Postural orthostatic hypotension: How is it treated?

Posted by Henrietta Pilcher @hpilcher1, Jul 20, 2016

Has anyone had effective treatment for this disorder? I am treated with beta-blocker and Florinef that is causing side effect of disabling fatigue and not being able to function normally, being unable to walk, or to drive a car, and is completely disabling. Has anyone found a reason for this disabling condition?

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youngforever | @youngforever | Sep 25 2:52pm

In reply to @jlharsh "@youngforever Will you come back and provide an update after you visit with your doctor tomorrow?" + (show)

@jlharsh my dr is going to try me with compression socks and if this doesn't work probably pills

youngforever | @youngforever | Sep 25 9:25pm

In reply to @jlharsh "@youngforever Will you come back and provide an update after you visit with your doctor tomorrow?" + (show)

@jlharsh I have to try compression stockings if this doesn't work then medication

jachrist | @jachrist | Oct 19 11:12am

In reply to @youngforever "I am 66 and have had trouble being light headed from sitting to standing since probably..." + (show)

@youngforever
I too periodically get lightheaded whether Im sitting or standing and I have had episodes of sudden cardiac arrest. I have HOCM and had an alcohol septal ablation. I was diagnosed with cardiac amyloidosis (stiff heart syndrome) My heart does not provide adequate blood supply to my brain so I experience ischemic strokes.
Talk to your Cartiologist and see if you have Cardiac amyloidosis.
Jim

amalfi1279 | @amalfi1279 | Oct 19 2:39pm

Tell your Dr how these meds are disabling you. With literally hundreds of medications available your Dr should be able to find the perfect match for you. Keep asking, keep pushing, do your own research. Hang in there.

babheart | @babheart | Oct 20 5:13pm

I’ve been on a journey with my heart and lungs the past few years and have found that Compression hose are very helpful when I’m having those big Orthostatic drops- especially the E5 OMRON reading- undetectable 😉. I found abdominal binders difficult but shape wear is helpful and more comfortable to sit in and work better for me. Keep the hose next to your bed so you can put them on before you stand. If you have to make a quick trip to the bathroom first, lie back down for 10-15 min before putting them on. Good luck!