I have vaginal Lichen Scelrosis. I went to many doctors through the years who did not help me. I finally found Dr.Nyirjesy in Drexel University College of Medicine in Philadelphia PA who got my Lichen Sclerosis under control after a few months. It can be on other parts of the body but not in my case. There were no over the counter creams, etc but none worked for me.
I have been using a prescription, Clobetasol, from a gynecologist for at least 4 years,. This keeps the itching under control. I'm not sure if using this for many more years is safe. Has anyone been using this ointment for a long period of time and what are your thoughts on this? It seems there is not a lot of info about this condition out there. I never could find out what kind of disease it is. Is it autoimmune?
I have been using a prescription, Clobetasol, from a gynecologist for at least 4 years,. This keeps the itching under control. I'm not sure if using this for many more years is safe. Has anyone been using this ointment for a long period of time and what are your thoughts on this? It seems there is not a lot of info about this condition out there. I never could find out what kind of disease it is. Is it autoimmune?
Lichen Sclerosis is an autoimmune condition. I once used Clobetasol for a week or so but did not work for me. I now use Betamethasone DP AUG 0.05% and Vagifem 10 MCG-- twice a week. It took a few months to get it to where it came under control. Also, Amitripline 10mg every day. Amitripline is used for depression but it was learned that it helped with LS.
I have been using a prescription, Clobetasol, from a gynecologist for at least 4 years,. This keeps the itching under control. I'm not sure if using this for many more years is safe. Has anyone been using this ointment for a long period of time and what are your thoughts on this? It seems there is not a lot of info about this condition out there. I never could find out what kind of disease it is. Is it autoimmune?
I have been using a prescription, Clobetasol, from a gynecologist for at least 4 years,. This keeps the itching under control. I'm not sure if using this for many more years is safe. Has anyone been using this ointment for a long period of time and what are your thoughts on this? It seems there is not a lot of info about this condition out there. I never could find out what kind of disease it is. Is it autoimmune?
Thanks for the reply & info. Clobetasol is all I've ever used and it does work for me but I began thinking it may not be safe over many years. I had such a large amount of ointment prescribed, I've not gone back to the gynecologist. Seems to me many on this site have many more problems controlling this condition than I do, although I know it will not go away on it's own, so must continue to treat it.
Loose clothing, daily showers, coconut oil, and steroid cream all help so much that most of the time you don't really know that you have this disease. Thanks for all the input on this. If anyone has more info that would help someone please post.
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I need to know more about lichen sclerosis and the best ointments to use. Also, if it's related to any other skin conditions you know of.
You probably need to go to a doctor for medication and direction. LS is a pain but the itching can be controlled.
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1 ReactionI have vaginal Lichen Scelrosis. I went to many doctors through the years who did not help me. I finally found Dr.Nyirjesy in Drexel University College of Medicine in Philadelphia PA who got my Lichen Sclerosis under control after a few months. It can be on other parts of the body but not in my case. There were no over the counter creams, etc but none worked for me.
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Like -
Helpful -
Hug
1 ReactionI have been using a prescription, Clobetasol, from a gynecologist for at least 4 years,. This keeps the itching under control. I'm not sure if using this for many more years is safe. Has anyone been using this ointment for a long period of time and what are your thoughts on this? It seems there is not a lot of info about this condition out there. I never could find out what kind of disease it is. Is it autoimmune?
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Like -
Helpful -
Hug
1 ReactionLichen Sclerosis is an autoimmune condition. I once used Clobetasol for a week or so but did not work for me. I now use Betamethasone DP AUG 0.05% and Vagifem 10 MCG-- twice a week. It took a few months to get it to where it came under control. Also, Amitripline 10mg every day. Amitripline is used for depression but it was learned that it helped with LS.
@suzeebee, I did find the following information that may provide an answer for your question.
What Are the Long-Term Effects of Clobetasol Propionate?
-- http://skin.emedtv.com/clobetasol-propionate/clobetasol-propionate-side-effects-p3.html
John
Hi John,
Thanks for this information. It will be very helpful to me.
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1 ReactionThanks for the reply & info. Clobetasol is all I've ever used and it does work for me but I began thinking it may not be safe over many years. I had such a large amount of ointment prescribed, I've not gone back to the gynecologist. Seems to me many on this site have many more problems controlling this condition than I do, although I know it will not go away on it's own, so must continue to treat it.
-
Like -
Helpful -
Hug
1 ReactionLoose clothing, daily showers, coconut oil, and steroid cream all help so much that most of the time you don't really know that you have this disease. Thanks for all the input on this. If anyone has more info that would help someone please post.
-
Like -
Helpful -
Hug
1 ReactionSuggestions for relief ???