid of any soaps, laundry soap included that contain dyes and perfumes. These, for me, were true irritants. Keep the area clean and most importantly dry. Also, keep in mind that steroids could thin the skin over time so ask your gynecologist to either give you a mix of topical ointments or find a doctor that specializes in this disease. I started, luckily, with an oncologist who helped me TREMENDOUSLY. Because I carried my disease around, untreated, for so long my skin became paper thin and I had constant fractures of the skin that were very painful and caused scarring. Most recently, I found that CO2 laser therapy can help and it certainly has for me. Please don't hesitate to message me. I'd be happy to help in any way I can. Perhaps I can at least point you in the right direction. Keep in mind, everyone is different and just because something works for one, doesn't necessarily mean it will work for all. ***Keep your head up and I promise you there is help out there!!***
Hi @kitten92, you’ll notice that I removed your personal email address from your message above. Connect is a public website, so we recommend members use the private message to exchange personal contact info. Thanks.
Good morning @ret18. Several things I can tell you about this disease begin with getting rid of any soaps, laundry soap included that contain dyes and perfumes. These, for me, were true irritants. Keep the area clean and most importantly dry. Also, keep in mind that steroids could thin the skin over time so ask your gynecologist to either give you a mix of topical ointments or find a doctor that specializes in this disease. I started, luckily, with an oncologist who helped me TREMENDOUSLY. Because I carried my disease around, untreated, for so long my skin became paper thin and I had constant fractures of the skin that were very painful and caused scarring. Most recently, I found that CO2 laser therapy can help and it certainly has for me. Please don't hesitate to message me. I'd be happy to help in any way I can. Perhaps I can at least point you in the right direction. Keep in mind, everyone is different and just because something works for one, doesn't necessarily mean it will work for all. ***Keep your head up and I promise you there is help out there!!***
this is a different topic but i think worthy of mentioning. Upon my first visit to Dr. so and so i was told that if i do not take the prescribed medication for my RA and PA he will discharge me as his patient. The medication was one of the new ones being advertised on TV. with horrible side effects. So now i am still looking fo a Rheumatologist.
Also, supplements such as Vitamin C and Marine Collagen Peptides are very good for keeping your skin healthy, among other great benefits they both provide. Loose clothing to prevent friction which will cause itching to worsen will be of help to you. *Keep your chin up. Things DO get better. Try, as hard as it is, to be patient. 🙂
What I use after every bathroom visit is a bidet bottle filled with warm water to flush away what is left on my private area. I feel cleaner doing this. My LS is now under control and I want to keep it that way.
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Hello @ret18,
Welcome to Connect. We are glad you found us. It's a great place to learn what other members with similar health problems are doing for treatments. We have a few discussion on Lichen sclerosis that you may wish to view:
Lichen sclerosis: http://mayocl.in/2qfR0YN
Lichen Sclerosus: http://mayocl.in/2qR0zBk
In the meantime, I’d also like to introduce you to @kitten92 @mzleah @danybegood1 @tropicallady1276 @momij who have all discussed this condition, and I’m hoping they will share their insights with you.
Here is some information from Mayo Clinic: http://mayocl.in/1P0u1JG
@ret18, can you share which area of your body it has affected, and what symptoms led to the diagnosis?
John
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2 ReactionsGood morning @ret18. Several things I can tell you about this disease begin with getting rid of any soaps, laundry soap included that contain dyes and perfumes. These, for me, were true irritants. Keep the area clean and most importantly dry. Also, keep in mind that steroids could thin the skin over time so ask your gynecologist to either give you a mix of topical ointments or find a doctor that specializes in this disease. I started, luckily, with an oncologist who helped me TREMENDOUSLY. Because I carried my disease around, untreated, for so long my skin became paper thin and I had constant fractures of the skin that were very painful and caused scarring. Most recently, I found that CO2 laser therapy can help and it certainly has for me. Please don't hesitate to message me. I'd be happy to help in any way I can. Perhaps I can at least point you in the right direction. Keep in mind, everyone is different and just because something works for one, doesn't necessarily mean it will work for all. ***Keep your head up and I promise you there is help out there!!***
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8 ReactionsHello @kitten92, Thank you for sharing what has helped you. This is valuable information and I'm sure will help @ret18. To protect your privacy, I've asked a moderator to remove your personal email address. It's much safer to send a private message to another member by clicking on their Connect name @name and clicking the Send Private Message link at the bottom of their profile description. Then you can share the personal email address in the private message if you want.
Thank you,
John
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1 ReactionThank you!!! Appreciate you looking to keep me safe. 🙂
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3 ReactionsHi @kitten92, you’ll notice that I removed your personal email address from your message above. Connect is a public website, so we recommend members use the private message to exchange personal contact info. Thanks.
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2 ReactionsYes ma'am. Thank you!!!
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1 Reactionthis is a different topic but i think worthy of mentioning. Upon my first visit to Dr. so and so i was told that if i do not take the prescribed medication for my RA and PA he will discharge me as his patient. The medication was one of the new ones being advertised on TV. with horrible side effects. So now i am still looking fo a Rheumatologist.
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1 ReactionThank you so much for any information that you have. Ret18
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1 ReactionAlso, supplements such as Vitamin C and Marine Collagen Peptides are very good for keeping your skin healthy, among other great benefits they both provide. Loose clothing to prevent friction which will cause itching to worsen will be of help to you. *Keep your chin up. Things DO get better. Try, as hard as it is, to be patient. 🙂
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Like -
Helpful -
Hug
1 ReactionWhat I use after every bathroom visit is a bidet bottle filled with warm water to flush away what is left on my private area. I feel cleaner doing this. My LS is now under control and I want to keep it that way.
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Like -
Helpful -
Hug
4 Reactions