Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

nana1956 | @nana1956 | 1 day ago

Hi,
My name is Vicki. I’m 70 years old. I was diagnosed with adult onset diabetes at around 42 years of age. I’ve always had it under control. I had a knee replacement three years ago about six months after the surgery, which went really well. I started having neuropathy I have not been able to find a neurologist that has been able to help right now. It’s at its worst. I’m hoping just to chat with people who may have some solutions as how to make it better I know it can’t be cured. Thanks for listening. Looking forward to chatting with people suffering from this issue.

John, Volunteer Mentor | @johnbishop | 1 day ago

In reply to @nana1956 "Hi, My name is Vicki. I’m 70 years old. I was diagnosed with adult onset diabetes..." + (show)

Hi Vicki @nana1956, welcome to Connect. I have idiopathic small fiber peripheral neuropathy and shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/. I've also been in the pre-diabetic category most of my adult life and suspect my neuropathy could have been partly due to the metabolic syndrome which is connected with diabetes. I shared a few references to the metabolic syndrome in another post here if you want to know more about it - https://connect.mayoclinic.org/comment/818645/. Probably the best thing you can do is what you are doing right now - learning more about neuropathy and what others have found helpful.

Here are my two favorite sites for learning more about neuropathy:
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview

What symptoms to you find the hardest to manage?