1. < Hypertrophic Cardiomyopathy (HCM)
Profile picture for newtosohcm

HCM, Camzyos & Knee Replacement: What are the risks?

Posted by newtosohcm @newtosohcm, Oct 5, 2023

What are the risks of undergoing spinal anesthesia and other meds as well during and after surgery?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

Profile picture for boatsforlife
boatsforlife | @boatsforlife | 5 days ago
In reply to @newtosohcm "I am still searching for answers input or anybody on Camzyos who has had a total..." + (show)
Profile picture for newtosohcm @newtosohcm

I am still searching for answers input or anybody on Camzyos who has had a total knee replacement to simply share info with. There’s gotta be SOMEBODY out there😊

Jump to this post

@newtosohcm Hey there! This conversation is more than 2 years old but I'm about to undergo surgery with general anethesia in mid-October. (Not knee.) I've reached out to all of my medical people including my REMS case manager, and I have an appointment with the anesthesiologist in 9 days but I'm wondering (i) did you every get any helpful feedback on this forum, or from the March 2024 Bristol Meyers Squibb brain trust? (ii) how did your surgery go vis-a-vis Camzyos/anesthesia? Hope your TKR did what you needed!

REPLY
Profile picture for judpuds
judpuds | @judpuds | 2 days ago
In reply to @newtosohcm "I would like info about the effects/interactions of Camzyos with anesthesia drugs. I’m going to have..." + (show)
Profile picture for newtosohcm @newtosohcm

I would like info about the effects/interactions of Camzyos with anesthesia drugs. I’m going to have a total knee replacement asap. What are the risks or concerns? I realize it’s a question for the anesthesia team and my cardiologist to discuss but I don’t know how to make that happen. My cardiology team is swamped and I live 8 hours away where no one is familiar with Camzyos or HCM.

Jump to this post

@newtosohcm Here in BC, Canada, I have a “navigator” for my coming knee surgery, who coordinates all my issues to ensure my safety.

REPLY
Profile picture for judpuds
judpuds | @judpuds | 1 day ago
In reply to @karukgirl "Hi @newtosohcm, Those are some good questions. I would want to know the exact same thing..." + (show)
Profile picture for Debra, Volunteer Mentor @karukgirl

Hi @newtosohcm,
Those are some good questions. I would want to know the exact same thing if I were having surgery!
Connect does not delve into dispensing medical advice, we share our stories and opinions and what worked or didn't work for us. This seems like a question for both your physicians, so if you have not yet, I would be sure to let your cardiologist know, and also the orthopedic surgeon. They both need to be on board long before you undergo surgery. The anesthesiologist is also a major player in this deal...so going forward, I would say you need to get all the main characters involved.
When is your surgery scheduled?

Jump to this post

@karukgirl mine is next April.

REPLY
Please sign in or register to post a reply.