1. < Neuropathy
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Has anyone found a treatment that helps with peripheral neuropathy?

Posted by bigjohnscho @bigjohnscho, Jul 1, 2025

I suspect that everyone on this forum has been searching for a medication that helps their neuropathy and even though you no that all the internet claims are false we continue to waste hundreds of pounds. Desperation is a powerful force. Has any one been fortunate enough to find a genuine treatment. I just can’t believe that there are so many awful people who prey on our vulnerability and knowingly orchestrate such elaborate scams.

Interested in more discussions like this? Go to the Neuropathy Support Group.

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parkermarina | @parkermarina | 2 days ago
In reply to @patriciaschulz1950 "@katdens trial and error , right? Yes, I have discovered with at least trying 20 different..." + (show)
Profile picture for patriciaschulz1950 @patriciaschulz1950

@katdens trial and error , right? Yes, I have discovered with at least trying 20 different topicals (from prescription to OTC) that aspercream is most effective for me. It only lasts15-20 mins, but it’s 15-20 mins! I also like Vicks at night, menthol…so, I called a pharmacist (compound) locally. My PCP and pharmacist are going to create a cream with those two ingredients…brainstorming with them now. This neuropathy is so different and distinct for everyone, yet so the same, it is frustrating. My pain is 24/7…at night with the help of 10 mg zolpidem, Vicks, warm socks, soothing music, mediation…I can usually get 6 hours of sleep. What I think is sad…is when I wake up - the only thing that keeps me going through the day is , knowing I will get 6 hours of restful sleep later. Desperate in Florida..

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@patriciaschulz1950
Hey Patricia,
So sorry to hear about your sleep issues! I have cerebellar ataxia and without meds I don’t sleep. I was prescribed mirtazipine (brand name Remeron) and without meds a bit of marijuana concentrate I get 8 hours. Mirtazipine is not a narcotic or benzo and works really well by itself for most people. You should ask your PCP about it. Hope you get some relief!

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megidigo | @megidigo | 2 days ago
In reply to @patriciaschulz1950 "Thank you for the question. The desperation is real, isn’t it. And yes, I have been..." + (show)
Profile picture for patriciaschulz1950 @patriciaschulz1950

Thank you for the question. The desperation is real, isn’t it. And yes, I have been trapped by many of the marketing gimmicks and spent countless money and hours trying to find the “why” and “what” can help. At 76, and so tired of self management. My question is can a person “donate” their body after death to specific studies of the nerves/neuropathy? @johnbishop

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@patriciaschulz1950
Interesting question. I would be willing to be a living test subject if that were a thing. I dont mean clinical trial but put under long term study.

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bythesealove | @bythesealove | 2 days ago
In reply to @roncapstraw "I use AMLA and my pins and needles have stopped ! I take two in the..." + (show)
Profile picture for roncapstraw @roncapstraw

I use AMLA and my pins and needles have stopped !
I take two in the morning and haven't had a problem since .
I am very CHEAP and found that EBAY is the least costly.

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@roncapstraw
What is AMLA?

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patriciaschulz1950 | @patriciaschulz1950 | 2 days ago
In reply to @megidigo "@patriciaschulz1950 Interesting question. I would be willing to be a living test subject if that were..." + (show)
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@patriciaschulz1950
Interesting question. I would be willing to be a living test subject if that were a thing. I dont mean clinical trial but put under long term study.

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@megidigo yes I mean after I am gone. Like an organ donor

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John, Volunteer Mentor | @johnbishop | 2 days ago
In reply to @patriciaschulz1950 "Thank you for the question. The desperation is real, isn’t it. And yes, I have been..." + (show)
Profile picture for patriciaschulz1950 @patriciaschulz1950

Thank you for the question. The desperation is real, isn’t it. And yes, I have been trapped by many of the marketing gimmicks and spent countless money and hours trying to find the “why” and “what” can help. At 76, and so tired of self management. My question is can a person “donate” their body after death to specific studies of the nerves/neuropathy? @johnbishop

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@patriciaschulz1950 - Mayo Clinic Rochester has whole body donation program but I haven't done much research into it. Here's more information - https://www.mayoclinic.org/body-donation/making-donation.

Here are a few more specific ones:
-- The National Disease Research Interchange (NDRI) Private Donor Program links donors with active, approved scientific protocols. If a researcher is currently looking into peripheral neuropathy, the NDRI can help route specific nerve tissues to that study:
https://ndriresource.org/for-donors-patients/becomeadonor/
-- Brain Donor Project: https://braindonorproject.org/how-it-works/

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blowerk1216 | @blowerk1216 | 2 days ago
In reply to @bythesealove "@roncapstraw What is AMLA?" + (show)
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@roncapstraw
What is AMLA?

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@bythesealove Amla is an extract of Indian gooseberries and has been identified as a potential aid in combating neuropathy.

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katdens | @katdens | 2 days ago
In reply to @patriciaschulz1950 "@katdens trial and error , right? Yes, I have discovered with at least trying 20 different..." + (show)
Profile picture for patriciaschulz1950 @patriciaschulz1950

@katdens trial and error , right? Yes, I have discovered with at least trying 20 different topicals (from prescription to OTC) that aspercream is most effective for me. It only lasts15-20 mins, but it’s 15-20 mins! I also like Vicks at night, menthol…so, I called a pharmacist (compound) locally. My PCP and pharmacist are going to create a cream with those two ingredients…brainstorming with them now. This neuropathy is so different and distinct for everyone, yet so the same, it is frustrating. My pain is 24/7…at night with the help of 10 mg zolpidem, Vicks, warm socks, soothing music, mediation…I can usually get 6 hours of sleep. What I think is sad…is when I wake up - the only thing that keeps me going through the day is , knowing I will get 6 hours of restful sleep later. Desperate in Florida..

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@patriciaschulz1950

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katdens | @katdens | 2 days ago

Understand completely! Any port in a storm.

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katdens | @katdens | 2 days ago

Reading earlier posts, I may be in a minority. I am not diabetic, have not had chemo, not exposed to toxic substances and no known relatives with PN. I first noticed a numbness developing in my feet about 3 years ago. The tingling and burning came after. I am 80 years old and have learned this is more common in older folks. It has affected my balance and my sleep. As Katherine Hepburn said, "Getting old ain't for sissies."

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greengold | @greengold | 2 days ago
In reply to @katdens "Reading earlier posts, I may be in a minority. I am not diabetic, have not had..." + (show)
Profile picture for katdens @katdens

Reading earlier posts, I may be in a minority. I am not diabetic, have not had chemo, not exposed to toxic substances and no known relatives with PN. I first noticed a numbness developing in my feet about 3 years ago. The tingling and burning came after. I am 80 years old and have learned this is more common in older folks. It has affected my balance and my sleep. As Katherine Hepburn said, "Getting old ain't for sissies."

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@katdens
You may not be diabetic but have you possibly been in the pre-diabetic range for a long time?

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