I have been using a prescription, Clobetasol, from a gynecologist for at least 4 years,. This keeps the itching under control. I'm not sure if using this for many more years is safe. Has anyone been using this ointment for a long period of time and what are your thoughts on this? It seems there is not a lot of info about this condition out there. I never could find out what kind of disease it is. Is it autoimmune?
Sue G
I have been using Clobetadol ointment for about 10 yrs. I get lesions, itching, and burning. I use the Clobetasol twice a week. If I have a bad flare, I use it every day for three or four days.
Tammy 🙂
Hi, im 33 and just got diagnosed with lichens sclerosis last year. I got inflamed and itchy so I went back on my steroid cream, after a week of not clearing up, I made appointment with my gyno. For some reason she has been off with my care, and I think she is young and spread too thin. She dismissed me, saying she wished she had a magic wand, but she doesnt. Hmm. Thats scary, i left confused. I started treating it with cream for yeast infection. It is helping but may need a pill. I tried to show her a place on my labia that had bled, and also dismissed this. Well the other night it broke open again and bled. It is red and irritated. My doctor has thrown me for a loup with her behavior and im in a pickle of going back or finding someone else. Im too tired for any drama. Im just not sure how serious this is. I will watch it. Im just very mad at the situation, as I am trying to focus on other health issues. Dont know if anyone can relate. Im just so stressed about everything and i want to hibernate in my bed and take a long break.
Hi, im 33 and just got diagnosed with lichens sclerosis last year. I got inflamed and itchy so I went back on my steroid cream, after a week of not clearing up, I made appointment with my gyno. For some reason she has been off with my care, and I think she is young and spread too thin. She dismissed me, saying she wished she had a magic wand, but she doesnt. Hmm. Thats scary, i left confused. I started treating it with cream for yeast infection. It is helping but may need a pill. I tried to show her a place on my labia that had bled, and also dismissed this. Well the other night it broke open again and bled. It is red and irritated. My doctor has thrown me for a loup with her behavior and im in a pickle of going back or finding someone else. Im too tired for any drama. Im just not sure how serious this is. I will watch it. Im just very mad at the situation, as I am trying to focus on other health issues. Dont know if anyone can relate. Im just so stressed about everything and i want to hibernate in my bed and take a long break.
Hello, @januaryjane - welcome to Mayo Clinic Connect. I'm sorry your care for this condition thus far has left you feeling confused and stressed. I moved your discussion and combined it with @ret18's discussion similarly titled, "Lichen sclerosis anyone." I did this so you could meet @ret18@suzeebee227@misssassy@tropicallady1276@tamarrillo2 and other members who have discussed lichen sclerosis. Hoping they will have some input for you on the seriousness of the situation from their own experiences and can help you get some answers.
How long have you used the cream the doctor prescribed? Do you have a primary care provider you could also check with on your situation?
Hi, im 33 and just got diagnosed with lichens sclerosis last year. I got inflamed and itchy so I went back on my steroid cream, after a week of not clearing up, I made appointment with my gyno. For some reason she has been off with my care, and I think she is young and spread too thin. She dismissed me, saying she wished she had a magic wand, but she doesnt. Hmm. Thats scary, i left confused. I started treating it with cream for yeast infection. It is helping but may need a pill. I tried to show her a place on my labia that had bled, and also dismissed this. Well the other night it broke open again and bled. It is red and irritated. My doctor has thrown me for a loup with her behavior and im in a pickle of going back or finding someone else. Im too tired for any drama. Im just not sure how serious this is. I will watch it. Im just very mad at the situation, as I am trying to focus on other health issues. Dont know if anyone can relate. Im just so stressed about everything and i want to hibernate in my bed and take a long break.
Hi, im 33 and just got diagnosed with lichens sclerosis last year. I got inflamed and itchy so I went back on my steroid cream, after a week of not clearing up, I made appointment with my gyno. For some reason she has been off with my care, and I think she is young and spread too thin. She dismissed me, saying she wished she had a magic wand, but she doesnt. Hmm. Thats scary, i left confused. I started treating it with cream for yeast infection. It is helping but may need a pill. I tried to show her a place on my labia that had bled, and also dismissed this. Well the other night it broke open again and bled. It is red and irritated. My doctor has thrown me for a loup with her behavior and im in a pickle of going back or finding someone else. Im too tired for any drama. Im just not sure how serious this is. I will watch it. Im just very mad at the situation, as I am trying to focus on other health issues. Dont know if anyone can relate. Im just so stressed about everything and i want to hibernate in my bed and take a long break.
Hi! I have had Lichen Sclerosis for 15 years or more. My first suggestion is that you find a new doctor. There are prescription medications for the condition and there’s no excuse for your doctor blowing you off like that. I use Clobetasol Propoipinate two - three times a week and it has helped greatly. I used to have areas break open and bleed like you mentioned. Since being on the Clobetasol, I don’t have that happen anymore. With the right treatment it gets better so hang in there. Take Care. 😀
Hi! I have had Lichen Sclerosis for 15 years or more. My first suggestion is that you find a new doctor. There are prescription medications for the condition and there’s no excuse for your doctor blowing you off like that. I use Clobetasol Propoipinate two - three times a week and it has helped greatly. I used to have areas break open and bleed like you mentioned. Since being on the Clobetasol, I don’t have that happen anymore. With the right treatment it gets better so hang in there. Take Care. 😀
Yes, ive been on this cream on and off, but since it is a very strong steroid my dr suggested to quit using it. She made 2 suggestions about either using a topical estrogen cream or changing my birth control. I apply baby aquaphor when i seem too dry and be very careful. I think i have another yeast infection, which seems impossible, i dont take baths or been in any type of body of water, etc etc. I know things are connected, i just need to get ahold of someone really knowledgeable, and cares. Unfortunately i have to travel hours to see any sort of specialist. I just want to figure this out
Hello, @januaryjane - welcome to Mayo Clinic Connect. I'm sorry your care for this condition thus far has left you feeling confused and stressed. I moved your discussion and combined it with @ret18's discussion similarly titled, "Lichen sclerosis anyone." I did this so you could meet @ret18@suzeebee227@misssassy@tropicallady1276@tamarrillo2 and other members who have discussed lichen sclerosis. Hoping they will have some input for you on the seriousness of the situation from their own experiences and can help you get some answers.
How long have you used the cream the doctor prescribed? Do you have a primary care provider you could also check with on your situation?
Hi, ive been on the cream on and off maybe a year, give or take. I live where there are not many choices in drs. I dunno, i will have to call her again, but be more direct. Looking for a gp, as mine has retired. They are hard to find too, good ones.
Thanks for all the good information. I’ve been on Betamethasone. I’ve found doctors would rather not deal with it...they want to be in and out to move onto the next patient. Still looking for a doctor.
Yes, ive been on this cream on and off, but since it is a very strong steroid my dr suggested to quit using it. She made 2 suggestions about either using a topical estrogen cream or changing my birth control. I apply baby aquaphor when i seem too dry and be very careful. I think i have another yeast infection, which seems impossible, i dont take baths or been in any type of body of water, etc etc. I know things are connected, i just need to get ahold of someone really knowledgeable, and cares. Unfortunately i have to travel hours to see any sort of specialist. I just want to figure this out
Hi! The Clobetasol propoipinate is the only thing that has worked well for me. I was miserable before my Primary doctor prescribed it. You do have to be careful to not use more than couple times per week so it doesn’t thin the tissues. I My Gynecologist was prescribing me flucinonide but that just didn’t work well enough.
Hi! The Clobetasol propoipinate is the only thing that has worked well for me. I was miserable before my Primary doctor prescribed it. You do have to be careful to not use more than couple times per week so it doesn’t thin the tissues. I My Gynecologist was prescribing me flucinonide but that just didn’t work well enough.
I was diagnosed with Lichen sclerosis over 30 years ago. Hard to know what to do with me since all the steroid ointments cause more irritation than the l.s. Needless to say, the condition has worsened over the years. Have gone back to sporadically using the clobetasol. Have been seen by dermatologists and gynecologist whose area is vulvar skin conditions. I also keep forgetting to apply moisturizing oils like coconut oil or olive oil. (I find unsalted butter feels great and the gynecologist had no problem with that). She did reccomend keeping the area from being dry.So far nothing bad has developed (cancer of the vulva). Have tried other steroids and that other ointment (tachcrolimus): even worse reaction. It's a challenging situation!
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Sue G
I have been using Clobetadol ointment for about 10 yrs. I get lesions, itching, and burning. I use the Clobetasol twice a week. If I have a bad flare, I use it every day for three or four days.
Tammy 🙂
Hi, im 33 and just got diagnosed with lichens sclerosis last year. I got inflamed and itchy so I went back on my steroid cream, after a week of not clearing up, I made appointment with my gyno. For some reason she has been off with my care, and I think she is young and spread too thin. She dismissed me, saying she wished she had a magic wand, but she doesnt. Hmm. Thats scary, i left confused. I started treating it with cream for yeast infection. It is helping but may need a pill. I tried to show her a place on my labia that had bled, and also dismissed this. Well the other night it broke open again and bled. It is red and irritated. My doctor has thrown me for a loup with her behavior and im in a pickle of going back or finding someone else. Im too tired for any drama. Im just not sure how serious this is. I will watch it. Im just very mad at the situation, as I am trying to focus on other health issues. Dont know if anyone can relate. Im just so stressed about everything and i want to hibernate in my bed and take a long break.
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2 ReactionsHello, @januaryjane - welcome to Mayo Clinic Connect. I'm sorry your care for this condition thus far has left you feeling confused and stressed. I moved your discussion and combined it with @ret18's discussion similarly titled, "Lichen sclerosis anyone." I did this so you could meet @ret18 @suzeebee227 @misssassy @tropicallady1276 @tamarrillo2 and other members who have discussed lichen sclerosis. Hoping they will have some input for you on the seriousness of the situation from their own experiences and can help you get some answers.
How long have you used the cream the doctor prescribed? Do you have a primary care provider you could also check with on your situation?
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2 Reactions@januaryjane I know nothing about this condition, but if my doctor seemed that disinterested, I would definitely find a new doctor.
JK
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2 ReactionsHi! I have had Lichen Sclerosis for 15 years or more. My first suggestion is that you find a new doctor. There are prescription medications for the condition and there’s no excuse for your doctor blowing you off like that. I use Clobetasol Propoipinate two - three times a week and it has helped greatly. I used to have areas break open and bleed like you mentioned. Since being on the Clobetasol, I don’t have that happen anymore. With the right treatment it gets better so hang in there. Take Care. 😀
-
Like -
Helpful -
Hug
4 ReactionsYes, ive been on this cream on and off, but since it is a very strong steroid my dr suggested to quit using it. She made 2 suggestions about either using a topical estrogen cream or changing my birth control. I apply baby aquaphor when i seem too dry and be very careful. I think i have another yeast infection, which seems impossible, i dont take baths or been in any type of body of water, etc etc. I know things are connected, i just need to get ahold of someone really knowledgeable, and cares. Unfortunately i have to travel hours to see any sort of specialist. I just want to figure this out
Hi, ive been on the cream on and off maybe a year, give or take. I live where there are not many choices in drs. I dunno, i will have to call her again, but be more direct. Looking for a gp, as mine has retired. They are hard to find too, good ones.
Thanks for all the good information. I’ve been on Betamethasone. I’ve found doctors would rather not deal with it...they want to be in and out to move onto the next patient. Still looking for a doctor.
Hi! The Clobetasol propoipinate is the only thing that has worked well for me. I was miserable before my Primary doctor prescribed it. You do have to be careful to not use more than couple times per week so it doesn’t thin the tissues. I My Gynecologist was prescribing me flucinonide but that just didn’t work well enough.
I was diagnosed with Lichen sclerosis over 30 years ago. Hard to know what to do with me since all the steroid ointments cause more irritation than the l.s. Needless to say, the condition has worsened over the years. Have gone back to sporadically using the clobetasol. Have been seen by dermatologists and gynecologist whose area is vulvar skin conditions. I also keep forgetting to apply moisturizing oils like coconut oil or olive oil. (I find unsalted butter feels great and the gynecologist had no problem with that). She did reccomend keeping the area from being dry.So far nothing bad has developed (cancer of the vulva). Have tried other steroids and that other ointment (tachcrolimus): even worse reaction. It's a challenging situation!