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ret18 (@ret18)

Treatments for Lichen sclerosis besides steroids

Autoimmune Diseases | Last Active: Sep 6 7:59am | Replies (154)

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Good morning @ret18. Several things I can tell you about this disease begin with getting rid of any soaps, laundry soap included that contain dyes and perfumes. These, for me, were true irritants. Keep the area clean and most importantly dry. Also, keep in mind that steroids could thin the skin over time so ask your gynecologist to either give you a mix of topical ointments or find a doctor that specializes in this disease. I started, luckily, with an oncologist who helped me TREMENDOUSLY. Because I carried my disease around, untreated, for so long my skin became paper thin and I had constant fractures of the skin that were very painful and caused scarring. Most recently, I found that CO2 laser therapy can help and it certainly has for me. Please don’t hesitate to message me. I’d be happy to help in any way I can. Perhaps I can at least point you in the right direction. Keep in mind, everyone is different and just because something works for one, doesn’t necessarily mean it will work for all. ***Keep your head up and I promise you there is help out there!!***

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Replies to "Good morning @ret18. Several things I can tell you about this disease begin with getting rid..."

Hello @kitten92, Thank you for sharing what has helped you. This is valuable information and I’m sure will help @ret18. To protect your privacy, I’ve asked a moderator to remove your personal email address. It’s much safer to send a private message to another member by clicking on their Connect name @name and clicking the Send Private Message link at the bottom of their profile description. Then you can share the personal email address in the private message if you want.

Thank you,

Thank you!!! Appreciate you looking to keep me safe. 🙂

Hi @kitten92, you’ll notice that I removed your personal email address from your message above. Connect is a public website, so we recommend members use the private message to exchange personal contact info. Thanks.

Yes ma’am. Thank you!!!

I had my first laser treatment this week. The first of a series of 3. I’m praying that this will stop the progression of this difficult condition. I’ll be back to inform everyone of the outcome.

CO2 laser therapy
How often do you have it done?