Kidney transplant - The Journey from the Donor's Side
I'm headed to Rochester on the 10th for surgery on the 12th. I'm excited and nervous! I didn't know the recipient but have gotten to "meet" her and some of her daughters through phone calls and emails.
I've had labs done at my doctor's office and went to Mayo a few weeks ago for a million more tests. My case was presented to the donor board a few days before Christmas and I was approved and notified the same day. It seems like everything took so long and now is going so fast.
I'm interested in hearing from donors but haven't had a lot of luck. It seems like the recipients are the ones who post the most, which gives me some info and reassurance but it would be nice to hear from the other side too.
Interested in more discussions like this? Go to the Transplants Support Group.
@mauraacro Congratulations for a successful donation and saving someone's life!!! All the best for a smooth recovery.
@mauraacro Thank you for sharing! I will definitely be referring potential donors for me to this informative conversation so your selfless deed will continue to help.
@onecentwaish This is so wonderful! I love how the chains impact so many more people. It's great that it can work "around" your work schedule. Again, how did you learn about living donors and what lead you to making such a sacrifice?
I'm in end stage renal disease (I have Polycystic Kidney Disease) and am not quite on the waitlist (probably some time this calendar year) but I do know the challenge of eating low salt. I thought I did it for years but when I joined a study at Mayo I learned there was so much more I could do. The simple things are not salt on your food after it is cooked (my exception is corn on the cob during the season) and I always half the amount of salt a recipe calls for (you don't really notice the difference). Garlic is a great seasoner in place of salt if that pleases your taste buds. Fresh food vs. processed is ideal but If you buy canned food try to find low salt options which are becoming more prevalent. Also, you can drain canned food (i.e. beans, corn) and rinse it to help reduce the salt. Honestly, the hardest time to control salt intake is eating out. I've concluded one reason that restaurant food (fast food or a fancy place) tastes so good is because they use A LOT of salt!
Best of luck! People like you give me hope. THANK YOU!
@IWantToBelieve, I think you were directing several of your recent posts in this discussion to @onecentwalsh.
Thanks so much. I will ask when and if I think of anything!
Thanks for all the info. I began my donation story trying to be a donor for an acquaintance. Her daughter ended up being a match and they have surgery scheduled for may 16th!!!
So, I figured that I had gotten that far, and I felt very called to be donating, so I continued with the process as a non directed donor.
As for eating, I've been a member of weight watchers for fives years, having lost 65 lbs the first two and have maintained my goal weight for three. I eat very well, mostly whole foods, lots of veggies and fruit abd protein. I just have to season with salt less. I use lots of other things too.
Anyways, blessings to you and your health journey. Praying for you.
@rosemarya - yes and I did. I see it in the post above your comment so I'm confused with your comment.
@onecentwalsh - Congratulations on the weight loss! I lost 46 pounds from June to Dec. 2017 in preparation for a kidney transplant. I maintained my goal for 2.5 months and just started to try to lose again as I want to lose another 30 to have a healthy BMI. Your good changes have allowed you to be a donor so that is an amazing bonus for you and another lucky individual. Many thanks to you for continuing on the donor journey even though your original recipient got an organ from someone else. It would have been so easy for you to be relieved and say you tried to do the right thing and not continue the donor process. Best of luck to your future health, and thank you for your prayers as I believe they work.
@IWantToBelieve, Great question. Let me clear the confusion.
I noticed that the @name was not highlighted in blue - so then I saw an "i" instead of an "l" in the spelling. That is easy to do when keying in a name. So I copied and pasted the @name, thus assuring that it was directed to the correct email. This happens fairly regularly. It is just something I do as a mentor.
Rosemary
@rosemarya - Well that makes sense because I thought onecentwaish sounded odd. It still looks like an i to me so maybe I need an eye exam! Thanks for making the correction for me.