Meningioma behind left ear, to meet with neurosurgeon. Scared.

Hi @nahi. I was diagnosed with a grape-sized meningioma Sept 2 following an MRI. Mine is just left of center in the frontal lobe area resting against the large center vein (I can’t remember the medical name. Something sinus). I understand the waiting is hard. I have prayed a lot. I keep busy and lean on my husband for emotional support. I recommend getting at least a second opinion regarding your diagnosis and treatment, if any. I had two neurosurgeons and one neurologist review my scans. It was decided that the shape (very smooth and round, not jagged) led them to believe it is not cancer. I know the feeling of “but it’s not supposed to be there!” Most meningiomas are not cancer. So they decided to take the watch and wait approach rather than take the risk of surgery. I had my second MRI in November, 90 days after the first one. No signs of change. The headaches that led to the first MRI have subsided because I cut way back on Caffeine. My system isn’t crying out for caffeine in the middle of the night. Now we are waiting six months for the next MRI.I tell you all this because I am learning to live with it knowing many people live very long with meningiomas. Some don’t even know they have them. Since they are not in the grey matter area they usually are easier to take out if surgery is the route you and your medical team take. Stay as active as you can. Take walks if you are able. I feel for you and hope and pray things go well for you. I do relate to the waiting game.

Hello @nahi I am sorry to read of your healthcare journey, but even given the circumstances it is nice to e-meet you here on Connect! I am Scott and my wife was diagnosed with brain cancer and I was her primary caregiver. I remember all too well the times of waiting as often being among the most difficult to manage! I wish I had some magic suggestion of what we did to pass the waiting time, but all I can say is we made sure we kept as busy as we could to occupy ourselves. We did a lot of goofy, unnecessary things, but anything to help the time pass without thinking about what we didn't know.

Personally I had a stroke two and a half weeks ago and it lodged in my right eye. I am in the doctor-specialist-more doctors-another specialist, with lots of days of waiting time. The time in-between in the worst! I'd rather just know!

One of the best aspects of Connect, at least to me, is the fact so many are here who have been through what some of us have so we can share, suggest, and best of all listen!

If you're comfortable sharing, did this come out of the blue?

Sending strength, courage, and peace!

Hello @nahi I am sorry to read of your healthcare journey, but even given the circumstances it is nice to e-meet you here on Connect! I am Scott and my wife was diagnosed with brain cancer and I was her primary caregiver. I remember all too well the times of waiting as often being among the most difficult to manage! I wish I had some magic suggestion of what we did to pass the waiting time, but all I can say is we made sure we kept as busy as we could to occupy ourselves. We did a lot of goofy, unnecessary things, but anything to help the time pass without thinking about what we didn't know.

Personally I had a stroke two and a half weeks ago and it lodged in my right eye. I am in the doctor-specialist-more doctors-another specialist, with lots of days of waiting time. The time in-between in the worst! I'd rather just know!

One of the best aspects of Connect, at least to me, is the fact so many are here who have been through what some of us have so we can share, suggest, and best of all listen!

If you're comfortable sharing, did this come out of the blue?

Sending strength, courage, and peace!

Hello @nahi I am sorry to read of your healthcare journey, but even given the circumstances it is nice to e-meet you here on Connect! I am Scott and my wife was diagnosed with brain cancer and I was her primary caregiver. I remember all too well the times of waiting as often being among the most difficult to manage! I wish I had some magic suggestion of what we did to pass the waiting time, but all I can say is we made sure we kept as busy as we could to occupy ourselves. We did a lot of goofy, unnecessary things, but anything to help the time pass without thinking about what we didn't know.

Personally I had a stroke two and a half weeks ago and it lodged in my right eye. I am in the doctor-specialist-more doctors-another specialist, with lots of days of waiting time. The time in-between in the worst! I'd rather just know!

One of the best aspects of Connect, at least to me, is the fact so many are here who have been through what some of us have so we can share, suggest, and best of all listen!

If you're comfortable sharing, did this come out of the blue?

Sending strength, courage, and peace!

Hello @nahi I am sorry to read of your healthcare journey, but even given the circumstances it is nice to e-meet you here on Connect! I am Scott and my wife was diagnosed with brain cancer and I was her primary caregiver. I remember all too well the times of waiting as often being among the most difficult to manage! I wish I had some magic suggestion of what we did to pass the waiting time, but all I can say is we made sure we kept as busy as we could to occupy ourselves. We did a lot of goofy, unnecessary things, but anything to help the time pass without thinking about what we didn't know.

Personally I had a stroke two and a half weeks ago and it lodged in my right eye. I am in the doctor-specialist-more doctors-another specialist, with lots of days of waiting time. The time in-between in the worst! I'd rather just know!

One of the best aspects of Connect, at least to me, is the fact so many are here who have been through what some of us have so we can share, suggest, and best of all listen!

If you're comfortable sharing, did this come out of the blue?

Sending strength, courage, and peace!