Looking for a Sepsis Survivor's Support Group

Posted by EW @ew62, Jun 10, 2023

I am interested in finding a support group for Sepsis Survivors. Are there groups out there?

Interested in more discussions like this? Go to the Intensive Care (ICU) Support Group.

morkat | @morkat | Aug 13 11:33am

In reply to @soby "How do you prevent getting Sepsis again?" + (show)

@soby
Make sure you clean any cuts or bites on your skin. If you have flu like symptoms, go to a doctor for either meds that will protect you; or confirmation that the wound is not dangerous. Before you go to the dentist, ask your doctor for a one-time dose of antibiotic before your appt. Make sure your diet is healthy and you are getting adequate rest.

sallylightfootd | @sallylightfootd | Aug 14 1:38pm

In reply to @loribmt "Wow, that had to be really frightening for you! I’m glad you’re feeling so much better..." + (show)

@loribmt I, too, suffered septic shock as I contracted double pneumonia. I was admitted to the ICU for 8 days, and ended up having constant migraines big-time heart issues and trouble breathing. I was in and out of ICUs for 3 months with the headaches. I use oxygen only at night. I am now medicated for migraines and various heart issues. I am still very weak 9 months later. Sometimes I feel like I may not make it, sometimes I am cheerful and productive. If I overdo it, I suffer for it - taking naps and recovering.

morkat | @morkat | Aug 15 5:52pm

In reply to @sallylightfootd "@loribmt I, too, suffered septic shock as I contracted double pneumonia. I was admitted to the..." + (show)

@sallylightfootd
Yes, I understand. It took weeks until I discovered it had affected my vision and that I had brain damage. I could not read for a year. The print would drip down the page. My brain felt like concrete, I couldn't do simple things I had done a million times. I had to leave my job and go on long term disability; never to return to work. I retired at 65 the normal age for me. I couldn't drive or stay on task at first. The healing is slow. I appreciated that you know the boundary of "too much". I know my limits and operate within them. Be good to yourself when you feel it is "too much" take a break and rest yourself. Good luck.

Lori, Volunteer Mentor | @loribmt | Aug 16 9:47am

In reply to @sallylightfootd "@loribmt I, too, suffered septic shock as I contracted double pneumonia. I was admitted to the..." + (show)

@sallylightfootd
Oh my gosh, Sally, what a traumatic experience you’ve gone through and still continuing with the aftermath! From what others have mentioned this is a very slow, but steady recovery. So I admire you for taking one day at a time and understanding your limitations.
Were your heart issues directly related to the septic shock?

sallylightfootd | @sallylightfootd | Aug 16 10:21am

In reply to @loribmt "@sallylightfootd Oh my gosh, Sally, what a traumatic experience you’ve gone through and still continuing with..." + (show)

@loribmt
No. Evidently not, although the two encourage one another into yet another health crisis

jann47 | @jann47 | Aug 17 7:40am

I am interested in finding a sepsis support group too. I posted to Mayo but I don't quite understand this website. I never saw my own request and I don't even know if this message will be seen (?)

Colleen Young, Connect Director | @colleenyoung | 1 day ago

In reply to @jann47 "I am interested in finding a sepsis support group too. I posted to Mayo but I..." + (show)

@jann47, hi. Your messages are seen. 🙂 You have posted successfully to the sepsis discussion to connect with other sepsis survivors.

I can understand the need and desire to piece together the parts of your experience that you can’t remember. There will be gaps that remain. Of course your medical records can give you a run down on the care you received, medications, etc. But that is rather clinical. Was your boyfriend able to give his account? Or family members?