Should I get a pacemaker diagnosed w/afib, tachy-brady and now SSS?

Posted by 1wife @1wife, 3 days ago

My husband, age 75, was diagnosed with afib February 2026. PCP, a NP, misdiagnosed and treated him for a cold from Nov 25 to Feb 26 instead of heart failure. He was able to leave the hospital after 9 days after 2nd attempt of a cardioversion. Many med adjustments. Ablation April 2026. EF and size of atria returned to normal 5 months post ablation. 25 mg 1x day of metoprolol cut in half and went into afib with fainting, pulse 180, 2 days later. Emergency room amiodarone infusion returned heart to sinus rhythm. Resting heart rate has been in the 40s since first afib episode. Now on 40 mg of sotalol 1x day. Electrophysiologist wants to put in pacemaker so that he can get the correct dosage of an arrhythmia medication. Now diagnosed with SSS. We are seeing another Electrophysiologist for a second opinion. Told to stay near a hospital in case this happens again. There seems like so many different approaches. What questions should we ask?

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Sorry this has happened. It must be very distressing to you both.

The pacemaker usually means they will ablate the AV node, the node that passes the SA node's electrical signals on to the two large vessels below the atria, they being the ventricles. When I say ablate, I mean 'nuke' it. They permanently destroy the AV node because it wants to make the ventricles' rate of beating match what the chaotic beat is above them, in the left atrium (which is the fibrillation). This rapid rate is harmful if it persists and lasts for long periods of a few days or more, which is likely where this is all headed. It's a muscle after all, and it will tire and degrade...which nobody wants.

A first attempt at ablation has failed. Has anyone suggested what was missed the first time, or if this is a new and inevitable progression, his new acute circumstance with the hospitalization? I would think that a new set of eyes, in the skull of a 'nuther EP, might see you facing one or more new options that at least 'sound' better than what the current EP is suggesting...the pacemaker. For example, unless there's something about your husband that neither of us knows about and/or understands that make a second ablation unworkable, maybe even dangerous, it's not unusual for a first ablation to fail. Been there myself. Second attempt has me in steady and reliable NSR for 38 months now. I would want to know why a second ablation is not in the works, and that would be my first question to an EP. It may be clear-cut when you hear the answer, and at least that option can be ruled out, even in your eyes.

Pacemakers are meant to regulate the ventricles....they don't always correct an arrhythmia like AF. In fact, in order to save some patients' lives, they implant a pacemaker and tell the patient he/she'll have to live with AF permanently and to make the best of it. If the patient is highly symptomatic when in AF, and suffers unduly....................................................do I need to spell it all out?

There are a couple of 'final solutions' in cardiology. The first is the AAD amiodarone, the anti-arrhythmic drug. It's the drug of last resort because it carries a lot of risk to the patient with toxicity. The second is the pacemaker. Once they feel there's nothing else they can do but to destroy the AV node and put the patient on a pacemaker, that's it for life. There's no going back. But I wouldn't submit to either of those unless there were really, and convincingly, no other options, especially none a conscientious and scrupulous physician were willing to try. I would wonder about at least trialing an AAD like flecainide, maybe Dofetilide...if the EP thinks it's worth a shot, propafenone...? Or, a second attempt at an ablation. There are EPs out there who specialize in 'complex' cases, of which your husband's may be one example. Maybe all he needs is his left atrial appendage isolated (LAA). Maybe the coronary sinus, or the Vein of Marshall. Why isn't this EP amenable to investigating those, or has he already and ruled them out for certain? Does he have the skills and experience to perform those types of ablation if they are indicated? There's two more questions.

REPLY
Profile picture for gloaming @gloaming

Sorry this has happened. It must be very distressing to you both.

The pacemaker usually means they will ablate the AV node, the node that passes the SA node's electrical signals on to the two large vessels below the atria, they being the ventricles. When I say ablate, I mean 'nuke' it. They permanently destroy the AV node because it wants to make the ventricles' rate of beating match what the chaotic beat is above them, in the left atrium (which is the fibrillation). This rapid rate is harmful if it persists and lasts for long periods of a few days or more, which is likely where this is all headed. It's a muscle after all, and it will tire and degrade...which nobody wants.

A first attempt at ablation has failed. Has anyone suggested what was missed the first time, or if this is a new and inevitable progression, his new acute circumstance with the hospitalization? I would think that a new set of eyes, in the skull of a 'nuther EP, might see you facing one or more new options that at least 'sound' better than what the current EP is suggesting...the pacemaker. For example, unless there's something about your husband that neither of us knows about and/or understands that make a second ablation unworkable, maybe even dangerous, it's not unusual for a first ablation to fail. Been there myself. Second attempt has me in steady and reliable NSR for 38 months now. I would want to know why a second ablation is not in the works, and that would be my first question to an EP. It may be clear-cut when you hear the answer, and at least that option can be ruled out, even in your eyes.

Pacemakers are meant to regulate the ventricles....they don't always correct an arrhythmia like AF. In fact, in order to save some patients' lives, they implant a pacemaker and tell the patient he/she'll have to live with AF permanently and to make the best of it. If the patient is highly symptomatic when in AF, and suffers unduly....................................................do I need to spell it all out?

There are a couple of 'final solutions' in cardiology. The first is the AAD amiodarone, the anti-arrhythmic drug. It's the drug of last resort because it carries a lot of risk to the patient with toxicity. The second is the pacemaker. Once they feel there's nothing else they can do but to destroy the AV node and put the patient on a pacemaker, that's it for life. There's no going back. But I wouldn't submit to either of those unless there were really, and convincingly, no other options, especially none a conscientious and scrupulous physician were willing to try. I would wonder about at least trialing an AAD like flecainide, maybe Dofetilide...if the EP thinks it's worth a shot, propafenone...? Or, a second attempt at an ablation. There are EPs out there who specialize in 'complex' cases, of which your husband's may be one example. Maybe all he needs is his left atrial appendage isolated (LAA). Maybe the coronary sinus, or the Vein of Marshall. Why isn't this EP amenable to investigating those, or has he already and ruled them out for certain? Does he have the skills and experience to perform those types of ablation if they are indicated? There's two more questions.

Jump to this post

@gloaming

They want to put in the pacemaker because the AADs lower your heart rate. The doctor said if they put in a pacemaker, they could try a normal dose of an AAD and maybe another ablation. He has no coronary artery disease.

REPLY
Profile picture for gloaming @gloaming

Sorry this has happened. It must be very distressing to you both.

The pacemaker usually means they will ablate the AV node, the node that passes the SA node's electrical signals on to the two large vessels below the atria, they being the ventricles. When I say ablate, I mean 'nuke' it. They permanently destroy the AV node because it wants to make the ventricles' rate of beating match what the chaotic beat is above them, in the left atrium (which is the fibrillation). This rapid rate is harmful if it persists and lasts for long periods of a few days or more, which is likely where this is all headed. It's a muscle after all, and it will tire and degrade...which nobody wants.

A first attempt at ablation has failed. Has anyone suggested what was missed the first time, or if this is a new and inevitable progression, his new acute circumstance with the hospitalization? I would think that a new set of eyes, in the skull of a 'nuther EP, might see you facing one or more new options that at least 'sound' better than what the current EP is suggesting...the pacemaker. For example, unless there's something about your husband that neither of us knows about and/or understands that make a second ablation unworkable, maybe even dangerous, it's not unusual for a first ablation to fail. Been there myself. Second attempt has me in steady and reliable NSR for 38 months now. I would want to know why a second ablation is not in the works, and that would be my first question to an EP. It may be clear-cut when you hear the answer, and at least that option can be ruled out, even in your eyes.

Pacemakers are meant to regulate the ventricles....they don't always correct an arrhythmia like AF. In fact, in order to save some patients' lives, they implant a pacemaker and tell the patient he/she'll have to live with AF permanently and to make the best of it. If the patient is highly symptomatic when in AF, and suffers unduly....................................................do I need to spell it all out?

There are a couple of 'final solutions' in cardiology. The first is the AAD amiodarone, the anti-arrhythmic drug. It's the drug of last resort because it carries a lot of risk to the patient with toxicity. The second is the pacemaker. Once they feel there's nothing else they can do but to destroy the AV node and put the patient on a pacemaker, that's it for life. There's no going back. But I wouldn't submit to either of those unless there were really, and convincingly, no other options, especially none a conscientious and scrupulous physician were willing to try. I would wonder about at least trialing an AAD like flecainide, maybe Dofetilide...if the EP thinks it's worth a shot, propafenone...? Or, a second attempt at an ablation. There are EPs out there who specialize in 'complex' cases, of which your husband's may be one example. Maybe all he needs is his left atrial appendage isolated (LAA). Maybe the coronary sinus, or the Vein of Marshall. Why isn't this EP amenable to investigating those, or has he already and ruled them out for certain? Does he have the skills and experience to perform those types of ablation if they are indicated? There's two more questions.

Jump to this post

@gloaming

Thank you for taking the time to write all of that information.

REPLY
Profile picture for 1wife @1wife

@gloaming

They want to put in the pacemaker because the AADs lower your heart rate. The doctor said if they put in a pacemaker, they could try a normal dose of an AAD and maybe another ablation. He has no coronary artery disease.

Jump to this post

@1wife The idea of AADs is to restore normal rhythm, and it usually means a reduction in heart rate at the same time if it's one of the tachyarrhythmias. But that reduction in rate is an artefact of the regulation and restoration of rhythm, not the goal per se. Is it his experience that AADs reduce his HR into bradycardia territory, say less than 50 BPM, that makes him light-headed and windy?

REPLY
Profile picture for 1wife @1wife

@gloaming

They want to put in the pacemaker because the AADs lower your heart rate. The doctor said if they put in a pacemaker, they could try a normal dose of an AAD and maybe another ablation. He has no coronary artery disease.

Jump to this post

@1wife
Many medications cause a reduction in BP and pulse rate. I was on Entresto and Coreg that drastically reduced my pulse rate and BP.

My pacemaker was raised from 40 bpm, to 50, to 60, to now at 70. What is at 70. Cardiologist found the 70 bpm was the best rate to reduce the amount of PVCs I was having.

REPLY
Profile picture for gloaming @gloaming

@1wife The idea of AADs is to restore normal rhythm, and it usually means a reduction in heart rate at the same time if it's one of the tachyarrhythmias. But that reduction in rate is an artefact of the regulation and restoration of rhythm, not the goal per se. Is it his experience that AADs reduce his HR into bradycardia territory, say less than 50 BPM, that makes him light-headed and windy?

Jump to this post

@gloaming

Thank you for taking the time to reply again. My husband is not lightheaded and windy with a heart rate of 40. He is a hiker and a biker. Since this last episode he has not been biking or hiking because he is afraid of having an attack of afib.

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@1wife Welcome to Mayo Clinic Connect, a forum where you can meet others with similar health issues. It is not a place to get professional medical care. We share our experiences and information. Please identify acronyms (SSS is sick sinus syndrome, I had to look it up), many of us are unfamiliar with the endless number of acronyms in cardiology (and in life). Between those acronyms and all those alike-sounding medications and procedures, doctors need the most excellent ability to remember all of it!

While others responding to your post have made suggestions, medical questions should be directed to your professional care givers.

I have an ICD to regulate an electrical problem that resulted in arrythmias after a septal myectomy, it solved the problem and I am grateful!

You are looking for good questions to ask when you accompany your husband to his next appointment. Here is a link that you both can read and discuss, I am hoping it will help you generate questions along with those stemming from the other comments on your post. https://www.mayoclinic.org/diseases-conditions/sick-sinus-syndrome/symptoms-causes/syc-20377554.

Your husband is probably looking forward to hiking and biking again! We have trouble remembering that this is the Art of Medicine, our individual differences prevent it from being an exact science. Is he aligned with a facility that is known for excellent heart care? When is your second opinion appointment?

REPLY
Profile picture for Linda, Volunteer Mentor @walkinggirl

@1wife Welcome to Mayo Clinic Connect, a forum where you can meet others with similar health issues. It is not a place to get professional medical care. We share our experiences and information. Please identify acronyms (SSS is sick sinus syndrome, I had to look it up), many of us are unfamiliar with the endless number of acronyms in cardiology (and in life). Between those acronyms and all those alike-sounding medications and procedures, doctors need the most excellent ability to remember all of it!

While others responding to your post have made suggestions, medical questions should be directed to your professional care givers.

I have an ICD to regulate an electrical problem that resulted in arrythmias after a septal myectomy, it solved the problem and I am grateful!

You are looking for good questions to ask when you accompany your husband to his next appointment. Here is a link that you both can read and discuss, I am hoping it will help you generate questions along with those stemming from the other comments on your post. https://www.mayoclinic.org/diseases-conditions/sick-sinus-syndrome/symptoms-causes/syc-20377554.

Your husband is probably looking forward to hiking and biking again! We have trouble remembering that this is the Art of Medicine, our individual differences prevent it from being an exact science. Is he aligned with a facility that is known for excellent heart care? When is your second opinion appointment?

Jump to this post

@walkinggirl

Thank you so much for taking the time to reply to my post. I will look at the link that you included. His second opinion is on Oct first and will be at NYU Langone Heart Rhythm Center in NYC.

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I was diagnosed with tachy-brady in fall of 2025. Got a pacemaker in June 2026 and on the list for ablation. Happy so far with treatment at UW Madison WI.

REPLY
Profile picture for 1wife @1wife

@gloaming

They want to put in the pacemaker because the AADs lower your heart rate. The doctor said if they put in a pacemaker, they could try a normal dose of an AAD and maybe another ablation. He has no coronary artery disease.

Jump to this post

@1wife
Putting in a pacemaker does not necessarily mean an AV Node Ablation. I had a pacemaker implanted for the reasons your EP indicated. An AAD lowered my heart rate to the point that I had a fainting episode. My pacemaker keeps the ventricles from beating too slowly. Knowing that your heart rate will not drop too low, another ablation or AAD can be tried. The pacemaker itself does not affect AFIB.

Years later, if nothing is successful stopping AFIB ( other AADs or ablations), certainly an AV Node Ablation can be done. I did have one 4 years after the pacemaker.

However - while a pacemaker is needed with an AV Node Ablation to keep the ventricles beating normally - an AV Node Ablation is NOT needed with a pacemaker. By the way, I am very happy that I have my pacemaker. Good luck!

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