Skin that is painful to the touch

I have this issue 24/7 but it fluctuates in severity from day to day. I wish I had a wise word to give specific to this but I’ve only found distractions to be helpful. So far those distractions carry their own price. Interestingly I developed very painful small fiber neuropathy in my lower legs. The small nerve fibers are more abundant in skin. My fibromyalgia diagnosis came over 20 years ago.

@clm6 , my under the skin soreness fluctuated too, but since I started taking the Hydroxichloroquine I don’t have it. Most muscle and joint pain is gone. Your rheumatologist might be able to advise if it mught be an option for you. Everyone is different, but it has made a huge difference in my life.

Thank you for your reply. We can feel pretty invisible sometimes. I was on that for about a year at first. I seem to have an overlap of Sjogrens as well. It didn’t help then but it was 20ish years ago. I think I may revisit that idea. Thank you.

This is indeed a fibromyalgia symptom. I usually get it all over my back, so my clothes hurt and a shower is like being stabbed by thousands of tiny needles. For me, it can also be an indicator of an imminent full-on pain episode.

I have had some relief from Duloxotine, a generic form of Cymbalta. I also avoid caffeine.

I have had this and it is part and parcel of fibro. Hypersensitivity of the pain receptors in the skin

@dodyg , I understand. I have been evaluated for fibromyalgia multiple times by specialists, but they said no. That it isn’t fibromyalgia. My mom has something similar too. She’s never been diagnosed with it either.

Nonetheless, I’m pretty pain free now. Hopefully, I can continue on the Hydroxichloroquine. Also, I’ve never had fatigue or exhaustion, except before hypothyroidism diagnosis and treatment.

My suggestion is to keep a journal and research what your triggers might be. It might be environmental, it might be medication, it might be food, it might be drink, it might be activity it might be inactivity, and it might be a change of weather. I suggest you try acupuncture and an MFR therapist. Both of those worked excellent to control my nerves on fire feeling. You can also look at nutritional needs. After I went into menopause, I had to make a lot of adjustments and increase my nutritional concentration in B, D, and iron. That absolutely helps my nerves on fire feeling, and reduced my incidents of flares.

@dodyg
I agree with everyone. It is part and partial of fibromyalgia as stated above. Sometimes it’s more sometimes it’s less. Because of this, I wear very loose clothing, and when I can off, goes the bra lol. For me it’s mostly my left side of my body. So my partner knows not to put his hand on my left side and when we’re sitting, he puts his hand on my right side. I also don’t lay on my left side. I guess I’m saying that know what is bothering you and then do the things that can make it worse. For me it is always there but on a pain scale of one to 10 it can be two. But if I’m stressed or I did too much during the day, it might rise up to four or five. When it gets like that, I just have to lay flat on the and listen to a meditation for 20 minutes. Then usually will go down. When you have Fibro you often second-guess why do I have this pain? Why does my shin hurt so much, why does my lower back hurt so much, why does my right wrist hurts so much, and so on and so forth. I know I can sometimes worry that I have something more than Phibro when these aches come. But now that I’m 71 I have to think oh it might be arthritis. It just might be because my body is getting old lol. You are not alone. We are all here in the same boat.

i have been diagnosed with fibromyalgia for about a year now. as i look back, i can think of times when it flared and i had no name for it. but i have lately been having skin pain -- it's painful to have a tshirt on. i am not sure what to do, other than remove my shirt. i live alone so it's not a big deal. but when i have to work and my skin hurts, it's challenging.

i also get really deep itches, in random places all over my body and when they flare, they move from place to place. and i scratch the hell out of them, sometimes leaving bruises, but scratching doesn't help. does anyone have this and how do you cope?