Has anyone found a treatment that helps with peripheral neuropathy?

I stay away from all advertised, privately developed medicines. If and when modern medicine develops a scientifically studied product then I'm willing to try it. I do use natural supplements which have been studied and confirmed to be supportive of medical issues, i.e, R alpha lipoic acid for PIN. I

I have had PN Since chemo 3 1/2 years ago.

I have managed to keep it from spreading further up the front of my feet and legs by stretching my hamstrings several times a day. I also massage my feet morning and before bed using a homeopathic gel called Phyto Gel. I know many people do not believe in homeopathy, but I have found this product to work. This allows me to sleep without waking up from PN discomfort. I’m sure other lotions work as I believe the massage and stretching are the most important activities necessary to contain the PN. All doctors I have spoken to say there is no treatment so we are on our own and must try to find something to help.
I have purchased a frame which keeps the weight of the blankets off my feet and found this very helpful.

@alicebrown Not sure if its linked - but - I have been taking electrolyte salts to counter cramp that come with long periods of pain and this appears to be reducing the duration of the pain. Will give this more time an see if the link persists

@alicebrown
Is the product sold over the counter?

One should not generalize in these chats without detailing their diagnosis. If your condition is idiopathic the reply will be different than someone who has had chemotherapy or someone with elevated sugars etc. in my case which is idiopathic I am currently Additional testing not available in NYC by going to John Hopkins in Maryland. Of course Mayo Clinic is another good option.

I have not found a drug that is prescribed which will cure the problem. I have found some relief from rather new no prescription pill
called Nervive. In addition I use a foot massage unit produced by Dr. OH. It helps leg pain, reduces foot and ankle swelling, and improved blood circulation for me. Nervive is available in day and night preparations forms in my Canadian Drug Stores. This is not an advertisement. I would appreciate comments and enjoy this forum.

I listened to the podcast posted a few days ago by Dr. Patterson from the foundation of PN. It has a variety of causalities listed and new tools for testing described. She also elaborated on metabolic syndrome and patients with historically high triglycerides, and subtle toxic effects of obesity due to body fat content. These issues hit home as I have been diagnosed with idiopathic PN and have had EMGs at Norin and Mayo earlier in the beginning stages of the disease. I continue to read this thread hoping for a breakthrough but realize that the body chemistry and Genetic background, in addition to viral history poses a huge mountain of complexities that AI may have to resolve. Your best physicians and Neurologists have NO reliable answers! As I continue to examine the reports of others having success with B12 and extremely soficticated concoctions of multi vitamins, I can only conclude that these folks were deficient of the offered range of ingredients and were actually helped as the remedy matched the deficiency adequately. My numbness and burning began in my big toes on both feet in 2007. I had all the tests for deficiencies and auto immune diseases. Because my mother complained of it and told it was IPN, Neurologists claimed it is likely familial and genetically related with no solution or remedy. Since I listened to Dr. Pattersons podcast, I decided to review my triglyceride test history and found they were high or elevated for several years between 2007 and 2012 the seemed to level off. That makes me wonder?

@trfb

@trfb

How old are you? What Career did you have? Where did you go for Treatment?

I’m 83. Stage 4 Lung Cancer. November 2022. MD Anderson AZ

I use AMLA and my pins and needles have stopped !
I take two in the morning and haven't had a problem since .
I am very CHEAP and found that EBAY is the least costly.