C1-C2 joint injections for headache, anyone?

Posted by lesliek808 @lesliek808, 5 days ago

I have constant headache and neck pain for the last 5 years. After I was diagnosed with a GI bleed, I was a taken off anti-inflammatories and now taking 3g of Tylenol a day to help control the pain and it's not working.

My pain doctor for the first time injected C1-C2 joint on Saturday and although I still have a slight headache, it feels less intense.

Has anyone else had these injections? Did it work for you?

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Profile picture for mikayla @mikaylar

YES. Useless. sorry

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@mikaylar Appreciate your quick response and thoughts. Pls take care.

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I am sorry for your pain. Are you referring to nerve blocks when you say “injections”? If so, I did get those at a pain clinic - I had been afflicted with headaches pretty much 24/7 for the past 15 years at least. They did absolutely NOTHING. And they’re rather painful. I endured for about two years before giving up. Have you tried Botox? How about the different CGRP’s available today? I hope something works for you and you get your life back . I wish you success. Take care

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Profile picture for richardfrancine @richardfrancine

I am sorry for your pain. Are you referring to nerve blocks when you say “injections”? If so, I did get those at a pain clinic - I had been afflicted with headaches pretty much 24/7 for the past 15 years at least. They did absolutely NOTHING. And they’re rather painful. I endured for about two years before giving up. Have you tried Botox? How about the different CGRP’s available today? I hope something works for you and you get your life back . I wish you success. Take care

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@richardfrancine Yes, I wasn't clear on what type of injections. It was a steroid injection. My pain doctor ablated C3-6 in early July. The ablation procedure did not help the neck pain.

Then he injected C1-2 with steroid shot this past Saturday. I don't know if it's working or not. I still have the headache, so I wonder if I'm just being impatient and need to give it more time to see results. If this does not work, I will ask about botox or even contemplate surgery. I cannot function at all. I'm still working at age 63.

You really have suffered over these 15 years. I'm sorry you're going through this. I can relate how defeating the feeling is that you'll never be out of pain.

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In my experience, nerve blocks take several days to kick-in. Yes, the injection is painful and can knock you out for a few days. I had three nerve blocks before I decided it was not worth it to me to have steroids in my body. CGRP's have been more effective for me. I take Aimovig 140 every 28 days. I am on my second round of Botox and still have not decided if that is beneficial. Botox does us CGRP's which are proven to reduce or mitigate headaches. I still have daily headaches, they are just more tolerable. My tumor is inoperable. I hope this information helps. You are not alone.

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Profile picture for tbgreif625 @tbgreif625

In my experience, nerve blocks take several days to kick-in. Yes, the injection is painful and can knock you out for a few days. I had three nerve blocks before I decided it was not worth it to me to have steroids in my body. CGRP's have been more effective for me. I take Aimovig 140 every 28 days. I am on my second round of Botox and still have not decided if that is beneficial. Botox does us CGRP's which are proven to reduce or mitigate headaches. I still have daily headaches, they are just more tolerable. My tumor is inoperable. I hope this information helps. You are not alone.

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@tbgreif625 Thank you for sharing your experience and suggestions.

I had to look up what CGRP is. I have never heard of that. I can bring that up with my pain doctor since I see him in 3 weeks. I'm sure that and botox is worth trying before I ask for surgery.

Very sorry to hear your headaches are due to a tumor. That's so scary. Sending healing wishes to you.

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In reply To all of the above. I Also deal with lots of headaches and issues in my neck. I'm just wondering if any of you have heard of jugglar vein compressions? I was diagnosed with it in '25 I still didn't have my surgery for it as of lots of other health issues. Just thought this could be an option if any of you wanted to check into it, I see a doctor from Germany for it.... It's not exactly a well known issue though.

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Profile picture for raehost @raehost

In reply To all of the above. I Also deal with lots of headaches and issues in my neck. I'm just wondering if any of you have heard of jugglar vein compressions? I was diagnosed with it in '25 I still didn't have my surgery for it as of lots of other health issues. Just thought this could be an option if any of you wanted to check into it, I see a doctor from Germany for it.... It's not exactly a well known issue though.

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@raehost I have never heard of jugular vein compressions. Can you get this procedure in the US?

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Profile picture for lesliek808 @lesliek808

@raehost I have never heard of jugular vein compressions. Can you get this procedure in the US?

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@lesliek808 to your question, Yes, you can get it in the United States. I knew someone who went to Colorado Otherwise, I don't know any other place in the US Hopefully this will help you out.

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