Anyone have chronic lymphocytic leukemia (CLL)?

@jerseyjim13 Love your life Jim , treatments are very good if you ever need them. I didn't have treatment for 21 years after diagnosis . Make sure to educate yourself and stay to date with what is going on with treatments . I am 5 years in remission after my first treatment . You can imagine the advances in treatment in the 21 years . You can't change it but you can live on and not let it get you down. Best wishes!

Welcome to Connect @timmattheyer You are a breath of fresh air this morning! Love the uplifting, positive advice you gave to @jerseyjim13 with his newly diagnosed CLL. Having been through a cancer journey of my own, I’ve also learned it’s imperative to remain positive, always with an eye to the future, and enjoying every day to the fullest. Our diagnoses don’t have to define us. ☺️

So thank you for sharing your experience with CLL. That’s amazing you didn’t require any treatment for 21 years and when you did, it was quite successful. What was the treatment you received 5 years ago? How long were you taking the medication?

Hello, I wanted to return your questions. I all you have to tell. Have
never taken medications for my C. L l and I do believe that in recession
right now, because it wasn't in my blood. The last time we took the test.
However, I am coming up again for a new test. A couple weeks and we'll see
what happens. Is it websites

*With Humble Regards*
*James Barnett*
*Ft. Collins CO 80521*

Yes. I have it!

@shelli3300 I don't believe you will find a CLL specialist at Mayo that would recommend this approach, but I'm glad she is well. There is no data which shows Vitamin C supplementation treats CLL and there is some evidence glutathione may actually support CLL cell survival.

From Grok AI.
Question: Can Glutathione treat CLL?

No. Glutathione does not treat CLL, and raising it is not a therapeutic strategy.
CLL cells are under high oxidative stress and rely on glutathione (GSH) to survive, resist apoptosis, and maintain drug resistance. In the body they depend on bone marrow stromal cells to supply the cysteine they need for GSH synthesis (they have limited ability to take up cystine themselves). Higher GSH levels protect the leukemia cells; depleting GSH (for example with PEITC in lab studies) kills them and overcomes stromal protection.

CLL patients should seek the care and consultation of a CLL specialist. Even general oncologists often struggle to fully understand this disease and keep up with the latest research and I would certainly not rely on a Naturopath.

@tomatack, thankyou for your opinion..you say there is no data. I beg to differ; my mothers drastic improvement has suggested otherwise. This is the only data I am interested in, respectfully.
She is being followed by an Oncologist fyi and has been since day 1. This Oncologist states that she is one of the lucky ones....

@shelli3300 Well I'm glad to hear that. 30% of CLL patients have favorable markers and indolent courses (the lucky ones) which never need treatment, but the remaining 70% will have progression requiring treatment with proven drugs like BTK or BCL2 inhibitors. In fact, a fair percentage need treatment at diagnosis or within a year or two as I did. To suggest Vitamin C and Glutathione are somehow an effective treatment for CLL is irresponsible and is not supported by scientific evidence. Again, I don't believe you will find a true CLL specialist who would support your claim, but I am glad your mother is doing well.

FYI, when my mother was diagnosed, it had metastasized to her liver; this was when her liver enzymes were out the roof. This was in early 2022. Since then, her enzymes have normalized. I’m not sure why you assume you know everything about this, you clearly don’t. You would be well advised to do more research.
A congratulations regarding her progress instead of a brow beating with more jargon about ‘the science’ is a more appropriate response.
Thank-you

@pearl72 I am super sorry I didn’t see your question until now.
Oncologists are not taught about this therapy, as because it is technically a vitamin, there aren’t the studies that substantiate its use due to it not being part of ‘big pharma’; it is a specialty of Naturopaths. By mouth, only small amount can be tolerated or absorbed, but thru I.V at much larger doses, it is a game changer and becomes cytotoxic to cancer cells. If you can find a Naturopath that is authorized to perform it, this would be an additional best recourse. Cancer patients have also told me repeatedly how it helps them greatly with the side effects from Chemo

@shelli3300 I've done a ton of research and just completed a clinical trial at Mayo Rochester under the care of a CLL specialist who only treats this one disease. I'm also a CLL patient at the NIH and participate in a study there as well. I'm confident in my knowledge of the disease and its treatment options and have read countless research papers. Can you please provide supporting scientific evidence (a research paper perhaps) which supports your claim? CLL is highly heterogeneous. While your mother may be in the 30% indolent category the rest of us are not. Stating unscientific facts giving false hope to many patients offering treatment options unsupported by science, or the CLL community as a whole, is unhelpful. Again, seeking guidance by a true CLL specialist at Mayo is a smart move, jumping on unproven supplementation is not.

Perhaps this CLL Society link will help
https://cllsociety.org/2026/07/use-of-supplements-in-cll-sll/
Vitamin D is the only supplementation which has some scientific support.

Or this one more specific
https://onlinelibrary.wiley.com/doi/10.1155/2013/972913
"In many normal and malignant cells, increased GSH [glutathione] level is associated with a proliferative response and is essential for cell cycle progression"

Adding GSH may actually be doing harm.