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Has anyone found a treatment that helps with peripheral neuropathy?
I suspect that everyone on this forum has been searching for a medication that helps their neuropathy and even though you no that all the internet claims are false we continue to waste hundreds of pounds. Desperation is a powerful force. Has any one been fortunate enough to find a genuine treatment. I just can’t believe that there are so many awful people who prey on our vulnerability and knowingly orchestrate such elaborate scams.
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Welcome @stinam85, Thanks for sharing your neuropathy story and what has helped you manage the symptoms. I too have an idiopathic neuropathy but only have numbness and some tingling but no pain so there aren't any medications that help with that. I too have several pairs of barefoot shoes that I like around the house and neighborhood but not if I have to walk any distance. I need a tad more cushion if I have to walk longer distances. There are quite a few discussions on supplements for neuropathy if you want to scan through them - https://connect.mayoclinic.org/search/.
Are your neuropathy symptoms mostly in your feet?
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1 Reaction@graydude Most of us who use compression socks probably do so to prevent blood pooling in our lower extremities, i.e. legs etc. where gravity is a factor. That factor disappears when we're lying flat.
From Web MD: https://www.webmd.com/dvt/choose-compression-stockings
Should you sleep with compression stockings?
For over-the-counter compression socks, there’s often no benefit to wearing them overnight. Taking them off overnight gives your skin a break to avoid damage.
If you have prescribed compression stockings for medical use, your doctor may tell you to wear them overnight. When it comes to sleeping in compression stockings, follow your doctor’s advice.
My own doctor advises NOT to do it. Your own mileage may vary.
@mrmacabre
How much gaba and ala
@dennyleo
Hi. Just diag peripheral neuropathy thought had MG wow any help available thanks
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1 ReactionHello @maryl26, Welcome to Connect. I'm sorry to hear that you were recently diagnosed with neuropathy. It can be scary and difficult when trying to find some relief for the symptoms. Probably the best thing you can do for yourself is learn as much as you can about the condition and what treatments are available that might provide some relief. There's no one answer that fits everyone. Here are a couple of resources that you might find helpful for learning more:
-- Newly diagnosed: https://www.foundationforpn.org/newly-diagnosed/
-- Neuropathy Resource: https://neuropathyresource.com/
Were you diagnosed with a specific cause for the neuropathy or did they mention idiopathic?
@graydude Wearing compression socks has been a great option for me at night as I switch off from the Nervive cream from time to time. My Neurologist has recommended compression socks and also agrees that Nevive is a good cream to use for my burning feet at night!
@maryl26 3600mg of gabapentin and 1200mg of ALA.
I have been using "theprotocolworks.com" for about sixteen years. It has really helped me. I have recently gotten somewhat worse pain in my hands and feet and may have to transition to drugs . I will continue with the protocol if I do because I genuinely believe it gives my nervous system tremendous fundamental support.
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3 ReactionsI was using about 2400mg of Gabapentin at one time, didn't like the way it made me sleepy so cut back to 900-1200 mg per day max and am not experiencing the nighttime burning jolts in my feet. Each of us probably react differently to the medications.