Fatigue with NTM

@jessed I had severe fatigue before being diagnosed with MAC and mild bronchiectasis . It got much better once I started the antibiotics but lately it is back with a vengeance.

@jessed I have fatigue a lot, and usually an elevated temp along with it when I have it. Not a clinical fever, but a fever of sorts for me, as in 99.6. It can be depressing, but it seems to come and go without a lot of rhyme or reason. I hope you are feeling less fatigued now.

@loyse BTW, I also often present clinically, with a "normal" temp at 99. My normal temp is about 97.3. Anytime I run 99, I KNOW an infection is trying to kick up, in my case anyway. This has been going on for 20 years. Sometimes, I "kick" whatever is starting to fester, but sometimes, it just progresses into a full-blown infection. I had it explained to me once, that because of the MAC my body is always fighting, the opportunistic bacteria (that we all harbor) will and do come out to wreak havoc from time to time.

@mjb24 I have BE, NTM, and asthma. I've experienced fatigue off and on since 2024. Last year, I started taking Chinese herbs which really helped but I switched to NMN and Coq10 supplements 1.5 months ago after my brother text me about clinical NMN studies and how they improve fatigue, strength, and endurance for the aging and/or chronically ill. My sister also chimed in. My brother is an anesthesiologist and my sister a geneticist (who ran medical research labs and wrote a book on aging), so good sources of information. I read a few studies and that was enough for me. The NMN and CoQ10 is a precursor to ATP (cellular energy)-which is what we need. Within 2 weeks of starting the NMN, I noticed a difference in my energy. A friend of mine started the 2 supplements last week, it will be interesting to see if she's noticed a difference. I also take Vitamin D3, which many of us with BE are deficient. I'm just happy I could stop the Chinese herbs; they worked but were very expensive and caused GI issues. The Eastern Medicine doctor had started me on 16 capsules/day (4 for energy and 4 for liver), I eventually cut it back to just 4 of the energy capsules but could never go off of them, now I don't need them anymore.

@kathyjjb
I am interested in trying the NMN and CoQ10 to see if they help with my constant fatigue. Is there a trusted brand you use for these supplements? There are so many available, even one called Doctor's Best that has a combo of the two supplements.
Thank you.

@clynnp I use the NOW brand ubiquinol, which is a more bio-available version of CoQ10. It's a bit more expensive, but I think it is worth it.

@mjb24 I have BE, NTM, and asthma. I've experienced fatigue off and on since 2024. Last year, I started taking Chinese herbs which really helped but I switched to NMN and Coq10 supplements 1.5 months ago after my brother text me about clinical NMN studies and how they improve fatigue, strength, and endurance for the aging and/or chronically ill. My sister also chimed in. My brother is an anesthesiologist and my sister a geneticist (who ran medical research labs and wrote a book on aging), so good sources of information. I read a few studies and that was enough for me. The NMN and CoQ10 is a precursor to ATP (cellular energy)-which is what we need. Within 2 weeks of starting the NMN, I noticed a difference in my energy. A friend of mine started the 2 supplements last week, it will be interesting to see if she's noticed a difference. I also take Vitamin D3, which many of us with BE are deficient. I'm just happy I could stop the Chinese herbs; they worked but were very expensive and caused GI issues. The Eastern Medicine doctor had started me on 16 capsules/day (4 for energy and 4 for liver), I eventually cut it back to just 4 of the energy capsules but could never go off of them, now I don't need them anymore.

@kathyjjb
I am interested in trying the NMN and CoQ10 to see if they help with my constant fatigue. Is there a trusted brand you use for these supplements? There are so many available, even one called Doctor's Best that has a combo of the two supplements.
Thank you.

@clynnp Currently, I'm taking Prohealth Longevity, Liposomal NMN Pro 300 and Qunol Ultra CoQ10. That's working good for me but after I'm done with that, I'm going to try Life Extension Optimized NAD+ NMN. I would stick with the Prohealth but my brother sent me the Life Extension brand-so a freebie, which I can't resist:).

That's interesting that Doctor's Best combined the NMN and CoQ10. The 2 work synergistically in ATP production. That said, I noticed an improvement in energy and endurance when I was taking just the NMN. I'll take a look at the Dr's Best as well. Life Extension NMN adds reveratrol, bio-quercetin, and fiestin-so another synergistic mix.

I hope it helps. There's always the placebo effect. In a few weeks, I will post my friends (she has BE, MAC, and COPD) experience-hopefully it will help her as well.

@kathyjjb Thank you for your input. I hope they help you. I have read up on CoQ10 before but never tried it. Before being diagnosed with MAC, BE & COPD I never took any medication, supplements or vitamins. I would take tylenol if I had an awful toothache but that was it. I lean more towards eating the right food and not eating the wrong food. I don't like taking any kind of medicine and although I am intrigued by the claims of some supplements, I still can't bring myself to take them. Unfortunately, I am now on 3 antibiotics, Arikayce, a daily inhaler, Vitamin D3 and a probiotic. Yikes! So I am really reluctant to add anything else. I will, however, research your suggestions more as it is intriguing.