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Am I losing it too?
Two weeks ago, I had my annual wellness visit and I scored 100% on the memory test, including counting back by 7's. Last week, my husband's brain PET Scan results came into MyChart. He has Alzheimer's. Since then, we have looked at senior living communities in person and rented an apartment near our children. I feel as if I can't remember anything and I think I misplaced my son's house key. I don't want to think I am losing it, yet that's how it feels. Very worried. Has anyone experienced this and did it resolve for you? Thank you!
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@judimahoney Hope you have a sweet birthday!
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2 ReactionsMy husband was diagnosed with Alzheimers in 2018, but it is progressing relatively slowly. He's at home and with a little coaching can perform his ADLs. But I've noticed that I've started sundowning!
I can handle his repeated questions, etc., with equanimity during the day but after he gets up from his nap, around 5 pm, my temper is very short and the repetitions drive me crazy. He probably asks more questions then, too, and is more anxious (his own sundowning) but it was a real AHA moment to realize that I need to manage myself better in the evenings, and not be annoyed with him.
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4 Reactions@annedallas you've lived with caregiving for such a long time. Do you know about the Guide Program? https://www.cms.gov/priorities/innovation/innovation-models/guide. It's a demonstration project to see if providing support for caregivers can keep people with dementia at home longer. Part of it is funding for some home care so the family caregiver can have a break. If you had someone during the early evening hours, that could be a godsend for you. It's human to get annoyed I think. Sending a virtual hug.
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2 Reactions@dsand3 We only have Walmart as a grocery store and we are 25 min from the store. Yet they have in home delivery. It does cost $100 a year but there were half price sales last Thanksgiving. You are encouraged to tip. It's been a fabulous time saver for me.
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2 Reactions@annedallas I've seen others suggest having a white board on the fridge with the day's activities to cut down on the questions. I've gone to a pocket planner by his recliner. I fill in his sports schedules for the whole month along with any other activities either of us have. He can just reach over and get it, which he does maybe twenty times a time. That has helped somewhat to save my sanity.
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1 Reaction@grandmajoan
Thanks, it was OK.
Love the cake painting!
@wtr2026
Wish we qualified for that program, it sounds great. We have Medicare Advantage so we're ineligible (I call it Medicare disadvantage).
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1 Reaction@judimahoney I'm afraid you are right - although my sister and best friend have both done well with their Advantage plans. I'm going to sign up and will share how it goes.
@dederickve Thank you so much. Overwhelmed sums up our situation well. A long time ago, when I was facing a serious challenge said "You're going to get through this one way or another, you might as well get through it well." Of course I was a lot younger then :). My new mantra is "I can do hard things" - I don't quite believe it yet. How wonderful your doctor sounds. Thank you so much for taking time to help me!!!!
@4goakley Strength and courage - a winning combination. Thank you for saying this is our body's normal reaction.