Kidney transplant - The Journey from the Donor's Side

Posted by mauraacro @mauraacro, Jan 2, 2018

I’m headed to Rochester on the 10th for surgery on the 12th. I’m excited and nervous! I didn’t know the recipient but have gotten to “meet” her and some of her daughters through phone calls and emails.
I’ve had labs done at my doctor’s office and went to Mayo a few weeks ago for a million more tests. My case was presented to the donor board a few days before Christmas and I was approved and notified the same day. It seems like everything took so long and now is going so fast.
I’m interested in hearing from donors but haven’t had a lot of luck. It seems like the recipients are the ones who post the most, which gives me some info and reassurance but it would be nice to hear from the other side too.

@beckyjohnson

I've just read all the posts from "transplants – changes after transplant" & replied to some of them. One thought usually leads to another so I decided to post emotions because it isn't as concrete – say as the literal kidneys being transplanted.
Emotion 1: just getting accepted as a donor creates the feeling of uncertainty
Emotion 2: try as I might to remain steadfast I find myself concerned with finances even though I know the burden of surgical cost does not rest on my shoulders
Emotion 3: LOL knowing part of my body going in to someone else's body brings new meaning to "You're rubbing off on me"
Emotion 4: there is a tad bit of fear that my body may miss its organ & retaliate
Emotion 5: now I'm questioning my logic due to emotion 4
Emotion 6: calm emotion 5 because I fully believe in following my heart
Emotion 7: questions questions questions (what, why, how, who, where, when)
Emotion 8: hybrid fusion of logic & emotion
Emotion 9: LMBO even though I should have thought of all this before making my mind up I couldn't because I had to make this decision to ellicit these emotions

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Finished today's business while wondering will I get that special communication encouraging me on to the next step but it's after 5pm so not today. Although today's post feedback was quite interesting.
Emotion 13: confusion to know or not know the recipient presuming I'm even accepted
Emotion 14: annoyed by the fact I cannot figure out how to get my real life double rainbow profile picture to present upright because it is very symbolic to transplants, sunshine & rain

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@beckyjohnson

I've just read all the posts from "transplants – changes after transplant" & replied to some of them. One thought usually leads to another so I decided to post emotions because it isn't as concrete – say as the literal kidneys being transplanted.
Emotion 1: just getting accepted as a donor creates the feeling of uncertainty
Emotion 2: try as I might to remain steadfast I find myself concerned with finances even though I know the burden of surgical cost does not rest on my shoulders
Emotion 3: LOL knowing part of my body going in to someone else's body brings new meaning to "You're rubbing off on me"
Emotion 4: there is a tad bit of fear that my body may miss its organ & retaliate
Emotion 5: now I'm questioning my logic due to emotion 4
Emotion 6: calm emotion 5 because I fully believe in following my heart
Emotion 7: questions questions questions (what, why, how, who, where, when)
Emotion 8: hybrid fusion of logic & emotion
Emotion 9: LMBO even though I should have thought of all this before making my mind up I couldn't because I had to make this decision to ellicit these emotions

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@jodeej Thank you very much especially considering I have on rare occassion been accused of being boring. Although I have also been labeled funny a time or few. As a laid back type of gal I could not agree with you more to just let go and have faith in God. I'm certain it will get easier once confusion matures in to an actual plan of action. It is getting things done that creates calm in my soul.

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@onecentwalsh

Officially accepted as a non directed donor this past Wednesday!!! Everything looks good for me health wise. I will be donating in may, as I'm a teacher and will be finishing out my spring as to not take too much time off of work for recovery.
They will be now doing their job to find a match and create a, hopefully, long string of paired donations starting with mine! I'm excited and really can't wait to see what God has in store for this process. Will post again as I get closer to surgery.
In the meantime, I'm working on a few diet changes- less salt intake especially!!!

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@onecentwalsh After reading posts today I came to the conclusion there is room for argument & persuasion over the topic to know or not know the recipient. As for me I'm swaying to the know side. However I have now learned enough from this group conversation that I will be filled with joy that I was part of a team that made a significant difference in multiple lives & a somewhat smaller difference as a minor medical player

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@beckyjohnson, I have been learning a lot about some of the thoughts that a donor must process as they make the decision to consider taking the first step as you so bravely have done. I thank you for sharing with us.
To calm some of your concerns, you will be able to discuss these issues with the transplant team as part of the living donor process. I wish you the best possible outcome. I also encourage you to discuss your thoughts with the transplant team at the appropriate time.
Sending you patience,
Rosemary

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@beckyjohnson

I've just read all the posts from "transplants – changes after transplant" & replied to some of them. One thought usually leads to another so I decided to post emotions because it isn't as concrete – say as the literal kidneys being transplanted.
Emotion 1: just getting accepted as a donor creates the feeling of uncertainty
Emotion 2: try as I might to remain steadfast I find myself concerned with finances even though I know the burden of surgical cost does not rest on my shoulders
Emotion 3: LOL knowing part of my body going in to someone else's body brings new meaning to "You're rubbing off on me"
Emotion 4: there is a tad bit of fear that my body may miss its organ & retaliate
Emotion 5: now I'm questioning my logic due to emotion 4
Emotion 6: calm emotion 5 because I fully believe in following my heart
Emotion 7: questions questions questions (what, why, how, who, where, when)
Emotion 8: hybrid fusion of logic & emotion
Emotion 9: LMBO even though I should have thought of all this before making my mind up I couldn't because I had to make this decision to ellicit these emotions

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@beckyjohnson, the health of both donor and recipient are of primary importance. And although there is urgency, every person has unique physical needs that require a very complete evaluation to get the best possible match.
Take care of yourself and allow the process to unfold in a safe and healthy manner.
Enjoy your weekend:-)
Rosemary

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@rosemarya Thank you for your thoughts. Everyones thoughts are important regardless of their diversity. Please do not confuse the "Emotion: #" as anything more than thoughts from a donors journey side of the transplant blessing. By no means do I feel anxious or overwhelmed. This is simply put… my uncut realistic day by day intangible process that is not simple to put in literature but like literature it has its own unique value. By all means I expect to have a medically close relationship with the entire transplant team. After all each one of us wants this journey to be successful for everyone. I am an advocate of collaboration before compromise as well as duty of transparency. Personally speaking I appreciate everyone for sharing regardless of our varied differences of perception because I know sharing can be challenging from fear of how others may take or mistake our meaning.

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Has anybody done any research of donor thoughts by donors such as donor blogs, printed testimony or any other donor thought venue? Though I clearly have my own thoughts & feel there is a priceless value in sharing I am quit curious about other people's thoughts, feelings & emotions. It would be statistically informative to know what the most common, least common & in between the 2 extremes thoughts are. Please do share sources of thoughts along with the thoughts. My basic thoughts are I made an educated/ emotional decision to donate a kidney knowing every decision has a learning curve. But hey I will follow it through to the very end with smiles & tears, laughter & fears.

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@beckyjohnson

@rosemarya Thank you for your thoughts. Everyones thoughts are important regardless of their diversity. Please do not confuse the "Emotion: #" as anything more than thoughts from a donors journey side of the transplant blessing. By no means do I feel anxious or overwhelmed. This is simply put… my uncut realistic day by day intangible process that is not simple to put in literature but like literature it has its own unique value. By all means I expect to have a medically close relationship with the entire transplant team. After all each one of us wants this journey to be successful for everyone. I am an advocate of collaboration before compromise as well as duty of transparency. Personally speaking I appreciate everyone for sharing regardless of our varied differences of perception because I know sharing can be challenging from fear of how others may take or mistake our meaning.

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@beckyjohnson Yes! sharing and learning are good things!

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@beckyjohnson

I've just read all the posts from "transplants – changes after transplant" & replied to some of them. One thought usually leads to another so I decided to post emotions because it isn't as concrete – say as the literal kidneys being transplanted.
Emotion 1: just getting accepted as a donor creates the feeling of uncertainty
Emotion 2: try as I might to remain steadfast I find myself concerned with finances even though I know the burden of surgical cost does not rest on my shoulders
Emotion 3: LOL knowing part of my body going in to someone else's body brings new meaning to "You're rubbing off on me"
Emotion 4: there is a tad bit of fear that my body may miss its organ & retaliate
Emotion 5: now I'm questioning my logic due to emotion 4
Emotion 6: calm emotion 5 because I fully believe in following my heart
Emotion 7: questions questions questions (what, why, how, who, where, when)
Emotion 8: hybrid fusion of logic & emotion
Emotion 9: LMBO even though I should have thought of all this before making my mind up I couldn't because I had to make this decision to ellicit these emotions

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Indeed this is entirely about improving the quality of life for everyone on board as well as from many elements of life – physical, psychological, emotional, medical & scientific to name a few. Thank you for the advice & have a wonderful weekend as well.

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@beckyjohnson

Has anybody done any research of donor thoughts by donors such as donor blogs, printed testimony or any other donor thought venue? Though I clearly have my own thoughts & feel there is a priceless value in sharing I am quit curious about other people's thoughts, feelings & emotions. It would be statistically informative to know what the most common, least common & in between the 2 extremes thoughts are. Please do share sources of thoughts along with the thoughts. My basic thoughts are I made an educated/ emotional decision to donate a kidney knowing every decision has a learning curve. But hey I will follow it through to the very end with smiles & tears, laughter & fears.

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@beckyjohnson in the months leading up to my surgery, I watched every YouTube video and read every blog and website that had to do with kidney donors, kidney disease, transplants, etc…. there's some good stuff out there. As with anything, you'll have to sift through what has value to you and what does not.
I was very prepared mentally and physically because I did a lot of research ahead of time. By the time I got to the three day testing, I hardly had questions because I had learned so much.
Im also a strong woman of faith, really did not have any anxiety or worry because I trusted this was the journey that God had intended for me.
Good luck!

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@beckyjohnson

Has anybody done any research of donor thoughts by donors such as donor blogs, printed testimony or any other donor thought venue? Though I clearly have my own thoughts & feel there is a priceless value in sharing I am quit curious about other people's thoughts, feelings & emotions. It would be statistically informative to know what the most common, least common & in between the 2 extremes thoughts are. Please do share sources of thoughts along with the thoughts. My basic thoughts are I made an educated/ emotional decision to donate a kidney knowing every decision has a learning curve. But hey I will follow it through to the very end with smiles & tears, laughter & fears.

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@onecentwalsh Research is such a great tool that I'm convinced we are able to learn as much as our hearts desire on whatever subject catches our fancy. As a newby to christianity recently babtized Im learning about the power of faith – oh my is it powerful. Thank you for sharing.

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@onecentwalsh

Officially accepted as a non directed donor this past Wednesday!!! Everything looks good for me health wise. I will be donating in may, as I'm a teacher and will be finishing out my spring as to not take too much time off of work for recovery.
They will be now doing their job to find a match and create a, hopefully, long string of paired donations starting with mine! I'm excited and really can't wait to see what God has in store for this process. Will post again as I get closer to surgery.
In the meantime, I'm working on a few diet changes- less salt intake especially!!!

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@mauraacro Is this an open offer? Are you the donor or recipient? For some I think you are a recipient but I think it is easier to just ask than figure where that notion came from.

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@onecentwalsh

Officially accepted as a non directed donor this past Wednesday!!! Everything looks good for me health wise. I will be donating in may, as I'm a teacher and will be finishing out my spring as to not take too much time off of work for recovery.
They will be now doing their job to find a match and create a, hopefully, long string of paired donations starting with mine! I'm excited and really can't wait to see what God has in store for this process. Will post again as I get closer to surgery.
In the meantime, I'm working on a few diet changes- less salt intake especially!!!

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@onecentwalsh What changes do you appreciate the most since your life changing journey? I was fascinated by the posts on Changes After the Transplant.

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@mauraacro

I will follow up after I’ve processed a bit, this has gone so quickly. I said I’d post from the hospital, I can’t do that because I’ve already been released! My surgery was at 8 yesterday morning (Friday) and I was cleared to leave around noon today (Saturday). I had the option to stay tonight but my labs and “output” were good and there was no medical reason I needed to stay. The recipient is also doing well, she will be out Monday.
I’m going to eat & go back to bed, I’ll fill in more details later

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@IWantToBelieve @mauraacro the beauty of threads is when one misses something like this & is an adament follower the missed post will be found. Now I know why I believed you were/ are a donor. How beautiful. Are you fully recovered?

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@onecentwalsh

Officially accepted as a non directed donor this past Wednesday!!! Everything looks good for me health wise. I will be donating in may, as I'm a teacher and will be finishing out my spring as to not take too much time off of work for recovery.
They will be now doing their job to find a match and create a, hopefully, long string of paired donations starting with mine! I'm excited and really can't wait to see what God has in store for this process. Will post again as I get closer to surgery.
In the meantime, I'm working on a few diet changes- less salt intake especially!!!

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@IWantToBelieve those are some really good tips that may benefit anyone. Speaking from experience there is always hope for something better even in the face of death. It is literally a mind over matter phenomena like faith. I have been challenged with finding the good in the worst of circumstances & learned perception of what was, is & can be is a powerful motivater that both drives & is driven by emotion. Science has now statistically proven that emotion is every bit as influential on our health as exercise which in theory may explain why 2 people going through seemingly the same thing have totally different outcomes. Selfless givers tend to be happier than selfish takers. That is not to say recievers of gifts are takers because there is clear delination between selfish takers & greatful recievers…greatful recievers either have been, are or will be happy givers.

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