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Has anyone been diagnosed with Abdominal Wall Pain

Posted by rufus444 @smiles444, Dec 15, 2017

Starting on May 1, 2017, I began having abdominal pain that wraps around to my left back. The first time it happened, I went to the emergency room because I thought I might have an apendicitis. The hospital did a CT scan of my abdomen, everything looked okay. I went to the emergency room several times over the summer with excruciating abdominal and back pain. I had a hida scan done, a colonoscopy and an endoscopy and CT and ultrasound scans of my abdomen. Everything looked normal. In September of this year, a doctor at Mayo felt the area on my abdomen and did a Carnett's test. He suggested it could be abdominal wall pain. I have had two steroid injections and I am still having pain in the same area. Has anyone out there had this type of diagnosis and still having pain?

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nanando00 | @nanando00 | Jan 22, 2019

Hello,i'm so sorry to hear all the pain you feel here,even i'm in the same trouble for 7 years,up to now i'm still trying to find a diagnosis for my pain and in the 2 next day i'm gonna meet a vascular surgeon to make a diagnosis about a Celiac Ligament Compression or Dunbar Syndrome,it is a very rare disease and very hard to figure out and there are specific examinamination process to make the diagnosis such as specific CT the regular CT couldn't see it,talk about it to your doctor and don't lose hope...even me i don't know if i have this or not,i will see it with the doctor soon,hope the best for all of you...

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hgarm | @hgarm | Jan 30, 2019

I have been having abdominal pain for months but no one seems to know why they took out my appendix and my gallbladder but on still have the pain. It doesn't go away but gets worse if I eat or drink. Any one experience that before their diagnosis? At this point I am just grasping at straws trying to figure out what's happening to me

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1 reply
lioness | @lioness | Jan 30, 2019
In reply to @hgarm "I have been having abdominal pain for months but no one seems to know why they..." + (show)
@hgarm

I have been having abdominal pain for months but no one seems to know why they took out my appendix and my gallbladder but on still have the pain. It doesn't go away but gets worse if I eat or drink. Any one experience that before their diagnosis? At this point I am just grasping at straws trying to figure out what's happening to me

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@hgarm Its so hard to diagnose without having test and hopefully your Dr Monday will get the ball rolling for you but you sound so much better then first time you posted Congratulation to YOU .

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lasirvent | @lasirvent | Feb 1, 2019
In reply to @pagray24 "@smiles444 Hi, I am going on 5.5 years since my first sudden onset of upper left..." + (show)
@pagray24

@smiles444
Hi, I am going on 5.5 years since my first sudden onset of upper left quadrant abdominal pain. I have had many diagnoses and yet it is still a mystery and truly excruciating at times. My pain is 8-9 days out of 10. How often is yours? Can you walk normally? What have you tried that works? I have seen 18-20 specialist. I use heat, a TENs, meditation, pain meds, lying still on a 45 degree angle and a number of other meds. Does the pain cause you headaches and nausea when it gets severe? It has been a 5 year science experiment and imaging studies of all types to still not know what or why. Abdominal wall pain, visceral pain, chest wall pain, chronic pain syndrome, etc. It has been labeled all of these. I have received easily 100 injections in my upper abdomen and wrapping around to my back. So, I feel your pain.

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Check MALS

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christie6453 | @christie6453 | Feb 7, 2019
In reply to @rsmith0822 "Yes!! Been sick for 6 1/2 yrs. Finally diagnosed with Abdominal Wall Syndrome with nerve entrapment..." + (show)
@rsmith0822

Yes!! Been sick for 6 1/2 yrs. Finally diagnosed with Abdominal Wall Syndrome with nerve entrapment on Dec 6th, 2017.

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Hello. I have been diagnosed with this as well. My question is, what type of Dr. Does the ultrasound guided steroid injection or nerve block. I have been referred to an ob/ gyn who had never heard of such a thing and laughed in my face. I just want this pain to go away but don't know where to go. My Dr doesn't seem to know either.

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3 replies
carolhope | @carolhope | Feb 8, 2019
In reply to @christie6453 "Hello. I have been diagnosed with this as well. My question is, what type of Dr...." + (show)
@christie6453

Hello. I have been diagnosed with this as well. My question is, what type of Dr. Does the ultrasound guided steroid injection or nerve block. I have been referred to an ob/ gyn who had never heard of such a thing and laughed in my face. I just want this pain to go away but don't know where to go. My Dr doesn't seem to know either.

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I don't know if it's the same in the US. But in the UK. l had my procedure in the pain clinic as a day patient! Carol

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richman54660 | @richman54660 | Feb 10, 2019
In reply to @lucie2 "Have you tried working the shoe angle? I have had chronic pain in lower left thoracic..." + (show)
@lucie2

Have you tried working the shoe angle? I have had chronic pain in lower left thoracic and left upper abdominal for 10 years. They have called it chest wall pain, and mostly were puzzled as to how to deal with it. It is most likely due to some scar tissue post op. During the day the pain is fairly low 2-4 generally. It increases when I exercise or walk or stand up for a time (I need to sit down after a few minutes unless I am using some support like a shopping cart.) I wake up from it at night. It is probably connected to some scar tissue. Generally stretching helps. Well, I lately pulled out some MBT shoes I had not used for a long time. They have pronounced rocker soles, and change one's posture and the muscles one uses. It created almost instant change. The pain is milder and less disabling. I am able to stand comfortably for a much longer time. Pain at night has diminished considerably and wakes me up much less. I was very surprised, and I hope this maintains. Note that the new MBT shoes you might buy are not necessarily as good because the company was bought up, and some of the new shoes are not constructed in quite the same way. Look for shoes with good rocker soles and support, that use the original MBT technology. Do not use if you have balance problems though.

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@lucie2 don’t you miss the old mbt’s! I loved them. They helped me with plantar fasciitis and get a better gait. I guess sketchers or other types will have to do.

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bubbleshdr | @bubbleshdr | Feb 20, 2019

I had the million dollar work up before I was diagnosed with ACNES. I have been getting injections since 2015. I also had 25+ sessions with PT for abdominal deep tissue massage to break up scarring. I am now getting injections every 3 months after 2 years of injections every 2 months. I’m in a good place. I have some right lower quadrant abdominal pain if I’m constipated and my bowel is too full. I keep hoping I’m in “remission” but I realize I will have this medical problem the rest of my life.

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coderhomer | @coderhomer | Feb 21, 2019

I've been having right upper abdominal pain for 5 years. Nothing can be found. Have had CT scans, EGD, colonoscopy, labs are normal. Had my gallbladder out in 2014. Every test is normal. Still dealing with pain. Started seeing the pain clinic doctor who said I could have Abdominal Wall pain. Have had a couple trigger point injections but didn't help much. Can I ask what type of pain you are having? Stabbing? Burning? Sharp? Would like to know if it's the same I've been having. Thanks. Am glad the treatment is helping you.

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lasirvent | @lasirvent | Feb 21, 2019

Yes, I’ve had every tests they can think of and they can’t find anything wrong. So now I had a RFA and nerve block on my Splanick nerve. It helped and gave me relief for almost a year. Now, im back and had both left and right sides done. Waiting for nerves to die off. Also, checking into vascular problems, NMALS? Desperate!

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