1. < MAC & Bronchiectasis
Profile picture for scoop

New PARI Nebulizer Options Coming Our Way?

Posted by scoop @scoop, Oct 5 12:45pm

PARI has introduced some new nebulizer products that, for now, appear to be available only in Europe. The new portable PARI BOY Go appears to be available only in Germany at this point.

I’d love to see these products introduced in the USA sooner rather than later, although I realize there are regulatory and other hurdles that have to be cleared first.

It might be possible for someone traveling to Europe or Germany to purchase one or both of these devices, although I don’t know what issues there might be with bringing them back to the USA, power compatibility, warranties, replacement parts, etc.

PARI BOY Go:
https://www.pari.com/int/products/inhalation-devices/pari-boy-go/
eFlow rapid nebulizer system, smaller new controller:
https://www.pari.com/int/products/inhalation-devices/eflow-rapid-nebuliser-system/
If anyone has information or experience with either of these newer products, please post any details here.

Since bronchiectasis is a lifelong condition, it’s encouraging to see continued development of nebulizer technology. Anything that can make our daily treatment routines faster, easier, or more portable could make a meaningful difference in managing the disease over the long term.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Profile picture for laureltn
laureltn | @laureltn | 3 days ago
In reply to @gigiv "@laureltn, I bought it on Amazon.de about 2 weeks ago. They definitely shipped it to the..." + (show)
Profile picture for gigiv @gigiv

@laureltn, I bought it on Amazon.de about 2 weeks ago. They definitely shipped it to the U.S. via DHL. Ordered it on a Monday, received it on Thursday that week. It was very powerful with 3% saline and very good with 5% saline. The frist time I nebbed 7% saline, it worked very well. The following sessions at 7% saline were weakening a little bit each time. After 4 of those sessions, it is definitely weak. I contacted Pari Germany, we'll see what they have to say. I have until Monday to return it to Amazon.de.
I wonder if the 7% saline is too heavy for the mesk. I use PulmoSal, there is sometng in it on top of the 7% saline, baking soda or something else. Maybe that clogged the mesh, not sure. I have been carefully cleaning and sterilizing after each use (twice a day), ran maintenance care sessions whenever the blue light was on (every 2-3 days). I know I have been doing everything I was supposed to do. Maybe the regular 7% saline would have worked better, or maybe not.
When it was working well, I was very impressed by it. It was very powerful, very fast, it was the very best nebulizer I had ever used. I hope you have better luck with yours.
Best wishes of great health to all of us!

Jump to this post

@gigiv

Hi, there! No, I expect my Pari Boy Go will arrive tomorrow fine. It's the year pack I am trying to figure out how I'll get shipped here (replace after 52 sterilizations). It's not on Amazon.de at this point and the suppliers that have it in Europe don't ship to the USA. Now, you can use a third-party middleman and get it but not sure what they'll charge.

I don't plan to use it daily and so it will be a good while before I hopefully need the replacement parts, so I'll keep an eye on things and order one whenever I can.

Laurel

REPLY
Profile picture for scoop
scoop | @scoop | 3 days ago

@bkim408 @gigiv and others

I read through the Pari Boy Go instruction manual thoroughly and wanted to clarify a few points from earlier discussions.

Pari distinguishes between disinfection and sterilization. Disinfection is accomplished by boiling, while the sterilization procedure described requires temperatures of 270F, well beyond household methods. We often use these terms interchangeably, but they are different.

The manual does not mention baby bottle sterilizers as an approved method for either process. I would therefore boil the Boy Go components in distilled water for at least 5 minutes as spelled out in the manual (disinfection).

Regarding the warning against using "plug in adapters," I believe Pari is referring to travel adapters that convert European plugs to US outlets or vice versa. If traveling abroad, I would use batteries rather than a travel plug adapter. This is my interpretation, since Pari does not define the term.

REPLY
1 reply
Profile picture for cavlover
cavlover | @cavlover | 2 days ago

Yes, I read that. I just got confused when I read that the nebulizer top, mouth piece and controller could not be sterilized.
Thank you!

REPLY
Profile picture for bklynprof
bklynprof | @bklynprof | 2 days ago
In reply to @sburton56 "Does anyone know if this is available in France? I live in the US, but travel..." + (show)
Profile picture for sburton56 @sburton56

Does anyone know if this is available in France? I live in the US, but travel to France once or twice a year and would love to be able to purchase this over there.

Jump to this post

@sburton56
I was recently in France and purchased it from Amazon.de. Pari France told me that they would be carrying it next year, but couldn't be more specific than that. You don't need an Rx to buy any equipment in Europe. The only issue is that it is hard to find distilled water in France, which is what you need to use to disinfect it. It seems that distilled water is only sold in pharmacies and it costs close to 10 euros. I haven't found it in a grocery store, unlike in the US.
Leslie

REPLY
Profile picture for bklynprof
bklynprof | @bklynprof | 2 days ago
In reply to @scoop "@bkim408 @gigiv and others I read through the Pari Boy Go instruction manual thoroughly and wanted..." + (show)
Profile picture for scoop @scoop

@bkim408 @gigiv and others

I read through the Pari Boy Go instruction manual thoroughly and wanted to clarify a few points from earlier discussions.

Pari distinguishes between disinfection and sterilization. Disinfection is accomplished by boiling, while the sterilization procedure described requires temperatures of 270F, well beyond household methods. We often use these terms interchangeably, but they are different.

The manual does not mention baby bottle sterilizers as an approved method for either process. I would therefore boil the Boy Go components in distilled water for at least 5 minutes as spelled out in the manual (disinfection).

Regarding the warning against using "plug in adapters," I believe Pari is referring to travel adapters that convert European plugs to US outlets or vice versa. If traveling abroad, I would use batteries rather than a travel plug adapter. This is my interpretation, since Pari does not define the term.

Jump to this post

@scoop
I contacted Pari in Germany to ask them about sterilizing the Pari Boy Go in a baby bottle sterilizer and this was their response:
"During product development, we tested and validated the disinfection methods described in the Instructions for Use. Therefore, we can only guarantee the safety and effectiveness of the procedures specified there. For this reason, we recommend following the disinfection instructions provided in the Instructions for Use."
I responded that given the interest in the US they might consider testing using a baby bottle sterilizer and they were very appreciative of that suggestion. Hope this clarifies things.
Leslie

REPLY
Profile picture for lilianna
lilianna | @lilianna | 2 days ago
In reply to @scoop "@lilianna It’s called USB-C. It’s a connector cable that goes from the wall electricity through an..." + (show)
Profile picture for scoop @scoop

@lilianna
It’s called USB-C. It’s a connector cable that goes from the wall electricity through an adapter to the nebulizer. The USB-C cable does not come with the Pari boy go nebulizer. You need to purchase it separately. They are easily found at Walgreens, Walmart, CVS, etc.
https://www.conwire.com/blog/ultimate-guide-usb-cables/

Jump to this post

@scoop again I have a question about the Pari boy go USB C cable. I am so green. So I need this particular usb and an adapter? Because the usb-c is just a usb cable. I am sorry for my ignorance.

REPLY
1 reply
Profile picture for scoop
scoop | @scoop | 2 days ago
In reply to @lilianna "@scoop again I have a question about the Pari boy go USB C cable. I am..." + (show)
Profile picture for lilianna @lilianna

@scoop again I have a question about the Pari boy go USB C cable. I am so green. So I need this particular usb and an adapter? Because the usb-c is just a usb cable. I am sorry for my ignorance.

Jump to this post

@lilianna
One end of the cable plugs into the Boy Go controller (USB-C), and the other connects to a USB wall adapter that plugs into an electrical outlet. The one pictured includes the wall adapter, so all the pieces fit together.
https://www.amazon.com/dp/B0DZX332P7

REPLY
Please sign in or register to post a reply.