Anyone else experiencing allergic reactions to heart medications?

@thank you jlharsh

@jlharsh
Not sure if this helps with posters but I was put on a medication by my heart failure (HF) doctor. I will attempt to spell it, Spiroractone. I experienced every single side affect listed. I contact my HF doctor and he said you are allergic to it.

He then put me on an alternative called Eplerenone which was a similar drug. I did not have the side affects and have been taking over a year now.

Everyone reacts differently to drugs just need to keep trying to fine ones you can tolerate. The HF doctor I.D. the "Spiro" drug as an allergic medication on my health record.

Not sure this will help the poster but wanted to share had a allergic reaction to one medication and providers put me on something different to see if could tolerate.

@jharsh you mentioned working with your doctors so wanted to pass on that is what I did.

@jc76
I also have really bad reactions to the Heat Failure medications. I have HFPEF and no medications work for this type unless you are obese, high blood pressure, sleep apnea and kidney disease which I don’t have.
What type of HF do you have?
Thanks

I stopped taking all (and there were a lot) but one. Many allergic reactions disappeared. The few that remained (a few rashes, bladder problems, etc.) were far less intense.

@jlharsh the medications are necessary and as a result, I had to concentrate on managing the histamine reactions that I was experiencing. Fexofenadine (Allegra) and low doses of prednisone (5mg, 10mg alternation days) has worked for me. When experiencing small break through skin reactions I apply ice and they do subside after 30 minutes or so. The medications that triggered anaphylaxis are avoided always.

@deniseheart update, I did try Enalapril and no luck. Hives with a vengeance. I have since found out that diuretics' are the main cause of my skin reactions since I found one beta blocker (Bystolic brand name only) that is skin reaction free. Have not found a diuretic that doesn't give me head to toe hives but hopefully there will be an injectable available in the future. (IV lasix does not cause a rash for me)

@redhead63
I was diagnosed with Cardiomyopathy. When they first discovered a low EF they did a catherization on my coronary arteries. They did not find any cardiovascular disease. But my hearts electrical system was all screwed with LBBB.

We did a history of any illness right before the LBBB was discovered. reported a serious virus infection just before the LBBB was found on a routine EKG. My doctors said most likely virus got onto heart and caused scar tissue.

My EF kept going lower lower and my local cardiologist said once EF gets to 30 we recommend seeing a Electrophysiologist (EP) for a ICD device. I chose to get a second opinion at Mayo Clinic Jacksonville. There I met with EP who diagnosed me with same cardiomyopathy and suggested a dual device ICD/Pacemaker. He said pacemaker could help with electrical issues and the ICD would be there if heart went into tachycardia.

He referred me that same day to the heart failure specialist at Mayo. He recommended changing my medications to Entresto and Coreg. I then made decision to change my care to Mayo Jacksonville and followed all the procedures and medication they recommended.

My EF by that time was 22%. With the pacemaker, ICD, and new medications my EF has been the same for over 20 years.